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Help! new to all this
Hi, this is my 12th week of continuous bleeding and pain, had an urgent gynae appointment last week, the Dr attempted an internal which literally had me on the ceiling! Im now going for a hysteroscopy (due to endometrial thickening) & polypectomy under a GA next week. The Dr stated that I may have some
Hi, this is my 12th week of continuous bleeding and pain, had an urgent gynae appointment last week, the Dr attempted an internal which literally had me on the ceiling! Im now going for a hysteroscopy (due to endometrial thickening) & polypectomy under a GA next week. The Dr stated that I may have some
bonker07
in
Adenomyosis Advice Association
6 years ago
Is Green Tea and Matcha powder same, similar?
Hello All, I've always experienced a benefit from simply drinking green. Over the course of my life, when I was a green tea drinker I had far fewer colds/sinus infections etc than those times when I was a coffee drinker. Anyway, as a W&W CLL person since 2015 I've been increasingly going alternative
Hello All, I've always experienced a benefit from simply drinking green. Over the course of my life, when I was a green tea drinker I had far fewer colds/sinus infections etc than those times when I was a coffee drinker. Anyway, as a W&W CLL person since 2015 I've been increasingly going alternative
jawdfs
in
CLL Support
6 years ago
Introvenous vitamin C
Diagnosed 4 years ago with stage 3 COPD, 50% capacity, now 47%. I take Incruse Elipta I walk 7 k a day total, 1 1/ 2 k straight up a steep mountain road. I feel pretty good, a little breathless if I go too fast. I have now had two sessions of introvenous vitamen C. 2 little bottles once a week for
Diagnosed 4 years ago with stage 3 COPD, 50% capacity, now 47%. I take Incruse Elipta I walk 7 k a day total, 1 1/ 2 k straight up a steep mountain road. I feel pretty good, a little breathless if I go too fast. I have now had two sessions of introvenous vitamen C. 2 little bottles once a week for
CRPilar
in
COPD Friends
6 years ago
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CLL is gone!!!!
After living with CLL for 5 years. We have decided to divorce after she MRDed negative on my blood and bone marrow. Yes, I just got the best news of my life. I'm free again :-) I am still shocked with the results. I am on the 2nd cohort of the Imbruvica/Venetoclax trial for treatment naive patients
After living with CLL for 5 years. We have decided to divorce after she MRDed negative on my blood and bone marrow. Yes, I just got the best news of my life. I'm free again :-) I am still shocked with the results. I am on the 2nd cohort of the Imbruvica/Venetoclax trial for treatment naive patients
lamboman
in
CLL Support
6 years ago
Cancer Care Education Workshops Online 1 hour free sessions
Cancer Care Education Workshops Online 1 hour free sessions https://www.cancercare.org/connect_workshops/tagged/chronic_lymphocytic_leukemia - Upcoming Workshops Managing Chronic Lymphocytic Leukemia and Its Complications Part I of Life with Chronic Lymphocytic Leukemia (CLL) https://www.cancercare.org
Cancer Care Education Workshops Online 1 hour free sessions https://www.cancercare.org/connect_workshops/tagged/chronic_lymphocytic_leukemia - Upcoming Workshops Managing Chronic Lymphocytic Leukemia and Its Complications Part I of Life with Chronic Lymphocytic Leukemia (CLL) https://www.cancercare.org
lankisterguy
Volunteer
in
CLL Support
6 years ago
polypectomy: Doctor, clip it right away, please!
Hello! I had my colonoscopy yesterday. I have been dreading it for such a long time, but a friend who survived colon cancer urged me to have it. It was not half as bad as I imagined. I went home quite happy to have done the colonoscopy - the doctor saw 2 polyps and snipped them off for biopsy.
Hello! I had my colonoscopy yesterday. I have been dreading it for such a long time, but a friend who survived colon cancer urged me to have it. It was not half as bad as I imagined. I went home quite happy to have done the colonoscopy - the doctor saw 2 polyps and snipped them off for biopsy.
magician
in
Behçet's UK
6 years ago
Cll specialists
I hear often the term of CLL specialist. I have to ask if such title exists, Md I have to ask, how does a hematologist become a “CLL Specialist”? I’ve lived with CLL for 10 years, doing fine so far with Ibrutinib. I get my CLL checks and care in Spain, from an experienced, knowledgeable and caring hematologist
I hear often the term of CLL specialist. I have to ask if such title exists, Md I have to ask, how does a hematologist become a “CLL Specialist”? I’ve lived with CLL for 10 years, doing fine so far with Ibrutinib. I get my CLL checks and care in Spain, from an experienced, knowledgeable and caring hematologist
EJM52545
in
CLL Support
6 years ago
Ibrutinib for a year... then obinutuzumab improves MRD- response rates
Ibrutinib and Obinutuzumab in CLL: Improved MRD Response Rates with Substantially Enhanced MRD Depletion for Patients with >1 Year Prior Ibrutinib Exposure https://ash.confex.com/ash/2018/webprogram/Paper112936.html Conclusions: The results suggest that the addition of obinutuzumab to ibrutinib may
Ibrutinib and Obinutuzumab in CLL: Improved MRD Response Rates with Substantially Enhanced MRD Depletion for Patients with >1 Year Prior Ibrutinib Exposure https://ash.confex.com/ash/2018/webprogram/Paper112936.html Conclusions: The results suggest that the addition of obinutuzumab to ibrutinib may
avzuclav
in
CLL Support
6 years ago
Partner of kidney patient looking for support
My partner was diagnosed with kidney failure in June. He began hemodialysis right away and continues to do it three times per week. In October, he had the abdominal catheter added for home peritoneal dialysis and is currently being trained on how to do it. He will likely begin treatment at home next
My partner was diagnosed with kidney failure in June. He began hemodialysis right away and continues to do it three times per week. In October, he had the abdominal catheter added for home peritoneal dialysis and is currently being trained on how to do it. He will likely begin treatment at home next
somervillesis
in
Kidney Dialysis
6 years ago
To tell or not to tell ...
Hi Serra I am so sorry for you , I understand the feeling of not wanting to share this with your husband. I had the same feeling, when I first heard I had CLL. My wife wasn’t with me when I found out and when I called her after my appointment, I couldn’t pull it off, it just came out. I wasn’t even
Hi Serra I am so sorry for you , I understand the feeling of not wanting to share this with your husband. I had the same feeling, when I first heard I had CLL. My wife wasn’t with me when I found out and when I called her after my appointment, I couldn’t pull it off, it just came out. I wasn’t even
kubie
in
CLL Support
6 years ago
Hot flashes vs b symptom
I am wondering how easy it is for a postmenopausal female to distinguish between hot flashes/night sweats and CLL b symptom night sweats? I had surgical menopause in my late 30’s and at 64 still have a night swat about 1/week. I think it it is of menopausal type, but then got to wondering. I could always
I am wondering how easy it is for a postmenopausal female to distinguish between hot flashes/night sweats and CLL b symptom night sweats? I had surgical menopause in my late 30’s and at 64 still have a night swat about 1/week. I think it it is of menopausal type, but then got to wondering. I could always
CLLmoxie
in
CLL Support
6 years ago
Advice on taking my vit d3 k2 mk7 rather than the calcichew d3 from Gp re osteoporosis
Hi, i wrote on here a week or so back i have osteoporosis im now going to take the once a week tablet aledronate but the d3 calcichew prescibed tablet only contains 400iu taken twice a day.. surely that isnt enough? plus it has sorbital in it i have been taking 3000 iu twice daily with k2 mk7
Hi, i wrote on here a week or so back i have osteoporosis im now going to take the once a week tablet aledronate but the d3 calcichew prescibed tablet only contains 400iu taken twice a day.. surely that isnt enough? plus it has sorbital in it i have been taking 3000 iu twice daily with k2 mk7
Hidden
in
Thyroid UK
6 years ago
Sugar levels very high
FBS : 190, ppbs : 280 Before break fast : 20 units mixtard 30/70, before lunch : volibo 0.3, night : 15 units lantus Why sugar levels high with insulin? My doctor is asking me to consult endocrinologist. Why ?
FBS : 190, ppbs : 280 Before break fast : 20 units mixtard 30/70, before lunch : volibo 0.3, night : 15 units lantus Why sugar levels high with insulin? My doctor is asking me to consult endocrinologist. Why ?
Rgsistla
in
Diabetes India
6 years ago
cll w/ a twist - Stem cell
okay - been awhile - 8 years of cll without any great remission so i went to MSK since i hear good things. right off the bat they did a genetic test and found i have a mutated tp53 gene which basically keeps the medicine from working. I'm on venetoclax w/ rhituxin and have my levels good for first time
okay - been awhile - 8 years of cll without any great remission so i went to MSK since i hear good things. right off the bat they did a genetic test and found i have a mutated tp53 gene which basically keeps the medicine from working. I'm on venetoclax w/ rhituxin and have my levels good for first time
chemosuxs
in
CLL Support
6 years ago
CLL Society Alert - October 23, 2018
http://campaign.r20.constantcontact.com/render?m=1120967015548&ca=27a5c5e8-da36-47c0-8638-d063a29a0bd1 This newsletter is issued by email several times per month listing many upcoming in-person support meetings and educational forums all over the USA & Canada. It's very easy to sign up to get your own
http://campaign.r20.constantcontact.com/render?m=1120967015548&ca=27a5c5e8-da36-47c0-8638-d063a29a0bd1 This newsletter is issued by email several times per month listing many upcoming in-person support meetings and educational forums all over the USA & Canada. It's very easy to sign up to get your own
lankisterguy
Volunteer
in
CLL Support
6 years ago
beginning with Ibrutinib
Next week i will begin with Ibrutinib , as told i am igvh and p53 mutated .RC , platelels are good . Inmunoglobulins down the normal , but no infections. Some large Lynph nodes in my abdomen that may risk organs and higher creatinine and uric acid than normal are the reason to begin treatment. Any advice
Next week i will begin with Ibrutinib , as told i am igvh and p53 mutated .RC , platelels are good . Inmunoglobulins down the normal , but no infections. Some large Lynph nodes in my abdomen that may risk organs and higher creatinine and uric acid than normal are the reason to begin treatment. Any advice
antonb
in
CLL Support
6 years ago
Diet changes
Hi everyone! I'm in the early stages of ckd and right now I'm really trying to wrap my head around what I should be eating to be as nice to my kidneys as possible. For the last year or so I've been under the impression that the most important thing is to stay low in protein and to keep full eat more
Hi everyone! I'm in the early stages of ckd and right now I'm really trying to wrap my head around what I should be eating to be as nice to my kidneys as possible. For the last year or so I've been under the impression that the most important thing is to stay low in protein and to keep full eat more
Fluuux
in
Early CKD Support
6 years ago
Dr. I. Flinn...Recognizing the Side Effects of Newly Approved CLL Therapies
Today we are discussing the management of patients with chronic lymphocytic leukemia (CLL), including incorporating the newest approved therapies for CLL: duvelisib and venetoclax. We are joined by Dr. Ian Flinn, a hematologist/oncologist and the director of the Blood Cancer Research Program at Sarah
Today we are discussing the management of patients with chronic lymphocytic leukemia (CLL), including incorporating the newest approved therapies for CLL: duvelisib and venetoclax. We are joined by Dr. Ian Flinn, a hematologist/oncologist and the director of the Blood Cancer Research Program at Sarah
Cllcanada
Top Poster CURE Hero
in
CLL Support
6 years ago
Rumbles and grumbles
Hi, does anyone else find that the main symptom they suffer from are stomach and bowel rumblings and a sensation like their guts are moving and squirming around? For me it is not painful but often wakes me up at night and the noise can last for hours and hours and occurs most days - over the past 9 months
Hi, does anyone else find that the main symptom they suffer from are stomach and bowel rumblings and a sensation like their guts are moving and squirming around? For me it is not painful but often wakes me up at night and the noise can last for hours and hours and occurs most days - over the past 9 months
Liz1234ty
in
IBS Network
6 years ago
Clinical Trial Ibrutinib Plus Venetoclax Versus Chlorambucil Plus Obinutuzumab Untreated CLL & SLL @EU & UK locations
A Study of the Combination of Ibrutinib Plus Venetoclax Versus Chlorambucil Plus Obinutuzumab for the First-line Treatment of Participants With Chronic Lymphocytic Leukemia (CLL)/Small Lymphocytic Lymphoma (SLL) Phase 3- Radomized Open Label https://clinicaltrials.gov/ct2/show/study/NCT03462719?show_locs
A Study of the Combination of Ibrutinib Plus Venetoclax Versus Chlorambucil Plus Obinutuzumab for the First-line Treatment of Participants With Chronic Lymphocytic Leukemia (CLL)/Small Lymphocytic Lymphoma (SLL) Phase 3- Radomized Open Label https://clinicaltrials.gov/ct2/show/study/NCT03462719?show_locs
lankisterguy
Volunteer
in
CLL Support
6 years ago
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