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Median PFS for FCR treated CLL patients with IGHV-M was 14.6 years vs 4.2 years for patients with IGHV-UM. V+O and I+R look to be superior
An update of the long-term follow-up results from the original 300-patient FCR (fludarabine, cyclophosphamide, and rituximab) study initiated at MD Anderson in 1999,
Sustained remissions in CLL after frontline FCR treatment with very-long-term follow-up,
reports ~47% of patients with mutated IGHV
An update of the long-term follow-up results from the original 300-patient FCR (fludarabine, cyclophosphamide, and rituximab) study initiated at MD Anderson in 1999,
Sustained remissions in CLL after frontline FCR treatment with very-long-term follow-up,
reports ~47% of patients with mutated IGHV
AussieNeil
Partner
in
CLL Support
7 days ago
Not officially diagnosed...in watch and wait
As the title says, I'm in the WW stage. I saw a hematologist 5 years ago about my lymphocytosis and he felt he could not give a definitive diagnosis. In March this year, I had some stomach issues and bloodwork (above). A peripheral blood smear was done. Below are the notes: There is mild leukocytosis
As the title says, I'm in the WW stage. I saw a hematologist 5 years ago about my lymphocytosis and he felt he could not give a definitive diagnosis. In March this year, I had some stomach issues and bloodwork (above). A peripheral blood smear was done. Below are the notes: There is mild leukocytosis
Purplecat1919
in
CLL Support
15 days ago
root canals
hi all , I have been on the W and W program. My blood dis-order was discovered in 2019. I referred to it as a blood disorder as they still haven’t taken a bone marrow sample to confirm that it’s truly CLL. I am curious if anyone in the group has tried removing any old root canals to see if it
hi all , I have been on the W and W program. My blood dis-order was discovered in 2019. I referred to it as a blood disorder as they still haven’t taken a bone marrow sample to confirm that it’s truly CLL. I am curious if anyone in the group has tried removing any old root canals to see if it
Jrugg
in
CLL Support
20 days ago
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Puzzled
Hi folks! Hope we're all travelling well. Can I tap into your collective wisdom and experience? I've just come back from my regular check up with the CLL specialist. My ALC has gone from 29 to 53 in 6 months, or 91% of the blood count. Before then, it was steadily rising, but dropping at intervals. The
Hi folks! Hope we're all travelling well. Can I tap into your collective wisdom and experience? I've just come back from my regular check up with the CLL specialist. My ALC has gone from 29 to 53 in 6 months, or 91% of the blood count. Before then, it was steadily rising, but dropping at intervals. The
Guffy
in
CLL Support
22 days ago
Re-inoculate?
Hello you wonderful and oh-so-knowledgeable folks! This is a good-news story. After 11 months on a zanu-obin-venetoclax trial I've been in remission for 3 years. AND a lymphocyte subset test suggests that my B cells are coming back! Now here's my question: while I was on treatment and in the past
Hello you wonderful and oh-so-knowledgeable folks! This is a good-news story. After 11 months on a zanu-obin-venetoclax trial I've been in remission for 3 years. AND a lymphocyte subset test suggests that my B cells are coming back! Now here's my question: while I was on treatment and in the past
mouseandchair
in
CLL Support
26 days ago
CLL/CML treatment update
Hi All, Thank you for your passed and continuing help and support. Been taking dasatsnib since 2018 or 2019; with 1 incidence of Pleural effusion/thoracenticis, etc., in 2021. —that’s when I switched to Dr Cortes. zwent from 100mg to 20. For last 2-3 years. Dx’d in 2014. I have CLL and CML simultaneously
Hi All, Thank you for your passed and continuing help and support. Been taking dasatsnib since 2018 or 2019; with 1 incidence of Pleural effusion/thoracenticis, etc., in 2021. —that’s when I switched to Dr Cortes. zwent from 100mg to 20. For last 2-3 years. Dx’d in 2014. I have CLL and CML simultaneously
tedrog
in
CLL Support
26 days ago
Importance of CLL Specialist
This excellent study was just published. Why should you get a CLL specialist? My community oncologist gave me a fish and a flow test and told me that I wouldn’t need treatment for 3-5 years. He didn’t test for IGVH and didn’t know that there is a specific TP53 test. My CLL specialist tested for 500 mutations
This excellent study was just published. Why should you get a CLL specialist? My community oncologist gave me a fish and a flow test and told me that I wouldn’t need treatment for 3-5 years. He didn’t test for IGVH and didn’t know that there is a specific TP53 test. My CLL specialist tested for 500 mutations
PennyLane2024
in
CLL Support
28 days ago
Complete Remission
My Complete Blood Count (CBC) results state the normal range for Lymphocytes is 850-3900 cells/uL. The NCCN CLL guidelines for Complete Remission (CR) states Lymphocytes must be less than 5000 cells/uL. Why is 5000 cells/uL an acceptable NCCN CLL CR level for Lymphocytes when the maximum for the Complete
My Complete Blood Count (CBC) results state the normal range for Lymphocytes is 850-3900 cells/uL. The NCCN CLL guidelines for Complete Remission (CR) states Lymphocytes must be less than 5000 cells/uL. Why is 5000 cells/uL an acceptable NCCN CLL CR level for Lymphocytes when the maximum for the Complete
leftysfsl1945
in
CLL Support
29 days ago
Just 5% of therapies tested in animals end up as as human drugs, new study shows. CLL research has particular challenges due to the TME
There's a long and challenging journey from microscope observations of cancer cells hopefully dying while exposed to candidate therapies, that is, 'in vitro' testing, to successful in vivo human studies, clinical trials and eventual approval. Not only does the therapy need to kill the cancer cells with
There's a long and challenging journey from microscope observations of cancer cells hopefully dying while exposed to candidate therapies, that is, 'in vitro' testing, to successful in vivo human studies, clinical trials and eventual approval. Not only does the therapy need to kill the cancer cells with
AussieNeil
Partner
in
CLL Support
1 month ago
Leukemia-associated macrophages, their role in the CLL Tumor Micro-environment and how they affect progression and therapy response
Understanding how the CLL Tumor Micro-environment (TME) functions is crucial to improving CLL therapy. CLL cells are not as robust as healthy B cells and they rely on their created TME in the nodes and bone marrow for their survival. That's why it's so easy to kill CLL cells with in vitro testing - checking
Understanding how the CLL Tumor Micro-environment (TME) functions is crucial to improving CLL therapy. CLL cells are not as robust as healthy B cells and they rely on their created TME in the nodes and bone marrow for their survival. That's why it's so easy to kill CLL cells with in vitro testing - checking
AussieNeil
Partner
in
CLL Support
1 month ago
lymphocytic leucocytosis
I have CLL diagnosed a year ago, just had my bloods done last week, the results have come back with lymphocytic leucocytosis does anyone know if this is a bad thing not heard if this before. Donnax
I have CLL diagnosed a year ago, just had my bloods done last week, the results have come back with lymphocytic leucocytosis does anyone know if this is a bad thing not heard if this before. Donnax
PusscatsGoodies
in
CLL Support
1 month ago
New DX
I am a 76 yo woman. I was DX in 2016 and was in a trial at MD Anderson from 2017-2019. I achieved UMRD at the end of the trial of Ibrutinib and Venetoclax. I remained in total remission until my first visit after my husband died from Alzheimer’s in Oct 2021. Since then it’s been downhill. Dr Wierda
I am a 76 yo woman. I was DX in 2016 and was in a trial at MD Anderson from 2017-2019. I achieved UMRD at the end of the trial of Ibrutinib and Venetoclax. I remained in total remission until my first visit after my husband died from Alzheimer’s in Oct 2021. Since then it’s been downhill. Dr Wierda
pkpayne
in
CLL Support
2 months ago
A recent consultation with a CLL specialist, and confirmation of genetic markers
My wife had an appointment with CLL specialist Dr. C. Chen yesterday. We also performed other blood tests. I had a pleasant consultation with Dr. Chen. I was perplexed because of the TP53 mutation, whether it was discovered or not. I posted an earlier post that she has a TP53 mutation. I am sorry for
My wife had an appointment with CLL specialist Dr. C. Chen yesterday. We also performed other blood tests. I had a pleasant consultation with Dr. Chen. I was perplexed because of the TP53 mutation, whether it was discovered or not. I posted an earlier post that she has a TP53 mutation. I am sorry for
Sagarcanada
in
CLL Support
2 months ago
Xpo1 significance
Not been active for a while as my wife is on watch and wait since initially being diagnosed two years ago at 41.Eric blood panels have come back with Xpo1 mutation which we are told significantly increases the chances of needing treatment. Going through the details we got but there seems to be a trial
Not been active for a while as my wife is on watch and wait since initially being diagnosed two years ago at 41.Eric blood panels have come back with Xpo1 mutation which we are told significantly increases the chances of needing treatment. Going through the details we got but there seems to be a trial
NewCll
in
CLL Support
2 months ago
Sensitive- line progression- worried 😟
I’m feeling so worried now that I don’t think my line is getting darker :( Just seems like it’s been the same for the past three days. All test taken in the morning between 4am- 7am. I have my first HCG blood test on Thursday but really got this gut feeling this may end up another biochemical. Surely
I’m feeling so worried now that I don’t think my line is getting darker :( Just seems like it’s been the same for the past three days. All test taken in the morning between 4am- 7am. I have my first HCG blood test on Thursday but really got this gut feeling this may end up another biochemical. Surely
JB124
in
Fertility Network UK
2 days ago
6 weeks no symptoms, absolutely terrified 🤯🤞🏼😭🙏🏼
Hi everyone. Been awake since 630am again with worry, I need your sensible heads! 🚨🆘️⚠️ Long long story short I'm 6 weeks pregnant today (supposedly 🤯) and I feel no symptoms at all and haven't the entire time. The only thing is mild-ish but noticeable period type cramping (had a couple of more intense
Hi everyone. Been awake since 630am again with worry, I need your sensible heads! 🚨🆘️⚠️ Long long story short I'm 6 weeks pregnant today (supposedly 🤯) and I feel no symptoms at all and haven't the entire time. The only thing is mild-ish but noticeable period type cramping (had a couple of more intense
Joeysjourney
in
Fertility Network UK - Pregnancy Support
4 days ago
Low HCG after FET
I had a fresh egg transfer of an early blastocyst and had my blood test yesterday. Results today show a low Hcg level of 13 (day 28 of my cycle). Is it likely going to result in a bio chemical pregnancy/miscarriage? This is my third transfer and my first transfer resulted in a bio chemical
I had a fresh egg transfer of an early blastocyst and had my blood test yesterday. Results today show a low Hcg level of 13 (day 28 of my cycle). Is it likely going to result in a bio chemical pregnancy/miscarriage? This is my third transfer and my first transfer resulted in a bio chemical
Alexie07
in
Fertility Network UK
5 days ago
bright red blood 5 weeks IVF pregnancy
I am 5weeks pregnant today after a successful FET, yesterday night I noticed bright red blood in my pantliner, it was not a lot and after I peed and wiped I saw a very tiny clot. The rest of the night till this morning there has been no further bleeding, I’m really anxious as my first FET was positive
I am 5weeks pregnant today after a successful FET, yesterday night I noticed bright red blood in my pantliner, it was not a lot and after I peed and wiped I saw a very tiny clot. The rest of the night till this morning there has been no further bleeding, I’m really anxious as my first FET was positive
TTCBabyA
in
Fertility Network UK
6 days ago
*sensitive* -BFP- worried if line is dark enough..
Hi all, it’s me again. I’m 9dp5dt (fresh double embryo) OTD tomorrow but tested a day early. This would be my 7th transfer, I’m worried my line may not be dark enough. Is the line dark enough or has anyone had anything similar… I had a biochemical on my last transfer, but line was slightly lighter on
Hi all, it’s me again. I’m 9dp5dt (fresh double embryo) OTD tomorrow but tested a day early. This would be my 7th transfer, I’m worried my line may not be dark enough. Is the line dark enough or has anyone had anything similar… I had a biochemical on my last transfer, but line was slightly lighter on
JB124
in
Fertility Network UK
8 days ago
Advice Please - trigger or BFP
Hi Ladies Just wondering what you think Transfer was 6 days ago I was given 80 IU of HCG and if I’ve worked it out correct that should have left my system or at least be at extremely low levels This was not fmu Any advice would be appreciated 🙏
Hi Ladies Just wondering what you think Transfer was 6 days ago I was given 80 IU of HCG and if I’ve worked it out correct that should have left my system or at least be at extremely low levels This was not fmu Any advice would be appreciated 🙏
Beclp
in
Fertility Network UK
10 days ago
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