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Managing Chronic Lymphocytic Leukemia and Its Complications Part I Thursday, November 8, 2018
Dear Friends, CancerCare welcomes you to participate in our upcoming CancerCare Connect® Education Workshop Series, Life with Chronic Lymphocytic Leukemia (CLL), on Thursdays, November 8 and 29. These one-hour telephone and webcast workshops are a cost-free way to learn about cancer-related issues from
Dear Friends, CancerCare welcomes you to participate in our upcoming CancerCare Connect® Education Workshop Series, Life with Chronic Lymphocytic Leukemia (CLL), on Thursdays, November 8 and 29. These one-hour telephone and webcast workshops are a cost-free way to learn about cancer-related issues from
lankisterguy
Volunteer
in
CLL Support
6 years ago
Effects of coenzyme Q10 administration on pulmonary function
(...For any Newbies or Oldies who haven't been turned on to this possibility...) https://www.ncbi.nlm.nih.gov/pubmed/8241703 Effects of coenzyme Q10 administration on pulmonary function and exercise performance in patients with chronic lung diseases. Abstract Serum coenzyme Q10 (CoQ10) levels were measured
(...For any Newbies or Oldies who haven't been turned on to this possibility...) https://www.ncbi.nlm.nih.gov/pubmed/8241703 Effects of coenzyme Q10 administration on pulmonary function and exercise performance in patients with chronic lung diseases. Abstract Serum coenzyme Q10 (CoQ10) levels were measured
Dmactds
in
Lung Conditions Community Forum
6 years ago
Finding out whats wrong with me
Elevated anion Gap, GFR low 56, B12 elevated 1701, hemoglobin high, haematocrit high and MCH High. My doctor doesn't seem to think any of this is abnormal
Elevated anion Gap, GFR low 56, B12 elevated 1701, hemoglobin high, haematocrit high and MCH High. My doctor doesn't seem to think any of this is abnormal
Kat421
in
Early CKD Support
6 years ago
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BTK Inhibitor Success Puts Focus on Resistance Mechanisms
Less than 5 years after Bruton tyrosine kinase (BTK) inhibition was introduced in hematologic malignancies, the need for strategies to address primary and secondary mechanisms of resistance has emerged. The robust potency of ibrutinib (Imbruvica), which, in December 2013, became the first BTK inhibitor
Less than 5 years after Bruton tyrosine kinase (BTK) inhibition was introduced in hematologic malignancies, the need for strategies to address primary and secondary mechanisms of resistance has emerged. The robust potency of ibrutinib (Imbruvica), which, in December 2013, became the first BTK inhibitor
Cllcanada
Top Poster CURE Hero
in
CLL Support
6 years ago
PD Catheter
Hi, EGFR now dropped to 11, and PD catheter being fitted next week, followed by a Fistula soon after. Any advice on coping with Peritoneal Dialysis would be appreciated. Interested in whether I may feel 'healthier', or whether there is no real change.
Hi, EGFR now dropped to 11, and PD catheter being fitted next week, followed by a Fistula soon after. Any advice on coping with Peritoneal Dialysis would be appreciated. Interested in whether I may feel 'healthier', or whether there is no real change.
Christine501
in
PKD Charity for Autosomal Dominant PKD
6 years ago
How two 1990s discoveries have led to (some) cured cancers, and a Nobel Prize
[i]"This year’s award of the Nobel Prize for Physiology and Medicine to James P. Allison and Tasuku Honjo, for their work in the early 1990s on immune checkpoint proteins CTLA4 and PD1, is a fitting recognition of how their work has led to a seismic shift in the way we treat cancer. In a remarkably
[i]"This year’s award of the Nobel Prize for Physiology and Medicine to James P. Allison and Tasuku Honjo, for their work in the early 1990s on immune checkpoint proteins CTLA4 and PD1, is a fitting recognition of how their work has led to a seismic shift in the way we treat cancer. In a remarkably
AussieNeil
Partner
in
CLL Support
6 years ago
What Lipton green tea bags do you folks recommend? None of the boxes define the EGCG amounts.
Hello this is my first post. I signed up yesterday and have been spending a lot of time reading, so much information. My history starts when I was in the hospital for 10 days due to a bad case of Pneumonia (05/2016). I never had an issue with high blood counts or anything. When I was discharged I
Hello this is my first post. I signed up yesterday and have been spending a lot of time reading, so much information. My history starts when I was in the hospital for 10 days due to a bad case of Pneumonia (05/2016). I never had an issue with high blood counts or anything. When I was discharged I
Riven8
in
CLL Support
6 years ago
Duvelisib has marked response, survival benefit in difficult-to-treat leukemia and lymphoma
"The way we treat patients with CLL is changing rapidly as we move from standard chemotherapy-based approaches to more targeted therapies," said principal investigator Ian W. Flinn, MD, Ph.D., Director of the Lymphoma Research Program at Sarah Cannon Research Institute in Nashville. "Based on these data
"The way we treat patients with CLL is changing rapidly as we move from standard chemotherapy-based approaches to more targeted therapies," said principal investigator Ian W. Flinn, MD, Ph.D., Director of the Lymphoma Research Program at Sarah Cannon Research Institute in Nashville. "Based on these data
Cllcanada
Top Poster CURE Hero
in
CLL Support
6 years ago
Good news! LFT
I had my lung function test yesterday. No significant change My condition has not got any worse. Also tested my haemoglobin and it's normal. Would celebrate but all that deep breathing, breath holding and puffing out leaves me wiped out. However I don't care if I'm wrecked for a day or three. I'm
I had my lung function test yesterday. No significant change My condition has not got any worse. Also tested my haemoglobin and it's normal. Would celebrate but all that deep breathing, breath holding and puffing out leaves me wiped out. However I don't care if I'm wrecked for a day or three. I'm
wheezyof
in
Lung Conditions Community Forum
6 years ago
The CLL Tribune
We just posted the 3rd quarter edition of the CLL Tribune (https://cllsociety.org/quarter-3-2018-volume-4-issue-3/) full of articles on MRD negativity, fatigue, IvGH mutation and much more , including articles written by 5 different. patients and caregivers. The CLL Tribune is the place for patients
We just posted the 3rd quarter edition of the CLL Tribune (https://cllsociety.org/quarter-3-2018-volume-4-issue-3/) full of articles on MRD negativity, fatigue, IvGH mutation and much more , including articles written by 5 different. patients and caregivers. The CLL Tribune is the place for patients
bkoffman
CLL CURE Hero
in
CLL Support
6 years ago
Disclosing CKD
Hi everyone, I need some advice. I don’t know if I should disclose my medical condition to my employer. I was recently diagnosed with with CKD. I found out in June I had CKD. I only confided in one colleague. After my biopsy I found out I have Stage IV CKD, just last week. It is caused by IGA Nephropathy
Hi everyone, I need some advice. I don’t know if I should disclose my medical condition to my employer. I was recently diagnosed with with CKD. I found out in June I had CKD. I only confided in one colleague. After my biopsy I found out I have Stage IV CKD, just last week. It is caused by IGA Nephropathy
Socky
in
Early CKD Support
6 years ago
Is a Lymphnode Biopsy needed to diagnose CLL when WBC and ALC are ok? Is Needle Biopsy good enough? Can it be checked in the blood first?
Hello, I am just curious. When I was first diagnosed the Hematologist ordered a surgeon to cut out Nodes from my Neck to have them biopsied. The surgeon pushed for a node removal instead of a needle biopsy. I did not know at the time but it seems like over kill and they were just trying to bill
Hello, I am just curious. When I was first diagnosed the Hematologist ordered a surgeon to cut out Nodes from my Neck to have them biopsied. The surgeon pushed for a node removal instead of a needle biopsy. I did not know at the time but it seems like over kill and they were just trying to bill
Hoffy
in
CLL Support
6 years ago
Kidney Doctor
Can't seem to get an appointment any time soon and I'm worried. What is the kidney doctor "really" going to do? My GP is testing my blood weekly (which I think I might switch to monthly) Had an ultrasound...normal. My BP and sugar is good. Eating much better, exercising. I feel pretty good....a little
Can't seem to get an appointment any time soon and I'm worried. What is the kidney doctor "really" going to do? My GP is testing my blood weekly (which I think I might switch to monthly) Had an ultrasound...normal. My BP and sugar is good. Eating much better, exercising. I feel pretty good....a little
itzmich
in
Early CKD Support
6 years ago
FDA Approves Duvelisib for CLL and Follicular Lymphoma - Sep 24, 2018
FDA Approves Duvelisib for CLL and Follicular Lymphoma Published: Monday, Sep 24, 2018 The FDA has approved duvelisib (Copiktra) for the treatment of patients with relapsed/refractory chronic lymphocytic leukemia/small lymphocytic lymphoma (CLL/SLL) or relapsed/refractory follicular lymphoma. - The
FDA Approves Duvelisib for CLL and Follicular Lymphoma Published: Monday, Sep 24, 2018 The FDA has approved duvelisib (Copiktra) for the treatment of patients with relapsed/refractory chronic lymphocytic leukemia/small lymphocytic lymphoma (CLL/SLL) or relapsed/refractory follicular lymphoma. - The
lankisterguy
Volunteer
in
CLL Support
6 years ago
medical marijuana and COPD
I read an article on line that said medical marijuana reduces inflammation and provides better sleep. I am not to sure whether it was CBD (does not cause a high) or HTC ( causes a high. Does anyone have evidence or have tried it for your COPD?
I read an article on line that said medical marijuana reduces inflammation and provides better sleep. I am not to sure whether it was CBD (does not cause a high) or HTC ( causes a high. Does anyone have evidence or have tried it for your COPD?
macnsyl
in
Lung Conditions Community Forum
6 years ago
bone marrow biopsy
I.m new here 73 men on the 9th year with cll . and started to see some limp nodes in my body doctor wants me to have bone marrow biopsy is anybody knows if its a good idea or anybody done it. thank you for your help good bless.
I.m new here 73 men on the 9th year with cll . and started to see some limp nodes in my body doctor wants me to have bone marrow biopsy is anybody knows if its a good idea or anybody done it. thank you for your help good bless.
wonderfull
in
CLL Support
6 years ago
Endo on bowel/bladder, frozen pelvis, IBS, citalopram?
Hi, I'm so confused! Had a lap last year and they said I have stage 3 endo on bladder/bowel and fused to ovaries etc, although glanced at docs screen yesterday and it said frozen pelvis so there's that.. Long story short I was coping with the symptoms so decided not to go ahead with any surgery, they
Hi, I'm so confused! Had a lap last year and they said I have stage 3 endo on bladder/bowel and fused to ovaries etc, although glanced at docs screen yesterday and it said frozen pelvis so there's that.. Long story short I was coping with the symptoms so decided not to go ahead with any surgery, they
MelonMelon
in
Endometriosis UK
6 years ago
How long does nerve pain last?
I had my right upper lobe removed (vats) 5 months ago and finished chemo in 7 weeks ago. I'm beginning to think the nerve pain will never go away. Tried Gabapentin unsuccessfully and then Lyrica. After about 3 months of Lyrica, which really helped, I had to stop due to side effects. The nerve pain
I had my right upper lobe removed (vats) 5 months ago and finished chemo in 7 weeks ago. I'm beginning to think the nerve pain will never go away. Tried Gabapentin unsuccessfully and then Lyrica. After about 3 months of Lyrica, which really helped, I had to stop due to side effects. The nerve pain
ski4me
in
Lung Cancer Support
6 years ago
Peritoneal Dialysis
My husband and I are training to do PD. He had the permanent catheter implanted and it is working fine. Someone recommended that he should get a fistula in his arm as a backup. Is that usually done?
My husband and I are training to do PD. He had the permanent catheter implanted and it is working fine. Someone recommended that he should get a fistula in his arm as a backup. Is that usually done?
Keen2know
in
Kidney Dialysis
6 years ago
CLL Society Weekly Alert
http://campaign.r20.constantcontact.com/render?m=1120967015548&ca=5ba78127-52a5-4bc2-af6c-33d6c0c6710a - Website The Basics Living Well with CLL - Hello, Friends and Supporters of the CLL Society. Blood Cancer Awareness Month takes place every September. The CLL Society joins 100s of other nonprofits
http://campaign.r20.constantcontact.com/render?m=1120967015548&ca=5ba78127-52a5-4bc2-af6c-33d6c0c6710a - Website The Basics Living Well with CLL - Hello, Friends and Supporters of the CLL Society. Blood Cancer Awareness Month takes place every September. The CLL Society joins 100s of other nonprofits
lankisterguy
Volunteer
in
CLL Support
6 years ago
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