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Chorionic villus sampling (CVS)
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update: Zanabrutinib vs Obenven (O&V)
We are praying for Gods wisdom (James1:5), and we’re leaning toward the Zanabrutinib. The infusions and time and distance will be impactful to my husbands work and he’s prefer to go the simpler route. We learned he’s still 13Q and TP53 negative and his lymph nodes are reduced (we have used ALT for
We are praying for Gods wisdom (James1:5), and we’re leaning toward the Zanabrutinib. The infusions and time and distance will be impactful to my husbands work and he’s prefer to go the simpler route. We learned he’s still 13Q and TP53 negative and his lymph nodes are reduced (we have used ALT for
Cb1391
in
CLL Support
7 months ago
Mumps contact 😷
Hi Peeps 🙂 I hope this post finds you as well as can be 🫠 I am writing to ask about contact with mumps. I have RA and my main meds are Tocilizumab (injection), Methotrexate (injection) and Sulphasalazine. Do I have to be particularly careful that I do not come in contact with a child who possibly has
Hi Peeps 🙂 I hope this post finds you as well as can be 🫠 I am writing to ask about contact with mumps. I have RA and my main meds are Tocilizumab (injection), Methotrexate (injection) and Sulphasalazine. Do I have to be particularly careful that I do not come in contact with a child who possibly has
Moomin8
in
NRAS
6 months ago
B LARGE CELL DIFFUSE LYMPHOMA AFTER 5 YEAR OF POST KIDNEY TRANSPLANT
I got my kidney transplant in dec 2018 now In nov 2024 suffered from NON hodgkin lymphoma now only on tacrolimus 5mg daily .Any advice regarding this then plz
I got my kidney transplant in dec 2018 now In nov 2024 suffered from NON hodgkin lymphoma now only on tacrolimus 5mg daily .Any advice regarding this then plz
bal_123
in
Kidney Transplant Patient Support
3 months ago
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CLL leukemia
What does it mean when your white blood count increases from 27 to 30.6 10^9/L 4.0-10.0 10^9/L
What does it mean when your white blood count increases from 27 to 30.6 10^9/L 4.0-10.0 10^9/L
Bobby13
in
CLL Support
7 months ago
low hcg levels @ 4 weeks
Hello all, I got my BFP yesterday at 4 weeks (9dp5dt) and when I called my nurse to let her know she offered a blood test for the same day. I got the result this morning and my hcg is only 20. She also measured my progesterone. The day before transfer it was 182, yesterday it was 44.5. I am already
Hello all, I got my BFP yesterday at 4 weeks (9dp5dt) and when I called my nurse to let her know she offered a blood test for the same day. I got the result this morning and my hcg is only 20. She also measured my progesterone. The day before transfer it was 182, yesterday it was 44.5. I am already
Bee_86
in
Fertility Network UK
7 months ago
bleeding :-( freaking out
I recently had a BFP with strong hcg numbers. I am 5+3 today and felt a funny feeling, like a bit of stomach ache but as if I’ve eaten something funny, not pain as such. I went to the toilet to find red blood 😞 Sorry for TMI but it was a quite a bit when I wiped and now a few drops on my pad. I have
I recently had a BFP with strong hcg numbers. I am 5+3 today and felt a funny feeling, like a bit of stomach ache but as if I’ve eaten something funny, not pain as such. I went to the toilet to find red blood 😞 Sorry for TMI but it was a quite a bit when I wiped and now a few drops on my pad. I have
Whatever098
in
Fertility Network UK
7 months ago
FDA Investigating 'Serious Risk' of Malignancy After CAR-T Therapy - Applies to all approved therapies, but benefits still outweigh risks
From MedPage Today, by Charles Bankhead, Senior Editor, MedPage Today November 28, 2023, Last Updated November 29, 2023. Posted FYI without comment: [i]
FDA Investigating 'Serious Risk' of Malignancy After CAR-T Therapy - Applies to all approved therapies, but benefits still outweigh risks, agency
From MedPage Today, by Charles Bankhead, Senior Editor, MedPage Today November 28, 2023, Last Updated November 29, 2023. Posted FYI without comment: [i]
FDA Investigating 'Serious Risk' of Malignancy After CAR-T Therapy - Applies to all approved therapies, but benefits still outweigh risks, agency
cujoe
in
CLL Support
7 months ago
My Ckd journey
Hi my name is Dineshwaran.i was diagnosed with kidney failure in year 2003 when I was 19.was on dialysis for two years and did transplant on 2005. Donated by my cousin.it was a perfect match until 2017 where my sugar level was very high. Was on all type of medication and insulin but didn't came down
Hi my name is Dineshwaran.i was diagnosed with kidney failure in year 2003 when I was 19.was on dialysis for two years and did transplant on 2005. Donated by my cousin.it was a perfect match until 2017 where my sugar level was very high. Was on all type of medication and insulin but didn't came down
Dineshwaran
in
Kidney Dialysis
4 months ago
internal shingles
hi, I’ve been diagnosed with internal shingles and it’s the most painful thing I have ever experienced. I’m on my last day of Aciclovir, I’m taking paracetamol and codeine during the day and 3 amitriptyline at night, this has been going on for over a week. Is this normal? Any advice gladly accepted
hi, I’ve been diagnosed with internal shingles and it’s the most painful thing I have ever experienced. I’m on my last day of Aciclovir, I’m taking paracetamol and codeine during the day and 3 amitriptyline at night, this has been going on for over a week. Is this normal? Any advice gladly accepted
Mongoose123
in
PMRGCAuk
6 months ago
6 weeks 6 days scan - sac but no yolk or fetal pole
I know this is bad news. I have a intact sac measuring 16.9mm (6 weeks), but no yolk or fetal pole. I feel nauseous from the HCG from the sac. I have to repeat the scan in 1 week to confirm the pregnancy isn't viable. I know this is bad news, but I can't give up hope until I have to. Hoping for a
I know this is bad news. I have a intact sac measuring 16.9mm (6 weeks), but no yolk or fetal pole. I feel nauseous from the HCG from the sac. I have to repeat the scan in 1 week to confirm the pregnancy isn't viable. I know this is bad news, but I can't give up hope until I have to. Hoping for a
Orangeflowers
in
Fertility Network UK
7 months ago
Rollercoaster update
ladies, just about to dash into a meeting but I need someone to disect this and explain in a language I can understand. As of Friday Baby Leo1980 was a slow grow only HCG 124 From the 107 it was when I got my positive. Dr called at 4pm as I was tarting for a Christmas party and burst my bubble on
ladies, just about to dash into a meeting but I need someone to disect this and explain in a language I can understand. As of Friday Baby Leo1980 was a slow grow only HCG 124 From the 107 it was when I got my positive. Dr called at 4pm as I was tarting for a Christmas party and burst my bubble on
leo1980
in
Fertility Network UK
7 months ago
Beta Hell
Hoping someone can give me some hope. I experienced a small bleed at 16dp5dt therefore went in for my first beta at 17dp5dt. (My clinic didn't offer betas originally). At 17dpt my HCG level was 8159. At 19dpt my HCG was 12,176 and at 21dpt my HCG was17,131 (today). My clinic are concerned as my HCG is
Hoping someone can give me some hope. I experienced a small bleed at 16dp5dt therefore went in for my first beta at 17dp5dt. (My clinic didn't offer betas originally). At 17dpt my HCG level was 8159. At 19dpt my HCG was 12,176 and at 21dpt my HCG was17,131 (today). My clinic are concerned as my HCG is
Charlygee
in
Fertility Network UK
7 months ago
looking for a neurologist
Can anyone recommend a neurologist knowledgeable in RLS in the Bristol/ Bath (England) area ? I currently have a neurologist whom I rate quite highly but who cannot prescribe opioids as they are not on the formulary of the hospital where she practises. She has however asked my GP to prescribe Oxycodone
Can anyone recommend a neurologist knowledgeable in RLS in the Bristol/ Bath (England) area ? I currently have a neurologist whom I rate quite highly but who cannot prescribe opioids as they are not on the formulary of the hospital where she practises. She has however asked my GP to prescribe Oxycodone
etchea33
in
Restless Legs Syndrome
4 months ago
CLL and now very elevated Monocytes
I am under treatment for CLL using Venetoclax. It has been going well and my lymphocytes are controlled with a minimal dosage of Venetoclax of 50 mg.I just had labs yesterday and in 3 weeks my monocytes shot p from 5% to 15% and absolute count from. 08 to over 1000. I am so concerned I am developing
I am under treatment for CLL using Venetoclax. It has been going well and my lymphocytes are controlled with a minimal dosage of Venetoclax of 50 mg.I just had labs yesterday and in 3 weeks my monocytes shot p from 5% to 15% and absolute count from. 08 to over 1000. I am so concerned I am developing
ralphfelo
in
CLL Support
7 months ago
dengue fever vaccinate or not?
I started off on 15mg Pred in October and am now down to 10mg. I am off to India (Rajasthan) in February and dengue fever vaccine has been suggested. As it is a live vaccine I am not sure whether having the vaccine is worth the risk of contracting dengue. Any advice? Also big thanks to the community
I started off on 15mg Pred in October and am now down to 10mg. I am off to India (Rajasthan) in February and dengue fever vaccine has been suggested. As it is a live vaccine I am not sure whether having the vaccine is worth the risk of contracting dengue. Any advice? Also big thanks to the community
Hb22
in
PMRGCAuk
6 months ago
PMR and brachial neuritis
It looks like I have developed a fairly rare condition called Parsonage-Turner syndrome (PTS), also called brachial neuritis. It started with terrible pain in the shoulder, so initially I thought it would appear in the other shoulder and be the beginning of a PMR relapse. But it is taking a different
It looks like I have developed a fairly rare condition called Parsonage-Turner syndrome (PTS), also called brachial neuritis. It started with terrible pain in the shoulder, so initially I thought it would appear in the other shoulder and be the beginning of a PMR relapse. But it is taking a different
dmart7
in
PMRGCAuk
4 months ago
Cold virus
I’ve had PMR for two years now and on 8mg pred attempting my second tapering cycle. I’ve have a really heavy cold now for over a week which started as a mild cold for two weeks before that. I’m wondering if my immune system is reducing my ability to get on top of this and allowing it to prevail much
I’ve had PMR for two years now and on 8mg pred attempting my second tapering cycle. I’ve have a really heavy cold now for over a week which started as a mild cold for two weeks before that. I’m wondering if my immune system is reducing my ability to get on top of this and allowing it to prevail much
Mervetheswerve
in
PMRGCAuk
6 months ago
12dp6dt and BFN, is this over?
I'm 12dp6dt today. I had almost no symptoms up to this morning when I woke up to cramps like my usual periods. The blood on the pad/bowl looks like the kind of bleeding I get on Day 1 of period. Took a home pregnancy test and there wasn't even a faint line. From your experience, does this sound like
I'm 12dp6dt today. I had almost no symptoms up to this morning when I woke up to cramps like my usual periods. The blood on the pad/bowl looks like the kind of bleeding I get on Day 1 of period. Took a home pregnancy test and there wasn't even a faint line. From your experience, does this sound like
konyaga
in
Fertility Network UK
7 months ago
BFP - I don’t believe it.
All, Today is OTD. Not my first had several (6/7 transfers including doubles over the years). As I left, I stopped by the reception and booked in my follow up as I was already the answer and I was expecting this cycle to be exactly like all the others. I was uber organised. Took my sharps bin
All, Today is OTD. Not my first had several (6/7 transfers including doubles over the years). As I left, I stopped by the reception and booked in my follow up as I was already the answer and I was expecting this cycle to be exactly like all the others. I was uber organised. Took my sharps bin
leo1980
in
Fertility Network UK
7 months ago
Shingles injection
Hi iam on peggasy and have p v having shingles jab soon any problems with this thank you
Hi iam on peggasy and have p v having shingles jab soon any problems with this thank you
baggies
in
MPN Voice
7 months ago
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