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Chorionic villus sampling (CVS)
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Going for first scan today at 6 weeks, not optimistic
This all feels a little cruel to me since my HCG seems to have plateaued around just 300, so I can't possibly expect to be able to see anything today. But the HCG is not going down, so we have to see what is happening. I had both Fallopian tubes removed due to hydrosalpinx but apparently they can't rule
This all feels a little cruel to me since my HCG seems to have plateaued around just 300, so I can't possibly expect to be able to see anything today. But the HCG is not going down, so we have to see what is happening. I had both Fallopian tubes removed due to hydrosalpinx but apparently they can't rule
LuxFleur
in
Fertility Network UK
3 years ago
HCG stalled around 300, slowly rising
Has anyone had this happen? My doctor is not letting me stop the medications yet. He says he is "not optimistic but we have to wait and see." I had both my tubes removed but he said we still cannot rule out an ectopic pregnancy. I am shocked that I am still being treated as if there is a miniscule chance
Has anyone had this happen? My doctor is not letting me stop the medications yet. He says he is "not optimistic but we have to wait and see." I had both my tubes removed but he said we still cannot rule out an ectopic pregnancy. I am shocked that I am still being treated as if there is a miniscule chance
LuxFleur
in
Fertility Network UK
3 years ago
Low progesterone
So I got my BFP from an NHS FET on Sunday woohoo! I am on oestrogen (elleste) and progesterone (utrogestan 200mg x3 a day) with them. I have also been having my immune system treated with a private clinic. The day of my transfer the private clinic tested my progesterone and said it was low adding 1 Lubion
So I got my BFP from an NHS FET on Sunday woohoo! I am on oestrogen (elleste) and progesterone (utrogestan 200mg x3 a day) with them. I have also been having my immune system treated with a private clinic. The day of my transfer the private clinic tested my progesterone and said it was low adding 1 Lubion
GJW2018
in
Fertility Network UK
3 years ago
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Hcg not rising enough
I am feeling quite shattered. I got my bfp on 26/7 with hcg of 217. Got repeat bloods one week later. Hcg 930. Nurse says they are very concerned as the rate of rise is not enough. So to hope for the best but plan for the worst. I have repeat bloods on Thursday morning. This was our last chance with
I am feeling quite shattered. I got my bfp on 26/7 with hcg of 217. Got repeat bloods one week later. Hcg 930. Nurse says they are very concerned as the rate of rise is not enough. So to hope for the best but plan for the worst. I have repeat bloods on Thursday morning. This was our last chance with
Eggbabe
in
Fertility Network UK
3 years ago
Two IVF cycles, two miscarriages—is this good or bad?
So it seems that I am most likely on my way to having my second miscarriage. I got a BFP this week but it does not look good. I've now had two ICSI cycles, both of which resulted in two embryos each. Two transfers per cycle, the second of which resulted in a pregnancy both times. Our first pregnancy
So it seems that I am most likely on my way to having my second miscarriage. I got a BFP this week but it does not look good. I've now had two ICSI cycles, both of which resulted in two embryos each. Two transfers per cycle, the second of which resulted in a pregnancy both times. Our first pregnancy
LuxFleur
in
Fertility Network UK
3 years ago
5 weeks nothing seen on ultrasound
Did IVF and had an ultrasound yesterday with no gestational sac I was exactly 5 weeks yesterday upon scan. Hcg numbers still tripling. First hcg on 7/24- 85 2nd on 7/27- 245 3rd yesterday 7/30- 860 They are saying now that there is a possibility of ectopic pregnancy or maybe too early to scan. Has anyone
Did IVF and had an ultrasound yesterday with no gestational sac I was exactly 5 weeks yesterday upon scan. Hcg numbers still tripling. First hcg on 7/24- 85 2nd on 7/27- 245 3rd yesterday 7/30- 860 They are saying now that there is a possibility of ectopic pregnancy or maybe too early to scan. Has anyone
Raeyamom
in
Fertility Network UK
3 years ago
HCG is not climbing fast enough, only 296 18dp5dt
This is a really hard process. Our doctor was concerned that our HCG was climbing too slowly and that seems to be correct. Here are our numbers: 12dp5dt: 76 14dp5dt: 139 16dp5dt: 227 18dp5dt: 296 I want to ask if there is any hope but it seems like there isn't. EDIT: Since it seems like I will be losing
This is a really hard process. Our doctor was concerned that our HCG was climbing too slowly and that seems to be correct. Here are our numbers: 12dp5dt: 76 14dp5dt: 139 16dp5dt: 227 18dp5dt: 296 I want to ask if there is any hope but it seems like there isn't. EDIT: Since it seems like I will be losing
LuxFleur
in
Fertility Network UK
3 years ago
Anyone here carry to term with own eggs 42+?
I am just feeling worried that this is impossible. I'm 42 and 5w2d, with low and slow HCG. Had a loss in the spring. I'm just feeling like all the over 41 successes I see on here are with DE. Please share if you've had a live birth with own eggs over age 41, thank you xoxo
I am just feeling worried that this is impossible. I'm 42 and 5w2d, with low and slow HCG. Had a loss in the spring. I'm just feeling like all the over 41 successes I see on here are with DE. Please share if you've had a live birth with own eggs over age 41, thank you xoxo
LuxFleur
in
Fertility Network UK
3 years ago
A CLL Patient Story Sprinkled with Shakespeare!
A Patient Story Sprinkled with Shakespeare! Doreen Zetterlund, an actress, long-time CLL patient advocate, and member of a CLL Society Support Group, inspires us with her strategy to frontload her CLL knowledge to be certain that she will be well informed as to her best possible care, regardless of how
A Patient Story Sprinkled with Shakespeare! Doreen Zetterlund, an actress, long-time CLL patient advocate, and member of a CLL Society Support Group, inspires us with her strategy to frontload her CLL knowledge to be certain that she will be well informed as to her best possible care, regardless of how
bkoffman
CLL CURE Hero
in
CLL Support
3 years ago
3rd HCG test, from 139 to 227, worried!!!!!!
Hello, I tested my HCG again today for a third time, on 16dp5dt, and got 227. Has anyone else had a number this low at around this time and ended up with a viable pregnancy? I'm concerned that the rate of growth is slowing. Our first test was 76, then 139, and now 227. Our clinic is NOT replying to us
Hello, I tested my HCG again today for a third time, on 16dp5dt, and got 227. Has anyone else had a number this low at around this time and ended up with a viable pregnancy? I'm concerned that the rate of growth is slowing. Our first test was 76, then 139, and now 227. Our clinic is NOT replying to us
LuxFleur
in
Fertility Network UK
3 years ago
*** Sensitive *** Worried I didn’t have the beta test
Hi All, today I’m 16dp5dt, 5AA blast, fresh cycle, I think my lines are strong but I’m obsessing over not getting the beta test done as I’m now panicking my hcg might not be high enough. Friday was OTD and I got 1-2 weeks on a digital, Monday I got 2-3 wks on a digital. Today I did a FRER and cheapie
Hi All, today I’m 16dp5dt, 5AA blast, fresh cycle, I think my lines are strong but I’m obsessing over not getting the beta test done as I’m now panicking my hcg might not be high enough. Friday was OTD and I got 1-2 weeks on a digital, Monday I got 2-3 wks on a digital. Today I did a FRER and cheapie
Hidden
in
Fertility Network UK
3 years ago
Trying to be in the moment for once
So I am pregnant, and just found out yesterday. Tomorrow we'll go for our third HCG test to see if it has come close to doubling again and if things look viable. I am so keenly aware that this could be taken away from us at any moment, so I'm really just trying to be present for it now. I am pregnant
So I am pregnant, and just found out yesterday. Tomorrow we'll go for our third HCG test to see if it has come close to doubling again and if things look viable. I am so keenly aware that this could be taken away from us at any moment, so I'm really just trying to be present for it now. I am pregnant
LuxFleur
in
Fertility Network UK
3 years ago
Treatment and ocular lymphocytic leukemia
My diagnosis in 2017Trisomy12 unmutated 500000 wbc 397 absolute lymphocite Count 6.1 hemoglobin I joined a threefold trial Ibrutinib, Obinutuzumab and Venetoclax. When I had uveitis on both eyes I felt it was temporarily but treatment was necessary. I didnt know then that there is ocular CLL and that
My diagnosis in 2017Trisomy12 unmutated 500000 wbc 397 absolute lymphocite Count 6.1 hemoglobin I joined a threefold trial Ibrutinib, Obinutuzumab and Venetoclax. When I had uveitis on both eyes I felt it was temporarily but treatment was necessary. I didnt know then that there is ocular CLL and that
mickimauser11
in
CLL Support
3 years ago
So confused and losing confidence in my body
I’ve been testing since 9dp5dt, my OTD was Sunday 25th (11dp5dt) and I’ve had a faint positives on each day on a frer test. Called the clinic and scan booked for 17th Aug, but also told to retest as an option. This morning (13dp5dt) I tested using a clear blue digital, and it came up as ‘not pregnant
I’ve been testing since 9dp5dt, my OTD was Sunday 25th (11dp5dt) and I’ve had a faint positives on each day on a frer test. Called the clinic and scan booked for 17th Aug, but also told to retest as an option. This morning (13dp5dt) I tested using a clear blue digital, and it came up as ‘not pregnant
Becatoms
in
Fertility Network UK
3 years ago
2nd HCG results back: from 76 to 139, is this enough??????
Hello, and thank you to the people who have been supportive on here. I am currently 14dp5dt. FET. Age 42. I had my first beta test on Saturday at 12dp5dt and the results (which only arrived today due to the weekend) was 76. Then today, two days later, at the same time in the morning, it was 139. It
Hello, and thank you to the people who have been supportive on here. I am currently 14dp5dt. FET. Age 42. I had my first beta test on Saturday at 12dp5dt and the results (which only arrived today due to the weekend) was 76. Then today, two days later, at the same time in the morning, it was 139. It
LuxFleur
in
Fertility Network UK
3 years ago
*Sensitive* BFP???? Positive but low HCG
Hello. So I finally got my results back after having my HCG test on 12dp5dt, and it is positive, but only 76. Does this mean I am having a chemical? Has anyone gotten this low a number and gone on to have a successful pregnancy? I am going to get another test now. Thanks xo
Hello. So I finally got my results back after having my HCG test on 12dp5dt, and it is positive, but only 76. Does this mean I am having a chemical? Has anyone gotten this low a number and gone on to have a successful pregnancy? I am going to get another test now. Thanks xo
LuxFleur
in
Fertility Network UK
3 years ago
Looking for alternatives with BTK C481 resistant CLL
Looking for alternatives. I have had 3 prior treatments from FCR to other chemo to Veneclax and Imbrutnib which was working great until my counts went up again. Turns out I have developed a BTK mutation. Been seeking out trials and wanted to try loxo-305 (Pirtobrutinib) but it was all filled up and they
Looking for alternatives. I have had 3 prior treatments from FCR to other chemo to Veneclax and Imbrutnib which was working great until my counts went up again. Turns out I have developed a BTK mutation. Been seeking out trials and wanted to try loxo-305 (Pirtobrutinib) but it was all filled up and they
micg
in
CLL Support
3 years ago
Results are still not ready!!!
I went for my HCG test yesterday at 12dp5dt. But the results never came in yesterday. There's a website where you have to log in to see the results, and it just says the file is still waiting to be updated. So I don't know if I have to wait until tomorrow, since its Sunday, or what.
I went for my HCG test yesterday at 12dp5dt. But the results never came in yesterday. There's a website where you have to log in to see the results, and it just says the file is still waiting to be updated. So I don't know if I have to wait until tomorrow, since its Sunday, or what.
LuxFleur
in
Fertility Network UK
3 years ago
HCG injections after embryo transfer
Hi Ladies Has anyone used HCG injections after a transfer and had success? This is my first time trying this so just looking for others experiences. Thanks so much 💕
Hi Ladies Has anyone used HCG injections after a transfer and had success? This is my first time trying this so just looking for others experiences. Thanks so much 💕
Beclp
in
Fertility Network UK
3 years ago
The Leukemia & Lymphoma Society’s National Patient Registry COVID-19 vaccination antibody results - published today (Greenberg et al)
As a valued member of The Leukemia & Lymphoma Society’s National Patient Registry, a project of the Michael J. Garil Patient Data Collective, we wanted you to be among the first to know about COVID-19 vaccination antibody results we published today (Greenberg et al., 2021). https://i7.t.hubspotemail.net
As a valued member of The Leukemia & Lymphoma Society’s National Patient Registry, a project of the Michael J. Garil Patient Data Collective, we wanted you to be among the first to know about COVID-19 vaccination antibody results we published today (Greenberg et al., 2021). https://i7.t.hubspotemail.net
lankisterguy
Volunteer
in
CLL Support
3 years ago
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