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All I want for Christmas is.....
Well it has finally happened! My front teeth are out! Well one of them is and the other is looking very sorry for itself! I have had oral surgery to remove a root and am waiting to get an implant but things are not going well! I think alendronic acid has had an impact so have decided to ditch it!!!
Well it has finally happened! My front teeth are out! Well one of them is and the other is looking very sorry for itself! I have had oral surgery to remove a root and am waiting to get an implant but things are not going well! I think alendronic acid has had an impact so have decided to ditch it!!!
JulieR2
in
PMRGCAuk
6 years ago
Advice
I was diagnosed 2yrs ago after a laparoscopy and went back on pill just before. All was good for a year and so I came off pill as I didn’t want to be on it anymore (had been on for 15yrs which was why I came off before). I managed fine for about another year but then started to get bad a few months ago
I was diagnosed 2yrs ago after a laparoscopy and went back on pill just before. All was good for a year and so I came off pill as I didn’t want to be on it anymore (had been on for 15yrs which was why I came off before). I managed fine for about another year but then started to get bad a few months ago
Claredav
in
Endometriosis UK
6 years ago
Awaiting laparoscopy after negative scans ?endo
Hi everyone 🙋🏼 Ended up here after desperately hunting for answers. (Not so) brief history: 30yo always suffered from killer cramps and heavy periods as well as deep pain with sex (positional). Just accepted it and thought I was one of the unlucky ones. Always told I had a low pain threshold. Fast
Hi everyone 🙋🏼 Ended up here after desperately hunting for answers. (Not so) brief history: 30yo always suffered from killer cramps and heavy periods as well as deep pain with sex (positional). Just accepted it and thought I was one of the unlucky ones. Always told I had a low pain threshold. Fast
helen87
in
Endometriosis UK
6 years ago
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Alk-phos climbing up... 😔
Hello all, Well, got my labs back. Everything is in normal range except my AMA M2 and my alk-phos. It's elevated yet again. Slowly over the past few months it's been climbing. It was 162 three weeks ago and it's 174 today. I'm taking the mid range level of my URSO for my weight but I'm still within
Hello all, Well, got my labs back. Everything is in normal range except my AMA M2 and my alk-phos. It's elevated yet again. Slowly over the past few months it's been climbing. It was 162 three weeks ago and it's 174 today. I'm taking the mid range level of my URSO for my weight but I'm still within
Ktltel
in
PBC Foundation
6 years ago
Pelvic pain/ Symptoms like Endometriosis
Hi guys, I'm new to this website but was suggested it to see if anyone could give me any advice or tips on how to manage my pain. (Sorry in advance for a long post!) I have had years of painful periods, and over the last year or so the pelvic pain has been getting worse, causing pain during exercise
Hi guys, I'm new to this website but was suggested it to see if anyone could give me any advice or tips on how to manage my pain. (Sorry in advance for a long post!) I have had years of painful periods, and over the last year or so the pelvic pain has been getting worse, causing pain during exercise
jessica17
in
Pelvic Pain Support Network
6 years ago
Appropriate Thiamine dose when taking R Alpha Lipoic Acid
I just began using R ALA (600 mg) and Methylcobalamin (4 mg) to address peripheral neuropathy and it appears to be benefiting me. I read in a recent reply by Silvestrov that its important to supplement Thiamine when one takes R ALA. Silvestrov or anyone here that has experience taking Thiamine concurrently
I just began using R ALA (600 mg) and Methylcobalamin (4 mg) to address peripheral neuropathy and it appears to be benefiting me. I read in a recent reply by Silvestrov that its important to supplement Thiamine when one takes R ALA. Silvestrov or anyone here that has experience taking Thiamine concurrently
BUZZ1397
in
Cure Parkinson's
6 years ago
Private DEXA scans
I have noted a few people reporting they cannot get a DXA scan through their GP. It is of particular concern when they are told to take Alendronic acid to protect their bones. I had two scans done at a 2 year interval. When the next 2 years had passed my GP said I should take Alendronic acid. I was
I have noted a few people reporting they cannot get a DXA scan through their GP. It is of particular concern when they are told to take Alendronic acid to protect their bones. I had two scans done at a 2 year interval. When the next 2 years had passed my GP said I should take Alendronic acid. I was
nevagivup
in
PMRGCAuk
6 years ago
side effects
Last December I was diagnosed with PBC and Autoimmune Hepatitis. Since then I've been on Ursodiol 900mg daily and Azathioprine 100mg daily. Recently I've begun experiencing nighttime aches in joints and muscles and inflammation in joints in the morning. We've ruled out Rheumatoid Arthritis and I don't
Last December I was diagnosed with PBC and Autoimmune Hepatitis. Since then I've been on Ursodiol 900mg daily and Azathioprine 100mg daily. Recently I've begun experiencing nighttime aches in joints and muscles and inflammation in joints in the morning. We've ruled out Rheumatoid Arthritis and I don't
kookymonkey
in
PBC Foundation
6 years ago
A year on since diagnosis and still struggling
Similar story to many I suspect: since the age of 15/16 I had terrible pain with periods, this interfered with work and studies, I had a break for a few years with use of Mefenamic acid and Tranexamic acid but then began to react badly to them. Some 12+years on I finally got referred to a gyno and went
Similar story to many I suspect: since the age of 15/16 I had terrible pain with periods, this interfered with work and studies, I had a break for a few years with use of Mefenamic acid and Tranexamic acid but then began to react badly to them. Some 12+years on I finally got referred to a gyno and went
KibbsnMeeps
in
Endometriosis UK
6 years ago
Back spasm
Hi. I had another spasm in my back this morning. It's agony. I have AS. So far today have taken etoricoxib, omeprazole, co-codamol, and diazepam. Using a wheat heat pack too. Does anyone have any other first aid ideas on how to reduce the pain? Can't believe I'm back here again, just when I felt
Hi. I had another spasm in my back this morning. It's agony. I have AS. So far today have taken etoricoxib, omeprazole, co-codamol, and diazepam. Using a wheat heat pack too. Does anyone have any other first aid ideas on how to reduce the pain? Can't believe I'm back here again, just when I felt
Mhairi54
in
NRAS
6 years ago
Something positive - at last!
I just had the best day I've had for a long time, with the help of a few supplements and a bit of high-intensity exercise. This could be a breakthrough :) . After 12 years, it's about time for one. Improvements noted: 1. Music sounds more like music and less like irritating noise. I remembered an
I just had the best day I've had for a long time, with the help of a few supplements and a bit of high-intensity exercise. This could be a breakthrough :) . After 12 years, it's about time for one. Improvements noted: 1. Music sounds more like music and less like irritating noise. I remembered an
NightBird
in
Headway
6 years ago
Dangers of alendronate.
I have been on Alendronate for 3 1/2 years.for a diagnosis of GCA and PMR made in 2014. I started then on 80 mg pred. per day. Now I am getting esophageal pain and have asked my Dr. to remove me from the alendronate.. When I look at the warnings on the product, esophageal cancer is named. My Dr. wants
I have been on Alendronate for 3 1/2 years.for a diagnosis of GCA and PMR made in 2014. I started then on 80 mg pred. per day. Now I am getting esophageal pain and have asked my Dr. to remove me from the alendronate.. When I look at the warnings on the product, esophageal cancer is named. My Dr. wants
DeliaGray
in
PMRGCAuk
6 years ago
hello! new member!
hello all : ) Just joined! am a very young happy 45 year old living my with partner and been suffering from endo since a teenager - although like many its taken me years to be taken seriously and recieve any form of effective treatment. been put on several different types of the pill to ‘ease the symptoms
hello all : ) Just joined! am a very young happy 45 year old living my with partner and been suffering from endo since a teenager - although like many its taken me years to be taken seriously and recieve any form of effective treatment. been put on several different types of the pill to ‘ease the symptoms
emmalondon
in
Endometriosis UK
6 years ago
Supplements for damaged nerves. Need a recommendation!
I am wondering what can I do to help to cure my nerves. Of course, B12 will be the main drug but are there any other drugs? I know that Alpha Lipoic Acid is worth taking. But taken orally makes my stomach upset. I wonder how about intravenous one? Anybody? B6 I will definitely take it but I need methylated
I am wondering what can I do to help to cure my nerves. Of course, B12 will be the main drug but are there any other drugs? I know that Alpha Lipoic Acid is worth taking. But taken orally makes my stomach upset. I wonder how about intravenous one? Anybody? B6 I will definitely take it but I need methylated
Kosakosia
in
Pernicious Anaemia Society
6 years ago
Effective treatment for Paget's disease of bone
Zoledronate has been repeatedly shown to give excellent control of overactive bone cells in Paget's Disease of Bone and is also effective for pain arising directly from the condition. There is a wealth of evidence to show its benefits. All drugs have risks and it is the minority of patients who suffer
Zoledronate has been repeatedly shown to give excellent control of overactive bone cells in Paget's Disease of Bone and is also effective for pain arising directly from the condition. There is a wealth of evidence to show its benefits. All drugs have risks and it is the minority of patients who suffer
Hidden
in
Paget’s Support
6 years ago
Adrenalin rushes in?
I've had a few weeks where I the daily flushing/nausea/shaking episodes had eased off. But this week, they seemed to be returning. This afternoon, I had a dramatic demonstration that they must surely be related to adrenal dysfunction. The morning had been ordinary, with me simply pacing myself through
I've had a few weeks where I the daily flushing/nausea/shaking episodes had eased off. But this week, they seemed to be returning. This afternoon, I had a dramatic demonstration that they must surely be related to adrenal dysfunction. The morning had been ordinary, with me simply pacing myself through
whisperit
in
LUPUS UK
6 years ago
Weight gain but loss of appetite
I have had PMR for 9 months and am currently on 8mg Prednisolone (increased recently recently from 5mg due to flare). Also have been on Alendronic Acid from the start. Pain-wise things are not so bad now apart from first thing in the morning. I am walking for 30mins per day and have recently upped
I have had PMR for 9 months and am currently on 8mg Prednisolone (increased recently recently from 5mg due to flare). Also have been on Alendronic Acid from the start. Pain-wise things are not so bad now apart from first thing in the morning. I am walking for 30mins per day and have recently upped
Hidden
in
PMRGCAuk
7 years ago
Alendronuc acid and the dreaded empty stomach before taking it ...
I'm a 57 year old female with pulmonary Sarcoidosis diagnosed in 2011. At the moment I'm taking 10mg prendisilone, 200mg hydroxychloroquine, 30mg lanzoprazole, 20mg fluoxetine daily and amitriptyline20mg, 30mg morphine sulphate and 60mg solphadol at night. I am also 'supposed' to take 700mg alendronic
I'm a 57 year old female with pulmonary Sarcoidosis diagnosed in 2011. At the moment I'm taking 10mg prendisilone, 200mg hydroxychloroquine, 30mg lanzoprazole, 20mg fluoxetine daily and amitriptyline20mg, 30mg morphine sulphate and 60mg solphadol at night. I am also 'supposed' to take 700mg alendronic
Hidden
in
PMRGCAuk
7 years ago
Calcium levels
Hi, just joined PMRGCAuk and have been interested to read other's experiences. I started with PMR in January and was diagnosed in March and have been on pred since then. I was also prescribed Alendronic Acid which I've taken myself off after talking to friends who've had really bad dental problems
Hi, just joined PMRGCAuk and have been interested to read other's experiences. I started with PMR in January and was diagnosed in March and have been on pred since then. I was also prescribed Alendronic Acid which I've taken myself off after talking to friends who've had really bad dental problems
Pmrruth
in
PMRGCAuk
7 years ago
Anyone any advice on high antibodies
Thyroid UK Blood test results help Aprilrodek 6 days ago 6 Replies Hi i have just recieved results from mt blood test. The test was done early evening in a private clinic and i had just been for food. I went to a eye doctor as my eyes were burning, glazed and painful. I have been on a gluten free
Thyroid UK Blood test results help Aprilrodek 6 days ago 6 Replies Hi i have just recieved results from mt blood test. The test was done early evening in a private clinic and i had just been for food. I went to a eye doctor as my eyes were burning, glazed and painful. I have been on a gluten free
Aprilrodek
in
Thyroid UK
7 years ago
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