My partner was diagnosed with kidney failure in June. He began hemodialysis right away and continues to do it three times per week. In October, he had the abdominal catheter added for home peritoneal dialysis and is currently being trained on how to do it. He will likely begin treatment at home next week.
I am trying to prepare for the logistical changes necessary (i.e. making space for supplies and machine), but I am feeling unprepared for how it may change our lifestyle/relationship. I would love to hear from people doing home PD and/or their partners about their experience. Some questions on my mind include:
For PD patients - When do you set up your supplies for the night? How long does it take? Do you walk around attached to the machine? How is your energy & mobility impacted?
For both patient and partner - How is sleeping through the PD cycler noise? How much space do you need for supplies? Did you need things that are not supplied for you (i.e. catheter belt, cart for machine)? Has home PD impacted your intimacy?
For partner of home PD patient: Are there ways to help your partner be more comfortable? How do you emotionally support your partner? How do you take care of yourself (to avoid caretaker burnout)?
Thank you in advance for your insights and advice!