Search
Search
About
Log in
Join
Experiences with
Colonic polyps
Posts
Communities
2,351 public posts
Filter results
ASH 2018: Professor Peter Hillmen on the Combination of Ibrutinib and Obinutuzumab in CLL: Timing Matters
Today we start with an important abstract from the United Kingdom that may have significant immediate and future treatment implications. - Professor Peter Hillmen .... has chaired the chronic lymphocytic leukaemia (CLL) trials sub-group of the National Cancer Research Institute (NCRI) in the UK since
Today we start with an important abstract from the United Kingdom that may have significant immediate and future treatment implications. - Professor Peter Hillmen .... has chaired the chronic lymphocytic leukaemia (CLL) trials sub-group of the National Cancer Research Institute (NCRI) in the UK since
lankisterguy
Volunteer
in
CLL Support
6 years ago
What is the relevance of "Atypical Lymphocyte count"
The US Veterans Administration has recently added the parameter called "atypical lymphocyte count" to my periodic CBC blood test. I have CLL currently on a w & w protocol. My last blood test reported a WBC of 17,310/uL and my absolute lymphocyte count was 6,060/uL and my " lymphocyte count plus
The US Veterans Administration has recently added the parameter called "atypical lymphocyte count" to my periodic CBC blood test. I have CLL currently on a w & w protocol. My last blood test reported a WBC of 17,310/uL and my absolute lymphocyte count was 6,060/uL and my " lymphocyte count plus
markjeep51
in
CLL Support
6 years ago
“Closing One Door, Opening Another” by Dr. Brian Koffman from CLL Society
Dear Friends and Supporters of the CLL Society, This week Dr. Koffman shares a huge change in his life as he retires from family medicine to devote himself full time to the CLL community. Below is his touching letter he posted on his CLLSociety blog: Today was a monumental day for me. A huge transition
Dear Friends and Supporters of the CLL Society, This week Dr. Koffman shares a huge change in his life as he retires from family medicine to devote himself full time to the CLL community. Below is his touching letter he posted on his CLLSociety blog: Today was a monumental day for me. A huge transition
Anastasia1
in
CLL Support
6 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
CLL
Diagnosed On Dec 11 2017 , I go every 3 months for blood work,My WBC is always out of range 16.7 asof latest one, and my lymphocytes are always out of range as well 11.2 latest one, I have smudge cells present , Today was first time my MCH was low , now outrageously low but low. It scared me , I know
Diagnosed On Dec 11 2017 , I go every 3 months for blood work,My WBC is always out of range 16.7 asof latest one, and my lymphocytes are always out of range as well 11.2 latest one, I have smudge cells present , Today was first time my MCH was low , now outrageously low but low. It scared me , I know
Shellcanada71
in
CLL Support
6 years ago
CLL Society Alert -USA Patient Support Groups & Educational Meetings - Free 2nd Opinions by Video conference & Financial Assistance
See http://campaign.r20.constantcontact.com/render?m=1120967015548&ca=b6383392-2aad-42b8-b327-03126332eac0 for a more readable image with active links. Dear Friends and Supporters of the CLL Society, This week Dr. Koffman shares a huge change in his life as he retires from family medicine to devote
See http://campaign.r20.constantcontact.com/render?m=1120967015548&ca=b6383392-2aad-42b8-b327-03126332eac0 for a more readable image with active links. Dear Friends and Supporters of the CLL Society, This week Dr. Koffman shares a huge change in his life as he retires from family medicine to devote
lankisterguy
Volunteer
in
CLL Support
6 years ago
Tick vaccination
Hello After Venetoclax and Obinutuzumab I am mrd- both in PB and marrow. I would like to get vaccination against ticks (TBE). Has anybody experience if it will work in CLL patients. Many thanks Reinhard
Hello After Venetoclax and Obinutuzumab I am mrd- both in PB and marrow. I would like to get vaccination against ticks (TBE). Has anybody experience if it will work in CLL patients. Many thanks Reinhard
Reinhard
in
CLL Support
6 years ago
Steroid pump for secondary adrenal insufficiency with traumatic brain injury
Hi. I’m new on this site but I wanted to share my AI stories, answer some questions and hopefully find some more resources to help us with this challenging condition. I’m reading that a lot of people on this site seem to be taking their steroids orally. I too was started on oral medication, dexamethasone
Hi. I’m new on this site but I wanted to share my AI stories, answer some questions and hopefully find some more resources to help us with this challenging condition. I’m reading that a lot of people on this site seem to be taking their steroids orally. I too was started on oral medication, dexamethasone
Poodlepost
in
Thyroid UK
6 years ago
Chemo-Free Treatment Best Option for CLL Patients Under 70
There is good news in the advancement of chemo-free approaches to managing chronic lymphocytic leukemia, and I am thrilled to share it with you. Results of the phase III ECOG trial found that the combination of ibrutinib (Imbruvica) plus rituximab (Rituxan) came out superior to the chemotherapy and
There is good news in the advancement of chemo-free approaches to managing chronic lymphocytic leukemia, and I am thrilled to share it with you. Results of the phase III ECOG trial found that the combination of ibrutinib (Imbruvica) plus rituximab (Rituxan) came out superior to the chemotherapy and
GlennSabin
in
CLL Support
6 years ago
CLL Education Program w Adrien Wiestner in Baltimore
I was reading my Sunday newspaper this morning and saw an add from the Leukemia & Lymphoma Society. Adrian Wiestner, MD, PhD who is the senior investigator at the National Institute of Health along with Susan Soto, research nurse will be presenting an Education Program on CLL in Pikesville which is in
I was reading my Sunday newspaper this morning and saw an add from the Leukemia & Lymphoma Society. Adrian Wiestner, MD, PhD who is the senior investigator at the National Institute of Health along with Susan Soto, research nurse will be presenting an Education Program on CLL in Pikesville which is in
PSP52
in
CLL Support
6 years ago
Prednisolone
Is anyone taking this medication continuously , they only give it to me for 5 days at a time , I think it helps , But when I,m off it I get worse again , I have mild to moderate copd. They changed my inhaler too today from ventolin to Atrovent and I take Anoro in the morning , Is Anoro any better
Is anyone taking this medication continuously , they only give it to me for 5 days at a time , I think it helps , But when I,m off it I get worse again , I have mild to moderate copd. They changed my inhaler too today from ventolin to Atrovent and I take Anoro in the morning , Is Anoro any better
Elpojohn
in
Lung Conditions Community Forum
6 years ago
FYI/Trial data to be discussed this weekend
In CLL, there are multiple trials of interest being presented with the potential to have an impact on practice, including the phase III Alliance North American Intergroup Study A041202 exploring ibrutinib alone or in combination with rituximab vs standard chemoimmunotherapy with bendamustine plus rituximab
In CLL, there are multiple trials of interest being presented with the potential to have an impact on practice, including the phase III Alliance North American Intergroup Study A041202 exploring ibrutinib alone or in combination with rituximab vs standard chemoimmunotherapy with bendamustine plus rituximab
Newchallnge
in
CLL Support
6 years ago
ASH 2018 and More
Hi, This is the most exciting, hectic and rewarding time of the year for the CLL Society, as we are soon headed to ASH 2018 in San Diego to bring back the information that will make you a smarter patient. Every year we are filled with amazement and gratitude for the unstoppable energy expended by clinical
Hi, This is the most exciting, hectic and rewarding time of the year for the CLL Society, as we are soon headed to ASH 2018 in San Diego to bring back the information that will make you a smarter patient. Every year we are filled with amazement and gratitude for the unstoppable energy expended by clinical
bkoffman
CLL CURE Hero
in
CLL Support
6 years ago
Watch & Wait -- Online Webinar Nov 28, 2018 - Patient Power - Dr. Philip Thompson & Dr. Jackie Broadway-Duren
Register now- https://www.patientpower.info/nov28#register Many CLL patients wonder: “What is watch and wait? Why am I not being treated immediately after my diagnosis?” On November 28 at 1 PM CT (2 PM ET, 11 AM PT), join Patient Power and CLL Global Research Foundation for a one-hour webinar, “Understanding
Register now- https://www.patientpower.info/nov28#register Many CLL patients wonder: “What is watch and wait? Why am I not being treated immediately after my diagnosis?” On November 28 at 1 PM CT (2 PM ET, 11 AM PT), join Patient Power and CLL Global Research Foundation for a one-hour webinar, “Understanding
lankisterguy
Volunteer
in
CLL Support
6 years ago
SUGER level
I am currently taking Amaryl 3mg ,Galvus 50 and enforce for SUGER and BP control also taking 10unit insulin in night but i am not happy with reports . Some body may help me.
I am currently taking Amaryl 3mg ,Galvus 50 and enforce for SUGER and BP control also taking 10unit insulin in night but i am not happy with reports . Some body may help me.
Vighnesh1
in
Diabetes India
6 years ago
CLL and CFS
I was diagnosed with CLL just over a year ago about a month after another episode of CFS (Chronic Fatigue Syndrome) started. I went on holiday to France and spent two weeks lying on a bed and had to get a wheelchair to get to the plane for my flight home. A year later I started to improve and now, two
I was diagnosed with CLL just over a year ago about a month after another episode of CFS (Chronic Fatigue Syndrome) started. I went on holiday to France and spent two weeks lying on a bed and had to get a wheelchair to get to the plane for my flight home. A year later I started to improve and now, two
shornoff
in
CLL Support
6 years ago
2 weeks post Lap - return to work
Morning All, I am due back to work tomorrow and am debating whether to go or not. I had my 3rd lap on 12th October and they ended up doing a polypectomy, cystoscopy, hysteroscopy. I has stage 3 endo rediagnosed so to speak and also pelvic congestion. Since August I have had severe chest pain every time
Morning All, I am due back to work tomorrow and am debating whether to go or not. I had my 3rd lap on 12th October and they ended up doing a polypectomy, cystoscopy, hysteroscopy. I has stage 3 endo rediagnosed so to speak and also pelvic congestion. Since August I have had severe chest pain every time
Endoangel83
in
Endometriosis UK
6 years ago
Breaking news form ASH conference: looks like Ibrutinib May be better than FCR for some patients
#ASH18 #LBA | A Randomized Phase III Study of Ibrutinib (PCI-32765)-Based Therapy Vs. Standard Fludarabine, Cyclophosphamide, and Rituximab (FCR) Chemoimmunotherapy in Untreated Younger Patients with Chronic Lymphocytic Leukemia (CLL) | #leusm ash.confex.com/ash/2018/webpr…
#ASH18 #LBA | A Randomized Phase III Study of Ibrutinib (PCI-32765)-Based Therapy Vs. Standard Fludarabine, Cyclophosphamide, and Rituximab (FCR) Chemoimmunotherapy in Untreated Younger Patients with Chronic Lymphocytic Leukemia (CLL) | #leusm ash.confex.com/ash/2018/webpr…
Newchallnge
in
CLL Support
6 years ago
And back to plan B?
After deciding on Saturday that I would do my polypectomy in Greece rather than on the NHS, I have just received a reply from my clinic stating they can do the operation only on weekdays, not on Saturday, which is what they originally told me. This means I can't do it after all, not until March or April
After deciding on Saturday that I would do my polypectomy in Greece rather than on the NHS, I have just received a reply from my clinic stating they can do the operation only on weekdays, not on Saturday, which is what they originally told me. This means I can't do it after all, not until March or April
Tomorrow_1
in
Fertility Network UK
6 years ago
Tisomy 12
Dx 203 CLL in Feb 2013,male, living in India, watch and wait till last week. I am Ighv mutated and no Zap 70 and CD 38. My Fish test revealed no genetic deletion Like 17p, 13q, 11q. Due to gradual fall of Hb to 8 and lymphocytes around 100k, I was advised B R chemo immunotherapy and stated on November
Dx 203 CLL in Feb 2013,male, living in India, watch and wait till last week. I am Ighv mutated and no Zap 70 and CD 38. My Fish test revealed no genetic deletion Like 17p, 13q, 11q. Due to gradual fall of Hb to 8 and lymphocytes around 100k, I was advised B R chemo immunotherapy and stated on November
venk_46
in
CLL Support
6 years ago
Wife just diagnosed with CLL too!
I was diagnosed in 2006 and have been in clinical trial since 2016. My wife was just diagnosed. All sorts of questions: could it be an environmental exposure we shared at some point (married over 49 years)? Some sort of virus that predisposed us? Coincidence? Should our grown children worry? Other
I was diagnosed in 2006 and have been in clinical trial since 2016. My wife was just diagnosed. All sorts of questions: could it be an environmental exposure we shared at some point (married over 49 years)? Some sort of virus that predisposed us? Coincidence? Should our grown children worry? Other
Walt424
in
CLL Support
6 years ago
1
...
51
52
53
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
CLL Support
1441 results
Lung Conditions Community Forum
217 results
Diabetes India
81 results
View top 10 communities
Sort by
Most Relevant
Newest