giving botox one more chance: had botox... - Dystonia Society

Dystonia Society

604 members192 posts

giving botox one more chance

Alley1 profile image
5 Replies

had botox last fall, made my neck muscles very weak and painful, to the point of that doctor would not give it to me again. Have a new Neuro that is going to try iot again tomorrow, stated you can not tell how it will work off of trying 1 time. this will be interesting, wish me luck.

Written by
Alley1 profile image
Alley1
To view profiles and participate in discussions please or .
Read more about...
5 Replies
babsdoyle60 profile image
babsdoyle60

Best of Luck Alley1, I have Cervical Dystonia & had Botox Injections for the first time last October. I found very little change but was told the first treatment is always a lower dose, had to cancel 2nd appointment in January due to flu. I was with my Neuro Consultant on Tuesday last & he's arranged another appointment for Botox as he feels I should benefit more 2nd time round. Not so good news is he also thinks I may have Fibromyalgia which sometimes accompanies Dystonia so a double whammy 👊 👊for me sadly! Hopefully you will feel a difference this time 🍀😉

Petersdyst profile image
Petersdyst

Good luck with this Alley1! I didnt realize it could cause pain! Tomorrow I am going to a neurologist in hopes of getting Botox against my blinking disorder. I have had what I consider to be a form of neck dystonia since I was 13-14 (am now 60!) which was never diagnosed in spite of many visits to neuros. Blinking and eye irritability began approx 2 yrs ago. It wasn’t until I looked up the eye problem on the web that I discovered that Dystonia is very probably my true ailment. Will keep you informed of my progress🙂

Judianne profile image
Judianne

Hi Ally, I am in the UK I have hemi facial spasm plus eye distonia/bleurferism ( think my spelling is wrong :( ) I get botox every 8 weeks, I have never had pain tho it leaves me with a lop sided face. good luck. x

babsdoyle60 profile image
babsdoyle60

Hi Alley1, just checking to see how you're feeling after having Botox Injection for the second time, I know it can sometimes take 10 to 14 days for any result, wondering if you notice any difference yet. I've just received an appointment for the 9th of May & it can't come quick enough 😉

Krsnasmile profile image
Krsnasmile

Alley ,I was offered botox for my cervical dystonia and after reading about it, i said no way. I am already so weak on my right shoulder already barely can lift my arm. I was also told that they do not always get t right the first time as far as where the needle goes..and I truly do not like needles. I hope it works for you.

Not what you're looking for?

You may also like...

First Botox Injection next Wednesday

Good afternoon all, I was diagnosed with right sided cervical dystonia (no tremor) a year ago. I...
HKAnne profile image

Am I expecting too much from my first Botox?

This is my first post here. I was first diagnosed with cervical dystonia about 8 years ago. Over...
phil999 profile image

Head and Neck Tremor (External and Internal) with Dystonia

My initial symptoms started with balance issues. The way I would describe it is, say you were in a...
Yrrek profile image

Hey Hey Hey

Hi everyone, I hope you are well? I have just gone through the worst experience ever with Cervical...

Living with extreme Cervical Dystonia

Hello friends...I’ve had EMG and every medication under the sun, including liquid morphine. I...

Moderation team

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.