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Chorionic villus sampling (CVS)
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NO CD20? How concerned to be?
Hi all! Went in with a recently diagnosed loved one to an oncology appointment recently. I don’t have FISH back yet, but I found out (at least preliminary) flow showed CD20 negative. Doctor Google sent me into a panic stating this was very not great news for NH lymphoma patients. But then it also said
Hi all! Went in with a recently diagnosed loved one to an oncology appointment recently. I don’t have FISH back yet, but I found out (at least preliminary) flow showed CD20 negative. Doctor Google sent me into a panic stating this was very not great news for NH lymphoma patients. But then it also said
anongirll1927
in
CLL Support
14 days ago
Following LeoPa's “On CLL, diet and possible connections.”
I am also curious about the preferred energy source of CLL cells. Particularly the cholesterol role. If the CLL cells use cholesterol do they use whatever is present, or is there a signaling going on telling/initiating production—that causes cholesterol to rise? Below are a few articles I found on
I am also curious about the preferred energy source of CLL cells. Particularly the cholesterol role. If the CLL cells use cholesterol do they use whatever is present, or is there a signaling going on telling/initiating production—that causes cholesterol to rise? Below are a few articles I found on
Lavinia-Blue
in
CLL Support
15 days ago
Hot Sauna for CLL Patients
I am diagnosed with CLL since 2021 and curregtiy on W&W with relatively stable WBC. I have hot sauna in my building gym. Is it beneficial for me to do hot sauna once a week or can sauna trigger CLL to activate into a fast progression? Thank you
I am diagnosed with CLL since 2021 and curregtiy on W&W with relatively stable WBC. I have hot sauna in my building gym. Is it beneficial for me to do hot sauna once a week or can sauna trigger CLL to activate into a fast progression? Thank you
Lovely67
in
CLL Support
25 days ago
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Allograft
Just wanted to know if anyone knew anything about Allograft. My husband has just finished 2 yrs on ventaclax, all blood's good, and we expected to just go away and go back for blood's until maybe time for a different treatment, but was told they would like us to have a chat to a specialist about allograft
Just wanted to know if anyone knew anything about Allograft. My husband has just finished 2 yrs on ventaclax, all blood's good, and we expected to just go away and go back for blood's until maybe time for a different treatment, but was told they would like us to have a chat to a specialist about allograft
sue6741
in
CLL Support
29 days ago
Median PFS for FCR treated CLL patients with IGHV-M was 14.6 years vs 4.2 years for patients with IGHV-UM. V+O and I+R look to be superior
An update of the long-term follow-up results from the original 300-patient FCR (fludarabine, cyclophosphamide, and rituximab) study initiated at MD Anderson in 1999,
Sustained remissions in CLL after frontline FCR treatment with very-long-term follow-up,
reports ~47% of patients with mutated IGHV
An update of the long-term follow-up results from the original 300-patient FCR (fludarabine, cyclophosphamide, and rituximab) study initiated at MD Anderson in 1999,
Sustained remissions in CLL after frontline FCR treatment with very-long-term follow-up,
reports ~47% of patients with mutated IGHV
AussieNeil
Partner
in
CLL Support
1 month ago
Not officially diagnosed...in watch and wait
As the title says, I'm in the WW stage. I saw a hematologist 5 years ago about my lymphocytosis and he felt he could not give a definitive diagnosis. In March this year, I had some stomach issues and bloodwork (above). A peripheral blood smear was done. Below are the notes: There is mild leukocytosis
As the title says, I'm in the WW stage. I saw a hematologist 5 years ago about my lymphocytosis and he felt he could not give a definitive diagnosis. In March this year, I had some stomach issues and bloodwork (above). A peripheral blood smear was done. Below are the notes: There is mild leukocytosis
Purplecat1919
in
CLL Support
2 months ago
root canals
hi all , I have been on the W and W program. My blood dis-order was discovered in 2019. I referred to it as a blood disorder as they still haven’t taken a bone marrow sample to confirm that it’s truly CLL. I am curious if anyone in the group has tried removing any old root canals to see if it
hi all , I have been on the W and W program. My blood dis-order was discovered in 2019. I referred to it as a blood disorder as they still haven’t taken a bone marrow sample to confirm that it’s truly CLL. I am curious if anyone in the group has tried removing any old root canals to see if it
Jrugg
in
CLL Support
2 months ago
Puzzled
Hi folks! Hope we're all travelling well. Can I tap into your collective wisdom and experience? I've just come back from my regular check up with the CLL specialist. My ALC has gone from 29 to 53 in 6 months, or 91% of the blood count. Before then, it was steadily rising, but dropping at intervals. The
Hi folks! Hope we're all travelling well. Can I tap into your collective wisdom and experience? I've just come back from my regular check up with the CLL specialist. My ALC has gone from 29 to 53 in 6 months, or 91% of the blood count. Before then, it was steadily rising, but dropping at intervals. The
Guffy
in
CLL Support
2 months ago
Re-inoculate?
Hello you wonderful and oh-so-knowledgeable folks! This is a good-news story. After 11 months on a zanu-obin-venetoclax trial I've been in remission for 3 years. AND a lymphocyte subset test suggests that my B cells are coming back! Now here's my question: while I was on treatment and in the past
Hello you wonderful and oh-so-knowledgeable folks! This is a good-news story. After 11 months on a zanu-obin-venetoclax trial I've been in remission for 3 years. AND a lymphocyte subset test suggests that my B cells are coming back! Now here's my question: while I was on treatment and in the past
mouseandchair
in
CLL Support
2 months ago
CLL/CML treatment update
Hi All, Thank you for your passed and continuing help and support. Been taking dasatsnib since 2018 or 2019; with 1 incidence of Pleural effusion/thoracenticis, etc., in 2021. —that’s when I switched to Dr Cortes. zwent from 100mg to 20. For last 2-3 years. Dx’d in 2014. I have CLL and CML simultaneously
Hi All, Thank you for your passed and continuing help and support. Been taking dasatsnib since 2018 or 2019; with 1 incidence of Pleural effusion/thoracenticis, etc., in 2021. —that’s when I switched to Dr Cortes. zwent from 100mg to 20. For last 2-3 years. Dx’d in 2014. I have CLL and CML simultaneously
tedrog
in
CLL Support
2 months ago
Importance of CLL Specialist
This excellent study was just published. Why should you get a CLL specialist? My community oncologist gave me a fish and a flow test and told me that I wouldn’t need treatment for 3-5 years. He didn’t test for IGVH and didn’t know that there is a specific TP53 test. My CLL specialist tested for 500 mutations
This excellent study was just published. Why should you get a CLL specialist? My community oncologist gave me a fish and a flow test and told me that I wouldn’t need treatment for 3-5 years. He didn’t test for IGVH and didn’t know that there is a specific TP53 test. My CLL specialist tested for 500 mutations
PennyLane2024
in
CLL Support
2 months ago
Complete Remission
My Complete Blood Count (CBC) results state the normal range for Lymphocytes is 850-3900 cells/uL. The NCCN CLL guidelines for Complete Remission (CR) states Lymphocytes must be less than 5000 cells/uL. Why is 5000 cells/uL an acceptable NCCN CLL CR level for Lymphocytes when the maximum for the Complete
My Complete Blood Count (CBC) results state the normal range for Lymphocytes is 850-3900 cells/uL. The NCCN CLL guidelines for Complete Remission (CR) states Lymphocytes must be less than 5000 cells/uL. Why is 5000 cells/uL an acceptable NCCN CLL CR level for Lymphocytes when the maximum for the Complete
leftysfsl1945
in
CLL Support
2 months ago
Just 5% of therapies tested in animals end up as as human drugs, new study shows. CLL research has particular challenges due to the TME
There's a long and challenging journey from microscope observations of cancer cells hopefully dying while exposed to candidate therapies, that is, 'in vitro' testing, to successful in vivo human studies, clinical trials and eventual approval. Not only does the therapy need to kill the cancer cells with
There's a long and challenging journey from microscope observations of cancer cells hopefully dying while exposed to candidate therapies, that is, 'in vitro' testing, to successful in vivo human studies, clinical trials and eventual approval. Not only does the therapy need to kill the cancer cells with
AussieNeil
Partner
in
CLL Support
2 months ago
When do you know if it's a chemical or not? Mild OHSS, drinking loads of water and faint positives....?
Hello all, Hope you are as well as can be for you 🙏 I have been testing positive since 6dp5dt, now 12dp5dt, still only getting weak positives though unless I have concentrated urine. I'm very very pleased but also worried. I drink alot of water as standard at least 3 litres a day. But having to drink
Hello all, Hope you are as well as can be for you 🙏 I have been testing positive since 6dp5dt, now 12dp5dt, still only getting weak positives though unless I have concentrated urine. I'm very very pleased but also worried. I drink alot of water as standard at least 3 litres a day. But having to drink
Lelo3479
in
Fertility Network UK
6 hours ago
Digital test accuracy
*TW - BFP* I've been fortunate to finally get a BFP on my third FET 🥰 I had my transfer of two 5 day blasts on 30th July. I've done a digital test today which is already saying I'm 3+ weeks even though my transfer was only 18 days ago. Would it technically be 18 days plus the 5 days it took the embryo
*TW - BFP* I've been fortunate to finally get a BFP on my third FET 🥰 I had my transfer of two 5 day blasts on 30th July. I've done a digital test today which is already saying I'm 3+ weeks even though my transfer was only 18 days ago. Would it technically be 18 days plus the 5 days it took the embryo
Connie290
in
Fertility Network UK
11 hours ago
Trigger injection & Timed Intercourse!!
Hi, I just attempted another ivf cycle, didn’t respond well follicle wise do we decided to cancel continuing to egg collection. Will try again next month. Because we’d been stimulating for 10 days I took the trigger injection to try timed sexual intercourse …. It’s been 36 hours now but no LH surge
Hi, I just attempted another ivf cycle, didn’t respond well follicle wise do we decided to cancel continuing to egg collection. Will try again next month. Because we’d been stimulating for 10 days I took the trigger injection to try timed sexual intercourse …. It’s been 36 hours now but no LH surge
Rol81
in
Fertility Network UK
1 day ago
HCG not doubling
Hi!I've had FET of two blastocycts on 25th of July. My betas are: 13dp5dt - 885 15dp5dt -1770 18dp5dt - 2738 I'm so worried about last one, that's around 33% increase, which even if we take those numbers slow down a bit after 1200, still runs really slow. I've had two spontaneous ectopics and this
Hi!I've had FET of two blastocycts on 25th of July. My betas are: 13dp5dt - 885 15dp5dt -1770 18dp5dt - 2738 I'm so worried about last one, that's around 33% increase, which even if we take those numbers slow down a bit after 1200, still runs really slow. I've had two spontaneous ectopics and this
Hotwheelsmama
in
Fertility Network UK
5 days ago
*sensitive* Negative scan at 6 weeks+5 after intermittent bleeding and pain - nothing to see on scan - any positive stories please🙏🙏
Hello ladies, I hope you are all doing the best you can be on this difficult journey. I am 6 weeks + 4 days pregnant (I thought) after a 5 day double transfer. My HCG was positive and I have had lots of positive pregnancy tests too. I have had intermittent bleeding and pain and today I finally had
Hello ladies, I hope you are all doing the best you can be on this difficult journey. I am 6 weeks + 4 days pregnant (I thought) after a 5 day double transfer. My HCG was positive and I have had lots of positive pregnancy tests too. I have had intermittent bleeding and pain and today I finally had
Chinese13
in
Fertility Network UK
9 days ago
Early scan - Looking for some reassurance / advice please 😔
Hi lovely ladies I've had my bloods done 2 days ago which showed that hcg was above 15k. We never made it this far so I'm a bit hopeful. Because of my history of losses I was given an early scan today. According to my dates I'm 6 weeks 2 days but my scan showed that I'm only 5 and 1/2 weeks pregnant.
Hi lovely ladies I've had my bloods done 2 days ago which showed that hcg was above 15k. We never made it this far so I'm a bit hopeful. Because of my history of losses I was given an early scan today. According to my dates I'm 6 weeks 2 days but my scan showed that I'm only 5 and 1/2 weeks pregnant.
Xoya
in
Fertility Network UK - Pregnancy Support
10 days ago
HCG level not doubling
Hi, I am currently 5 weeks 3 days.My first HCG jul 26 was 143 Jul 29 523 Jul 31 1115 Aug 2 3078 Aug 6 8795 this has slowed right down. Has anyone had a similar decrease in rate of HCG rise and had a good outcome. I am terrified. I have my scan aug 15th. Looking for your experience with similar. Thank
Hi, I am currently 5 weeks 3 days.My first HCG jul 26 was 143 Jul 29 523 Jul 31 1115 Aug 2 3078 Aug 6 8795 this has slowed right down. Has anyone had a similar decrease in rate of HCG rise and had a good outcome. I am terrified. I have my scan aug 15th. Looking for your experience with similar. Thank
Moseymo17
in
Fertility Network UK
10 days ago
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