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Chorionic villus sampling (CVS)
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Shingles jab
Hi everyone, just had second shingles vaccine and suddenly thought should I stop taking methotrexate this week also on sulfasalazine as is recommended after covid jab, I didn't stop taking meds after the first shingles jab,it just didn't even enter my head, think I'm losing it 😅 wishing you all as much
Hi everyone, just had second shingles vaccine and suddenly thought should I stop taking methotrexate this week also on sulfasalazine as is recommended after covid jab, I didn't stop taking meds after the first shingles jab,it just didn't even enter my head, think I'm losing it 😅 wishing you all as much
Jeremycfc
in
NRAS
5 months ago
New to the group. Should I worry concerning my latest blood results?
New to the group. First post even if I regularly read what is posted. Dx in March 2023. But CLL for at least 2 years. Unmutated, triso 12 and q (14,19). On W&W. 53 years old. I had an appointment with my Cll doctor one month ago and a bit worried. Wbc 48 000 Monocytes 12000 ALC 29 000 LDH 550 I understood
New to the group. First post even if I regularly read what is posted. Dx in March 2023. But CLL for at least 2 years. Unmutated, triso 12 and q (14,19). On W&W. 53 years old. I had an appointment with my Cll doctor one month ago and a bit worried. Wbc 48 000 Monocytes 12000 ALC 29 000 LDH 550 I understood
povhgc
in
CLL Support
7 months ago
friend has shingles - advice please
hi, Can I have some advice please. my friend who is a beautician is scheduled to do a facial & nails for me tomorrow. I’ve had chicken pox and her Dr has said she shouldn’t pass it in because it’s on her bottom and she won’t be touching it so in that respect it’s in a good place. Any thoughts? Thank
hi, Can I have some advice please. my friend who is a beautician is scheduled to do a facial & nails for me tomorrow. I’ve had chicken pox and her Dr has said she shouldn’t pass it in because it’s on her bottom and she won’t be touching it so in that respect it’s in a good place. Any thoughts? Thank
MalloryMoss
in
PMRGCAuk
5 months ago
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confused!!!
hi everyone hope you are all as well as you could be!!! I’m struggling big time now! I have a strange situation which I wonder if anyone else has? I became unwell end of July this year , tests started and diagnosed CLL it took a further few tests like MRI CT Scan and bone marrow biopsy only to be told
hi everyone hope you are all as well as you could be!!! I’m struggling big time now! I have a strange situation which I wonder if anyone else has? I became unwell end of July this year , tests started and diagnosed CLL it took a further few tests like MRI CT Scan and bone marrow biopsy only to be told
Dragonfly766
in
CLL Support
7 months ago
Changing Medication
Hi I’m just looking for some advice on Targinact and just Oxycodone please. My neurologist wrote to my GP requesting that I be prescribed Targinact 10mg at night and 5mg mornings increasing if necessary by 5mg increments to maximum of 20mg twice a day, also changing the Venlafaxine I take to either
Hi I’m just looking for some advice on Targinact and just Oxycodone please. My neurologist wrote to my GP requesting that I be prescribed Targinact 10mg at night and 5mg mornings increasing if necessary by 5mg increments to maximum of 20mg twice a day, also changing the Venlafaxine I take to either
Felixstowe
in
Restless Legs Syndrome
3 months ago
Recovery from colds/flu whilst on Adalimumab
Hello,I was diagnosed with Crohn's 18 months ago and have been on Adalimumab for the last 12 months. In that time I have managed to avoid colds/flu until a couple of weeks ago. Have felt quite unwell and presently doesn't seem to be ending. My question is really to other people who have a reduced immune
Hello,I was diagnosed with Crohn's 18 months ago and have been on Adalimumab for the last 12 months. In that time I have managed to avoid colds/flu until a couple of weeks ago. Have felt quite unwell and presently doesn't seem to be ending. My question is really to other people who have a reduced immune
UmaDaisy
in
Crohn's and Colitis Support
6 months ago
Transformation of Richter's Transformation Treatment to combination targeted therapy - tislelizumab +zanubrutinib (ASH 2023)
Richter's Transformation treatments are typically fixed term R-CHOP*, or modifications of that chemoimmunity therapy. So it's encouraging to hear that [i]"In a phase 2 trial, anti-PD-1 inibitor tislelizumab + next gen BTK inhibitor zanubrutinib had an overall response rate of 58.3% in patients with Richter's
Richter's Transformation treatments are typically fixed term R-CHOP*, or modifications of that chemoimmunity therapy. So it's encouraging to hear that [i]"In a phase 2 trial, anti-PD-1 inibitor tislelizumab + next gen BTK inhibitor zanubrutinib had an overall response rate of 58.3% in patients with Richter's
AussieNeil
Partner
in
CLL Support
7 months ago
AI and CLL
it hasn’t really been covered here yet, but AI and ML is beginning to influence medicine. With all the big techs chasing AI development, the ability for AI to discover new novel proteins at a rate beyond what could ever happen in a lab. We are likely to see an uptick in treatments and maybe even cures
it hasn’t really been covered here yet, but AI and ML is beginning to influence medicine. With all the big techs chasing AI development, the ability for AI to discover new novel proteins at a rate beyond what could ever happen in a lab. We are likely to see an uptick in treatments and maybe even cures
MovingForward4423
in
CLL Support
7 months ago
chemical pregnancy?
hi all. I’ve previously had an MMC from a natural pregnancy followed by 2 x failed IUI cycles. I then had my daughter through a 3rd IUI in 2022. Since then I’ve had a natural MC. I’m now under care of a new clinic and agreed to try naturally with progesterone and aspirin support for 2/3 my cycles before
hi all. I’ve previously had an MMC from a natural pregnancy followed by 2 x failed IUI cycles. I then had my daughter through a 3rd IUI in 2022. Since then I’ve had a natural MC. I’m now under care of a new clinic and agreed to try naturally with progesterone and aspirin support for 2/3 my cycles before
London_Em
in
Fertility Network UK
6 months ago
BFP to BFN 15DP5DT (4 + 5 weeks)
Hi everyone, just wanted to post an update for anyone who has seen my previous posts, as I know people often search and it’s nice to know the outcome. Firstly thank you for all the reassurance, it certainly helped during a worrying time. I know some people say not to test often as it can cause anxiety
Hi everyone, just wanted to post an update for anyone who has seen my previous posts, as I know people often search and it’s nice to know the outcome. Firstly thank you for all the reassurance, it certainly helped during a worrying time. I know some people say not to test often as it can cause anxiety
BabyDust23
in
Fertility Network UK
6 months ago
Hook effect possible or miscarriage . Test getting lighter 10 weeks
Today I turned 10 weeks pregnant after my miracle ivf cycle. I admit I am a poas'sr due to my a previous miscarriage and my struggle to get pregnant. So far my tests, including last week had nice dark lines. Today I had a faint line so the maniac in me did a load of tests. Upon diluting it did get darker
Today I turned 10 weeks pregnant after my miracle ivf cycle. I admit I am a poas'sr due to my a previous miscarriage and my struggle to get pregnant. So far my tests, including last week had nice dark lines. Today I had a faint line so the maniac in me did a load of tests. Upon diluting it did get darker
XXKKXX
in
Fertility Network UK
6 months ago
Pneumonia vaccine
Has anyone over 65 received the Pneumonia vaccine-Prevnar 20? I have ET Jak2+ and it was suggested by my GP. I read somewhere that we have to be careful with vaccines. Thank you,
Has anyone over 65 received the Pneumonia vaccine-Prevnar 20? I have ET Jak2+ and it was suggested by my GP. I read somewhere that we have to be careful with vaccines. Thank you,
mbr8076
in
MPN Voice
6 months ago
How you can help make ibrutinib plus venetoclax fixed duration therapy a reality for Australians with previously untreated CLL
In Australia, no new medicine can be listed on the Pharmaceutical Benefits Scheme (PBS) unless it has first been recommended by the Pharmaceutical Benefits Advisory Committee (PBAC). In March 2024, PBAC will again consider a submission to recommend a 15-month combination therapy of ibrutinib plus venetoclax
In Australia, no new medicine can be listed on the Pharmaceutical Benefits Scheme (PBS) unless it has first been recommended by the Pharmaceutical Benefits Advisory Committee (PBAC). In March 2024, PBAC will again consider a submission to recommend a 15-month combination therapy of ibrutinib plus venetoclax
CLLerinOz
Administrator
in
CLL Support
7 months ago
OTD! Can’t help but feel worried!
Hi everyone, so today is OTD and although my tests are still positive I don’t feel the lines have got any darker. I’ve been using the wondfo strips which have good reviews and seem to work well for others with a good line progression. I have also tested with clear blue digital and it is still saying
Hi everyone, so today is OTD and although my tests are still positive I don’t feel the lines have got any darker. I’ve been using the wondfo strips which have good reviews and seem to work well for others with a good line progression. I have also tested with clear blue digital and it is still saying
BabyDust23
in
Fertility Network UK
6 months ago
symptoms of CLL
I was diagnosed w CLL in Dec 2019. I’m on a watch and wait protocol with blood work every 6 months. My question is if I’m not on any meds yet, can I still have symptoms of occasional extreme fatigue, recurrent infections and sometimes feeling like I’m always fighting off something? Is this caused by
I was diagnosed w CLL in Dec 2019. I’m on a watch and wait protocol with blood work every 6 months. My question is if I’m not on any meds yet, can I still have symptoms of occasional extreme fatigue, recurrent infections and sometimes feeling like I’m always fighting off something? Is this caused by
RockymtnTexan
in
CLL Support
7 months ago
new to Group
hello, I’m New to this group. I’m hoping for some basic information regarding how you live with leukemia. I have chronic kidney disease. I received a deceased donor transplant 13 months ago. My transplant team has had real difficulty dealing with dangerously low white blood cell count. I’ve received
hello, I’m New to this group. I’m hoping for some basic information regarding how you live with leukemia. I have chronic kidney disease. I received a deceased donor transplant 13 months ago. My transplant team has had real difficulty dealing with dangerously low white blood cell count. I’ve received
Jayhawker
in
CLL Support
7 months ago
shingrix
Does anyone know how long you have to leave it after rutuximab before having the shingles vaccine. I had infusion in December & my GP has never offered this or the pneumonia jab so was going to chase this up. Tia
Does anyone know how long you have to leave it after rutuximab before having the shingles vaccine. I had infusion in December & my GP has never offered this or the pneumonia jab so was going to chase this up. Tia
juli-pa
in
Vasculitis UK
6 months ago
Shingles Vaccination UK
Hi I am glad to report that I needed no hospital admissions in 2023 (having had 4 in 2022) Decided after open ended discussion with my GP not to take Covid or Flu vaccinations as each one had in the past laid me up with fever etc for a week to ten days and feeling dreadful. Next up is an offer of
Hi I am glad to report that I needed no hospital admissions in 2023 (having had 4 in 2022) Decided after open ended discussion with my GP not to take Covid or Flu vaccinations as each one had in the past laid me up with fever etc for a week to ten days and feeling dreadful. Next up is an offer of
Hihohiho
in
CLL Support
6 months ago
Richter's Transformation: standardized therapy or clinical trial
My father was diagnosed CLL 4 years ago and hasn't been treated. Recently he did a PET CT because of enlarged lmpth nodes and doctor said it's very possible he has Richter's Transformation. May I know if any one has same experience with Richters but not treated before? Could you share the treatment and
My father was diagnosed CLL 4 years ago and hasn't been treated. Recently he did a PET CT because of enlarged lmpth nodes and doctor said it's very possible he has Richter's Transformation. May I know if any one has same experience with Richters but not treated before? Could you share the treatment and
janeychen5712
in
CLL Support
7 months ago
update: Zanabrutinib vs Obenven (O&V)
We are praying for Gods wisdom (James1:5), and we’re leaning toward the Zanabrutinib. The infusions and time and distance will be impactful to my husbands work and he’s prefer to go the simpler route. We learned he’s still 13Q and TP53 negative and his lymph nodes are reduced (we have used ALT for
We are praying for Gods wisdom (James1:5), and we’re leaning toward the Zanabrutinib. The infusions and time and distance will be impactful to my husbands work and he’s prefer to go the simpler route. We learned he’s still 13Q and TP53 negative and his lymph nodes are reduced (we have used ALT for
Cb1391
in
CLL Support
7 months ago
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