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Undiagnosed nerve pain
Pain treatments I have tried (without significant effect): Gabapentin, Lyrica, Amitryptilin,
Botox
injections. The only medication that seems to work a little is Oxycontin and nerve block with local anesthesia. The symptoms are always worse in the evenings. And slowly getting worse overall.
Pain treatments I have tried (without significant effect): Gabapentin, Lyrica, Amitryptilin,
Botox
injections. The only medication that seems to work a little is Oxycontin and nerve block with local anesthesia. The symptoms are always worse in the evenings. And slowly getting worse overall.
JakeBlake
in
Neuropathy Support
6 years ago
Cervical Dystonia
After reading about
botox
, I decided against it since it would weaken me even more. My right side is weak and i can barely use it, if and when i do, it triggers and attack and I pay for it later.
After reading about
botox
, I decided against it since it would weaken me even more. My right side is weak and i can barely use it, if and when i do, it triggers and attack and I pay for it later.
Krsnasmile
in
Dystonia Society
6 years ago
Just saying "HELLO".
After 18 years of been told there's nothing wrong with me to finally getting diagnosed is such a huge step forward , been having
botox
injections into my vocal cords but not seen any improvements as yet .
After 18 years of been told there's nothing wrong with me to finally getting diagnosed is such a huge step forward , been having
botox
injections into my vocal cords but not seen any improvements as yet .
Caroline1965
in
Dystonia Society
6 years ago
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Going for a second RHEO SHOT. Amniotic graph injection
She is going to do another amniotic injection on me with
botox
and for my interstitial cystitis she is going to start bladder installations. She really new her stuff. The procedure is being done in Philadelphia on June 26. I will keep you all posted if it helps me.
She is going to do another amniotic injection on me with
botox
and for my interstitial cystitis she is going to start bladder installations. She really new her stuff. The procedure is being done in Philadelphia on June 26. I will keep you all posted if it helps me.
Debra13
in
Pelvic Pain Support Network
6 years ago
Need some help and advice !
Then finally got diagnosed with Anismus-recto dysfunction my rectal muscles work backwards to how they shoul so I now have
botox
injections under anaethetic (Age 25l although opening my bowels a little more frequently (still no where near enough!!!)
Then finally got diagnosed with Anismus-recto dysfunction my rectal muscles work backwards to how they shoul so I now have
botox
injections under anaethetic (Age 25l although opening my bowels a little more frequently (still no where near enough!!!)
DM14
in
Crohn's and Colitis Support
6 years ago
Ginnalee
I had
Botox
injections at Mayo Clinic. Took effect after few weekk helped the spasms for a year. By this time I'd lost a total of 30 lbs.
I had
Botox
injections at Mayo Clinic. Took effect after few weekk helped the spasms for a year. By this time I'd lost a total of 30 lbs.
Ginnalee
in
Pelvic Pain Support Network
6 years ago
Botox injections in legs
She wasn't able to give me any new recommendations for pain management, but she recommended
botox
injections in my leg muscles for spasticity. She said that the
botox
should be able to reduce leg spasms or myoclonic jerks, without jeopardizing my ability to walk. Has anyone had this done?
She wasn't able to give me any new recommendations for pain management, but she recommended
botox
injections in my leg muscles for spasticity. She said that the
botox
should be able to reduce leg spasms or myoclonic jerks, without jeopardizing my ability to walk. Has anyone had this done?
Aaron98
in
AMN EASIER
6 years ago
Urinary incontinence treatment with Botox
The only thing they've offered is
Botox
, but I'm really worried about the possibility of having to self-catheterise, possibly for months... and urinary infections.
The only thing they've offered is
Botox
, but I'm really worried about the possibility of having to self-catheterise, possibly for months... and urinary infections.
saj01
in
NHS England: A Call to Action
6 years ago
Anal symptoms? Desperate for a diagnosis!
The other times he has seen a very small fissure and I’ve had
Botox
for it twice but this didn’t get rid of my pain, although he said the
Botox
‘healed me’. He discharged me and I asked to be referred back.
The other times he has seen a very small fissure and I’ve had
Botox
for it twice but this didn’t get rid of my pain, although he said the
Botox
‘healed me’. He discharged me and I asked to be referred back.
Gemc93x
in
Endometriosis UK
6 years ago
Botox for neck and shoulder rigidity
Has anyone had experience with this? Diagnosis is Lewy Body D and he cannot take carbidopa/ levodopa. Exercise he can do is not enough. Very tight neck. Shoulders hurt, mainly left. Gets 5 min masage after 30 min exercise session with trainer 2 or more x week
Has anyone had experience with this? Diagnosis is Lewy Body D and he cannot take carbidopa/ levodopa. Exercise he can do is not enough. Very tight neck. Shoulders hurt, mainly left. Gets 5 min masage after 30 min exercise session with trainer 2 or more x week
Boyce3600
in
Cure Parkinson's
6 years ago
Please can someone help or advise me in what to do. As my condition is getting worse. An am scared of the worst...!!!
But now they have given me
Botox
in between my fingers which has made this 10 times worse as now they go black and have all cracked open. I got this condition when I started taking entreaties in replacement of rampril.
But now they have given me
Botox
in between my fingers which has made this 10 times worse as now they go black and have all cracked open. I got this condition when I started taking entreaties in replacement of rampril.
TonySpit
in
Scleroderma & Raynaud's UK (SRUK)
6 years ago
Botox for excessive salivation
Hi has anyone been offered and/or had these injections? If so could you share your experience please, thinking of approaching neurologist to ask if they are a possibility.
Hi has anyone been offered and/or had these injections? If so could you share your experience please, thinking of approaching neurologist to ask if they are a possibility.
Angelcake1
in
Ataxia UK
6 years ago
Pizotifen?
Having had this condition for Many years... probably about 15, and tried lots of prophylactic meds and GONI and currently lucky enough to receive
Botox
every 12-16 weeks - they have again returned to a chronic state....
Having had this condition for Many years... probably about 15, and tried lots of prophylactic meds and GONI and currently lucky enough to receive
Botox
every 12-16 weeks - they have again returned to a chronic state....
shello28
in
National Migraine Centre
6 years ago
did anyone have a funky reaction to botox?
I had my first
botox
treatment on 23 March. The day after I had a fever, was vomiting, extreme head and back pain. Now I mainly have the fatigue, plus head pain, plus dizziness. I have heard good things about
botox
but did anyone have a weird reaction like me? Still struggling. My legs feel weak :(
I had my first
botox
treatment on 23 March. The day after I had a fever, was vomiting, extreme head and back pain. Now I mainly have the fatigue, plus head pain, plus dizziness. I have heard good things about
botox
but did anyone have a weird reaction like me? Still struggling. My legs feel weak :(
foursimplewords
in
Migraine Support
6 years ago
Medications that can affect thyroid function
Those are: lithium, amiodarone, fluoride, HRT/estrogen, Proton Pump Inhibitors, Interferon, Accutane, Iodine (excess),
Botox
. I have previously heard that beta-blockers also disrupt thyroid, but that was not mentioned. https://thyroidpharmacist.com/articles/9-medications-toxic-thyroid/
Those are: lithium, amiodarone, fluoride, HRT/estrogen, Proton Pump Inhibitors, Interferon, Accutane, Iodine (excess),
Botox
. I have previously heard that beta-blockers also disrupt thyroid, but that was not mentioned. https://thyroidpharmacist.com/articles/9-medications-toxic-thyroid/
Eddie83
in
Thyroid UK
6 years ago
Botox
Has anyone had experience with
Botox
injections for this problem?
Has anyone had experience with
Botox
injections for this problem?
Greenkerrycounty
in
PSP Association
6 years ago
Searching the forum for something? Here's a good trick.
"PSP Health Unlocked
Botox
" https://www.google.co.uk/search?
"PSP Health Unlocked
Botox
" https://www.google.co.uk/search?
Kevin_1
in
PSP Association
6 years ago
giving botox one more chance
had
botox
last fall, made my neck muscles very weak and painful, to the point of that doctor would not give it to me again. Have a new Neuro that is going to try iot again tomorrow, stated you can not tell how it will work off of trying 1 time. this will be interesting, wish me luck.
had
botox
last fall, made my neck muscles very weak and painful, to the point of that doctor would not give it to me again. Have a new Neuro that is going to try iot again tomorrow, stated you can not tell how it will work off of trying 1 time. this will be interesting, wish me luck.
Alley1
in
Dystonia Society
6 years ago
Botox
Has anyone had
Botox
in their jaw and d it improve their speech. I ask because l get a very stiff jaw which makes it impossible to speak. Has anyone had
Botox
in their jaw. I ask because my jaw gets very stiff making it impossible to speak clearly. I can hardly open my mouth. Budsey
Botox
Has anyone had
Botox
in their jaw and d it improve their speech. I ask because l get a very stiff jaw which makes it impossible to speak. Has anyone had
Botox
in their jaw. I ask because my jaw gets very stiff making it impossible to speak clearly. I can hardly open my mouth. Budsey
Botox
budsey
in
Multiple System Atrophy Trust
6 years ago
Neck pain and botox
Has anyone had
botox
applied to the neck to relieve this condition? I would appreciate any information. Baby one can share.
Has anyone had
botox
applied to the neck to relieve this condition? I would appreciate any information. Baby one can share.
Tipetipe
in
PSP Association
6 years ago
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