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Doctor mentioned Richters???
I am on the Bruin trial and was randomized to Arm B which is Idelalisib and Rituximab ( 6 months of infusions ). My bloodwork so far has shown slight improvement since the start in January of this year. Now at my last blood work and appointment the doctor has noticed some lymph nodes increasing in size
I am on the Bruin trial and was randomized to Arm B which is Idelalisib and Rituximab ( 6 months of infusions ). My bloodwork so far has shown slight improvement since the start in January of this year. Now at my last blood work and appointment the doctor has noticed some lymph nodes increasing in size
rcusher
in
CLL Support
1 year ago
Venetoclax Consolidation Achieves Durable Off-Treatment Remissions in Patient with High Risk CLL Who Have Been on Ibrutinib More Than a Year
This is something that some of our USA members have discussed with their doctors and it looks like the logic is correct. [i]"Patients (pts) receiving ibrutinib (ibr) for CLL rarely achieve complete remission (CR) with undetectable minimal residual disease (U-MRD). Therefore, indefinite ibr maintenance
This is something that some of our USA members have discussed with their doctors and it looks like the logic is correct. [i]"Patients (pts) receiving ibrutinib (ibr) for CLL rarely achieve complete remission (CR) with undetectable minimal residual disease (U-MRD). Therefore, indefinite ibr maintenance
Jm954
Administrator
in
CLL Support
1 year ago
BTK Degrader Shows Potential for Treating Refractory CLL and SLL
A novel Bruton's tyrosine kinase (BTK) degrader, NX-2127, has shown potential for treating patients with double- and triple-refractory CLL or SLL who have experienced disease progression while on any covalent or non-covalent BTK inhibitor, as well as a BCL2 inhibitor. NX-2127 a BTK degrader has a novel
A novel Bruton's tyrosine kinase (BTK) degrader, NX-2127, has shown potential for treating patients with double- and triple-refractory CLL or SLL who have experienced disease progression while on any covalent or non-covalent BTK inhibitor, as well as a BCL2 inhibitor. NX-2127 a BTK degrader has a novel
Jm954
Administrator
in
CLL Support
1 year ago
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CLL Webinar
Hi all Here is the link for today's CLL webinar. This educational webinar will give an overview of how CLL is treated today and the significance of ’hot topics’ and key treatment development advances published and discussed at 2022 international hematology conferences. What is new and what does this
Hi all Here is the link for today's CLL webinar. This educational webinar will give an overview of how CLL is treated today and the significance of ’hot topics’ and key treatment development advances published and discussed at 2022 international hematology conferences. What is new and what does this
Irishcll
in
CLL Support
1 year ago
Can anyone figure out my MRD
Can anyone figure out what my MRD ( CLL cells per 10,000) is from this report. Component Your Value Standard Range Interpretation Flow cytometric immunophenotyping performed on the peripheral blood shows a small, dim kappa restricted B-cell population (representing ~98% of B cells, 6% of total
Can anyone figure out what my MRD ( CLL cells per 10,000) is from this report. Component Your Value Standard Range Interpretation Flow cytometric immunophenotyping performed on the peripheral blood shows a small, dim kappa restricted B-cell population (representing ~98% of B cells, 6% of total
johnliston
in
CLL Support
1 year ago
CLL Educational Webinar
This educational webinar will give an overview of how CLL is treated today and the significance of ’hot topics’ and key treatment development advances published and discussed at 2022 international hematology conferences. What is new and what does this mean for patients? We will be joined by: Prof Paolo
This educational webinar will give an overview of how CLL is treated today and the significance of ’hot topics’ and key treatment development advances published and discussed at 2022 international hematology conferences. What is new and what does this mean for patients? We will be joined by: Prof Paolo
Irishcll
in
CLL Support
1 year ago
Patient Empowerment Network New CLL Content March 2023
Dr. Michael Choi explains CLL patient trial opportunities and provides key questions to ask about clinical trial participation View Now >> https://powerfulpatients.org/2022/12/07/hesitant-to-participate-in-a-cll-clinical-trial-what-you-should-know/ - Developing CLL Research and Treatment News
Dr. Michael Choi explains CLL patient trial opportunities and provides key questions to ask about clinical trial participation View Now >> https://powerfulpatients.org/2022/12/07/hesitant-to-participate-in-a-cll-clinical-trial-what-you-should-know/ - Developing CLL Research and Treatment News
lankisterguy
Volunteer
in
CLL Support
1 year ago
Relapse/Refractory CLL
Hi All, At my last appointment w/CLL specialist, in December, he noted that my CLL appears to be becoming active again and I'll likely need treatment again this year. :( Instead of the usual 6-months, he set our next appointment for 3-months, which is coming up this week. So, of course, I've been
Hi All, At my last appointment w/CLL specialist, in December, he noted that my CLL appears to be becoming active again and I'll likely need treatment again this year. :( Instead of the usual 6-months, he set our next appointment for 3-months, which is coming up this week. So, of course, I've been
TeamDirtyBoots
in
CLL Support
1 year ago
Thyroid dysfunction and its role in renal problems
This interesting paper links renal problems to thyroid dysfunction. -->
Thyroid Dysfunction and Renal Function: A Crucial Relationship to Recognize
February 2023
Cureus 15(2):e35242 DOI: 10.7759/cureus.35242
Rania Naguib, Eman Elkemary
[b
This interesting paper links renal problems to thyroid dysfunction. -->
Thyroid Dysfunction and Renal Function: A Crucial Relationship to Recognize
February 2023
Cureus 15(2):e35242 DOI: 10.7759/cureus.35242
Rania Naguib, Eman Elkemary
[b
diogenes
in
Thyroid UK
1 year ago
School experiences of teenagers living with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Another interesting dissertation: Lewis, M. L. (2022). A narrative inquiry into the school experiences of teenagers living with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)(Doctoral dissertation, University of Bristol). https://research-information.bris.ac.uk/ws/portalfiles/portal/
Another interesting dissertation: Lewis, M. L. (2022). A narrative inquiry into the school experiences of teenagers living with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)(Doctoral dissertation, University of Bristol). https://research-information.bris.ac.uk/ws/portalfiles/portal/
theia
in
Myalgic Encephalomyelitis Community
1 year ago
CAR-T availability in Australia
can anyone enlighten me on the current status of CAR-T availability for CLL patients in Australia? I’m aware it wasn’t available for CLL after a small trial a couple of years ago but is being used for other types of Blood Cancers. Thank you :)
can anyone enlighten me on the current status of CAR-T availability for CLL patients in Australia? I’m aware it wasn’t available for CLL after a small trial a couple of years ago but is being used for other types of Blood Cancers. Thank you :)
Billarina
in
CLL Support
1 year ago
teeth whitening
good morning everyone I don’t know if anyone on here has had any experience with tooth whitening products, only I’ve seen an advert for a tooth whitening powder which I’m very tempted to try, especially as it’s dentist approved and is peroxide-free. I’m just wondering about the Alendronic Acid I’m
good morning everyone I don’t know if anyone on here has had any experience with tooth whitening products, only I’ve seen an advert for a tooth whitening powder which I’m very tempted to try, especially as it’s dentist approved and is peroxide-free. I’m just wondering about the Alendronic Acid I’m
Doraflora
in
PMRGCAuk
1 year ago
Overwhelming Fatigue
I ama 62 year old female. I have been on hemodialysis then peritoneal dialysis and back to hemodialysis over the past five years. I felt great for the two years on peritoneal. Was able to work and go about my daily routine. The peritoneal stopped working and I have been back on hemodialysis for about
I ama 62 year old female. I have been on hemodialysis then peritoneal dialysis and back to hemodialysis over the past five years. I felt great for the two years on peritoneal. Was able to work and go about my daily routine. The peritoneal stopped working and I have been back on hemodialysis for about
Frankie24
in
Kidney Dialysis
1 year ago
Research Evaluating Risk of Richter Syndrome
Apologies if this has been posted before, do feel free to delete and re-direct me if so. It is of particular interest to me because my recent experience suggests that the NHS does not test for complex karyotype CLL (using Chromosome Banding Analysis). I know only that I had an aggressive presentation
Apologies if this has been posted before, do feel free to delete and re-direct me if so. It is of particular interest to me because my recent experience suggests that the NHS does not test for complex karyotype CLL (using Chromosome Banding Analysis). I know only that I had an aggressive presentation
jonathan7176
in
CLL Support
1 year ago
Night shift work
Hello. I work evenings on a hospital nursing unit. I am scheduled to work one night every two weeks. I will remain on evenings and do this cross shift in order to cover the short staff on nights. I am on watch and wait, have stage two CLL with enlarged spleen and a large number of B-cell Lymphomas
Hello. I work evenings on a hospital nursing unit. I am scheduled to work one night every two weeks. I will remain on evenings and do this cross shift in order to cover the short staff on nights. I am on watch and wait, have stage two CLL with enlarged spleen and a large number of B-cell Lymphomas
Taza1
in
CLL Support
1 year ago
Home dialysis will soon be possible for more kidney patients
Just in time for World Kidney Day, March 9, Israeli company gets FDA nod for game-changing home digital dialysis system. Healthy kidneys automatically filter waste from the blood 24/7. But for millions of people with advanced kidney disease – including about 570,000 Americans — that essential task is
Just in time for World Kidney Day, March 9, Israeli company gets FDA nod for game-changing home digital dialysis system. Healthy kidneys automatically filter waste from the blood 24/7. But for millions of people with advanced kidney disease – including about 570,000 Americans — that essential task is
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
1 year ago
Fascinating: Development of Venetoclax
For a few years, I've taken a breather from HU while focusing on full life rather than my CLL. I'm stepping up to post a new podcast from Dana Farber Hospital, which I found fascinating. Particularly for those on Venetoclax, or considering the drug, I couldn't resist sharing it. The Season 2 Trailer
For a few years, I've taken a breather from HU while focusing on full life rather than my CLL. I'm stepping up to post a new podcast from Dana Farber Hospital, which I found fascinating. Particularly for those on Venetoclax, or considering the drug, I couldn't resist sharing it. The Season 2 Trailer
starsafta
in
CLL Support
1 year ago
Genomic testing and clinical decision making in CLL from the (European) ERIC 2022 Meeting
Genomic testing and clinical decision making in CLL- These videos are from European CLL experts intended for medical professionals and presented at or connected with the ERIC 2022 Meeting- using Med-Speak. https://www.vjhemonc.com/feature/the-importance-of-genomic-testing-in-cll/ Advances
Genomic testing and clinical decision making in CLL- These videos are from European CLL experts intended for medical professionals and presented at or connected with the ERIC 2022 Meeting- using Med-Speak. https://www.vjhemonc.com/feature/the-importance-of-genomic-testing-in-cll/ Advances
lankisterguy
Volunteer
in
CLL Support
1 year ago
my stomach in spasm since last week loose bowel movements stomach pain leg pain headache. I have a lot of meds buscopan, colofac colpermin?
can someone advise ? Should I stop dairy & alcohol - not easy at Christmas
can someone advise ? Should I stop dairy & alcohol - not easy at Christmas
Portugal64
in
IBS Network
2 years ago
Results on triple combination (A+V+O) for high risk patients -with-chronic-lymphocytic-leukemia-or-small-lymphocytic-lymphoma-cll
The Bottom Line: In this ongoing trial, the triple combination therapy using acalabrutinib, venetoclax, and obinutuzumab is highly active. Thus far this drug combination has produced durable remissions as a frontline treatment in patients with TP53 mutation CLL and has been generally well tolerated,
The Bottom Line: In this ongoing trial, the triple combination therapy using acalabrutinib, venetoclax, and obinutuzumab is highly active. Thus far this drug combination has produced durable remissions as a frontline treatment in patients with TP53 mutation CLL and has been generally well tolerated,
spi3
in
CLL Support
1 year ago
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