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Alendronic Acid
It has been recommended that I take Alendronic Acid to protect my bones whilst taking Prednisone as I now have Osteoporosis. To be honest given the potential horrendous side effects of Alendronic Acid which on top of those of taking Prednisone and of course the impact of having GCA I am reluctant to
It has been recommended that I take Alendronic Acid to protect my bones whilst taking Prednisone as I now have Osteoporosis. To be honest given the potential horrendous side effects of Alendronic Acid which on top of those of taking Prednisone and of course the impact of having GCA I am reluctant to
Stellazero
in
PMRGCAuk
1 year ago
Lab results help & talking to doctor about med changes
I talked to my doctor before my lab work about possibly changing the dosage of my levothyroxine or even adding T3 because I still don't think I am optimal. She gave me a " we will see" response and said she doesn't want to mess with it too much because adding one thing can make something else wonky.
I talked to my doctor before my lab work about possibly changing the dosage of my levothyroxine or even adding T3 because I still don't think I am optimal. She gave me a " we will see" response and said she doesn't want to mess with it too much because adding one thing can make something else wonky.
spookyscaryskeletons
in
Thyroid UK
1 year ago
alpha-lipoic acid
hi all, can you take alpha-lipoic acid at anytime of the day away from thyroid meds? I’ve got burning mouth syndrome/metallic taste in my mouth and read the above can help (with vitamin c and L Lysine) but it can interfere with thyroid meds? Many thanks 🙏🏼
hi all, can you take alpha-lipoic acid at anytime of the day away from thyroid meds? I’ve got burning mouth syndrome/metallic taste in my mouth and read the above can help (with vitamin c and L Lysine) but it can interfere with thyroid meds? Many thanks 🙏🏼
Thyroid_mum
in
Thyroid UK
1 year ago
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osteoporosis and spinal fractures
Hello, I have been a member on health unlocked forums for many years due to other health conditions. I joined this bone health forum last year 2022, following three fractures out of the blue. (The first whilst cleaning my teeth and coughing) this was last February 14, happy Valentine’s Day lol 😂
Hello, I have been a member on health unlocked forums for many years due to other health conditions. I joined this bone health forum last year 2022, following three fractures out of the blue. (The first whilst cleaning my teeth and coughing) this was last February 14, happy Valentine’s Day lol 😂
jessielou
in
Bone Health and Osteoporosis UK
1 year ago
preservatives in B12
I have been reacting to subcutaneous SI and looking at what is in Panpharma B12 there is acetic acid sodium chloride sodium acetate. This is hydro. I have bought a lot of these and worry first if I can’t use them and secondly if all have this in them. Any advice please?
I have been reacting to subcutaneous SI and looking at what is in Panpharma B12 there is acetic acid sodium chloride sodium acetate. This is hydro. I have bought a lot of these and worry first if I can’t use them and secondly if all have this in them. Any advice please?
smg1950
in
Pernicious Anaemia Society
1 year ago
Alendronic Acid
I have just been given alendronic acid by my GP to protect my bones. I have been reading some of the side effects and not sure whether to start this medication. I also read on nhs website that may need advice before taking if you have kidney problems. Does anyone else take this medication? I am thinking
I have just been given alendronic acid by my GP to protect my bones. I have been reading some of the side effects and not sure whether to start this medication. I also read on nhs website that may need advice before taking if you have kidney problems. Does anyone else take this medication? I am thinking
juli-pa
in
Vasculitis UK
1 year ago
any good news???
hi all - so looks like I finally am going to have to start on Alendronic Acid 😭. I’ve heard such bad stuff about it, I just wondered - has anyone had a positive experience? Does anyone manage to take it without too many side effects??? I work full time and am slightly dreading having to do that whilst
hi all - so looks like I finally am going to have to start on Alendronic Acid 😭. I’ve heard such bad stuff about it, I just wondered - has anyone had a positive experience? Does anyone manage to take it without too many side effects??? I work full time and am slightly dreading having to do that whilst
Scandi123
in
Bone Health and Osteoporosis UK
1 year ago
Alendronic acid and dental wirk
Does anyone have a similar experience or advice please? I finally started taking Alendronic Acid on Monday under pressure from a GP who said I should not delay. My Dexa scan showed that I have osteoporosis and I am currently on 35mg of prednisolone a day. So I decided to stop being a scaredy cat and
Does anyone have a similar experience or advice please? I finally started taking Alendronic Acid on Monday under pressure from a GP who said I should not delay. My Dexa scan showed that I have osteoporosis and I am currently on 35mg of prednisolone a day. So I decided to stop being a scaredy cat and
Raga72
in
PMRGCAuk
1 year ago
SC in Australia
Hi everyone,I've got a packet of B12 (I'm in Australia and it's the Neo brand) and I'm thinking of injecting it SC. The problem is it says 'for IM use only'. It's hydroxocobalamin chloride 1mg in 1mL and the other ingredients are sodium chloride, water and acetic acid. Does anyone know if this sort
Hi everyone,I've got a packet of B12 (I'm in Australia and it's the Neo brand) and I'm thinking of injecting it SC. The problem is it says 'for IM use only'. It's hydroxocobalamin chloride 1mg in 1mL and the other ingredients are sodium chloride, water and acetic acid. Does anyone know if this sort
greenscarf
in
Pernicious Anaemia Society
1 year ago
Operation cancelled
My operation was cancelled for a few reasonsand because of Polycythaemia . The Dr wanted to use Tranexamic Acid to reduce bleeding. Does any one know if this can be used with polycythaemia . Thankyou .
My operation was cancelled for a few reasonsand because of Polycythaemia . The Dr wanted to use Tranexamic Acid to reduce bleeding. Does any one know if this can be used with polycythaemia . Thankyou .
FXT1966
in
MPN Voice
1 year ago
More drugs!
Some of you will know we moved from Cornwall to the Bristol area which obviously meant registering with a new doctors surgery. I’ve been about three times and you can never see the same doctor even though they say make an appointment to see me after your blood test. Anyway the last time I went was partly
Some of you will know we moved from Cornwall to the Bristol area which obviously meant registering with a new doctors surgery. I’ve been about three times and you can never see the same doctor even though they say make an appointment to see me after your blood test. Anyway the last time I went was partly
Griggser
in
PMRGCAuk
1 year ago
Severe Period Pains
Our daughter who has FA (16yrs) started getting severe cramps when she gets her period about a year ago. She started her periods when she was 11. She & her brother were just diagnosed with FA in Nov 22. She's previously passed out with the pain from cramps & mentioned severe shooting pains traveling
Our daughter who has FA (16yrs) started getting severe cramps when she gets her period about a year ago. She started her periods when she was 11. She & her brother were just diagnosed with FA in Nov 22. She's previously passed out with the pain from cramps & mentioned severe shooting pains traveling
Hidden
in
Ataxia UK
1 year ago
Does anyone else feel buzzing and hyper and dizzy at the same time? My neuropathy is also bad.
Please can anyone help - I feel pretty ill but not sure I can even describe it. My neuropathy in my lower legs is unusually bad, bothering me at night so I can't sleep and in the day to the extent I feel the pain in my left leg/shin may be a hazard driving. Sometimes I feel very weak and as if I can't
Please can anyone help - I feel pretty ill but not sure I can even describe it. My neuropathy in my lower legs is unusually bad, bothering me at night so I can't sleep and in the day to the extent I feel the pain in my left leg/shin may be a hazard driving. Sometimes I feel very weak and as if I can't
Mashie44
in
Pernicious Anaemia Society
1 year ago
zoledronic acid infusion
has anyone had any good results after having the infusion for severe osteoporosis, I have had 1infusion and don't feel that it's done anygood, and after reading about how many people have had fractures even though they have been on zoledronic acid, my scores are -2.5 -4.1 lumbar spine, bmd at femoral
has anyone had any good results after having the infusion for severe osteoporosis, I have had 1infusion and don't feel that it's done anygood, and after reading about how many people have had fractures even though they have been on zoledronic acid, my scores are -2.5 -4.1 lumbar spine, bmd at femoral
Radars
in
Bone Health and Osteoporosis UK
1 year ago
Alendronic Acid
After a Dexa scan report my rheumatologist said she thought I should start on Alendronic acid as I was just borderline for osteoporosis. My mother has it and her spine is crumbling so I thought it sounded like a good idea. Was I bit worried when I got the medication but went ahead and started. I had
After a Dexa scan report my rheumatologist said she thought I should start on Alendronic acid as I was just borderline for osteoporosis. My mother has it and her spine is crumbling so I thought it sounded like a good idea. Was I bit worried when I got the medication but went ahead and started. I had
Gilliancheche
in
NRAS
1 year ago
Dry skin
I have PBC and started ursodiol in August 2022. It’s in the early stages and my liver enzymes are now normal. But my skin is extremely dry, what do I do? I’m going to ask the specialist but I was wondering if anyone else has this issue. I’ve tried many different lotions and take vitamins but still very
I have PBC and started ursodiol in August 2022. It’s in the early stages and my liver enzymes are now normal. But my skin is extremely dry, what do I do? I’m going to ask the specialist but I was wondering if anyone else has this issue. I’ve tried many different lotions and take vitamins but still very
Chase2022
in
PBCers Organization
1 year ago
Newly diagnosed
Hi I've recently been diagnosed with osteoporosis Spine -3.5 I'm 60 and have many autoimmune conditions and have been offered zoledronic acid once yearly infusion If I don't think I can manage the oral bisphosphonates, I already suffer from joint and muscle pain and I feel absolutely terrified of
Hi I've recently been diagnosed with osteoporosis Spine -3.5 I'm 60 and have many autoimmune conditions and have been offered zoledronic acid once yearly infusion If I don't think I can manage the oral bisphosphonates, I already suffer from joint and muscle pain and I feel absolutely terrified of
mully
in
Bone Health and Osteoporosis UK
1 year ago
Pain relief: First period after lap
Hi what pain relief is good please. First period after lap and the usual ibuprofen and tranexamic acid ain't cutting it. Tried mefanamic acid too but previously didn't find it an improvement on the ibuprofen. Any advice greatly appreciated
Hi what pain relief is good please. First period after lap and the usual ibuprofen and tranexamic acid ain't cutting it. Tried mefanamic acid too but previously didn't find it an improvement on the ibuprofen. Any advice greatly appreciated
Apricottree
in
Endometriosis UK
1 year ago
Told that I can’t have Zoledronic Acid.
Dear friends, I am finishing 2 years of Forsteo at the end of July. In preparation for the possibility of having ZA Infusion as follow on treatment, I have been attending dental appointments . Having been passed to the practise surgeon to have an extraction, we were both shocked to discover I may
Dear friends, I am finishing 2 years of Forsteo at the end of July. In preparation for the possibility of having ZA Infusion as follow on treatment, I have been attending dental appointments . Having been passed to the practise surgeon to have an extraction, we were both shocked to discover I may
Angelicspirit
in
Bone Health and Osteoporosis UK
1 year ago
Pred and Alendronic Acid
Hi everyone, I haven't been on here for quite a while. I have at last got down to 1mg of pred which 6 months ago I thought it would never happen. I stumbled on 5mgs for ages but eventually I was able to keep lowering and being at 1mg after 22months from my diagnosis of Poly mialgia, I think I 've been
Hi everyone, I haven't been on here for quite a while. I have at last got down to 1mg of pred which 6 months ago I thought it would never happen. I stumbled on 5mgs for ages but eventually I was able to keep lowering and being at 1mg after 22months from my diagnosis of Poly mialgia, I think I 've been
Smilie67
in
PMRGCAuk
1 year ago
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