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Aplastic anaemia
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Iron blood test - definitive list
I got my recent blood test back, haven’t yet posted all results to my profile, but my ferritin was rock bottom (7 out of 7-271 range) so I’m going to get a full iron test before I share all the numbers here and decide my next med change. What should I ask for: Iron Total iron-binding capacity (TIBC
I got my recent blood test back, haven’t yet posted all results to my profile, but my ferritin was rock bottom (7 out of 7-271 range) so I’m going to get a full iron test before I share all the numbers here and decide my next med change. What should I ask for: Iron Total iron-binding capacity (TIBC
FallingInReverse
in
Thyroid UK
9 months ago
Chillblains
I have SLL and recently have had a few occurrences of Chillblains, my son is a Consultant Haematologist and tells me haematological malignancy is a common link and this paper links it to SLL, https://bmcdermatol.biomedcentral.com/articles/10.1186/s12895-015-0032-z. I can cope with this keeping hands
I have SLL and recently have had a few occurrences of Chillblains, my son is a Consultant Haematologist and tells me haematological malignancy is a common link and this paper links it to SLL, https://bmcdermatol.biomedcentral.com/articles/10.1186/s12895-015-0032-z. I can cope with this keeping hands
GerryPL
in
CLL Support
9 months ago
update pins n needles in both thumbs
hi , after blood test results, it appears I am low on folic acid, so Dr. Has given me prescription for 3 months worth of f/a pills. After which I am to have another blood test. I’ve checked symptoms of folic acid deficiency and it kinda ties in with how I’ve been feeling lately. (Bet I guess we can
hi , after blood test results, it appears I am low on folic acid, so Dr. Has given me prescription for 3 months worth of f/a pills. After which I am to have another blood test. I’ve checked symptoms of folic acid deficiency and it kinda ties in with how I’ve been feeling lately. (Bet I guess we can
9lives
in
PMRGCAuk
1 year ago
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B12 and Serum Folate
Hi, My bloods come back low on B12 and Folate again this has been the case every time for 7 years. I suffer with severe dizziness and numbness, brain fog and extreme fatigue. Can someone advise on my results though as I can’t seem to find anything, my results are below - B12 - 201 ng/L Folate
Hi, My bloods come back low on B12 and Folate again this has been the case every time for 7 years. I suffer with severe dizziness and numbness, brain fog and extreme fatigue. Can someone advise on my results though as I can’t seem to find anything, my results are below - B12 - 201 ng/L Folate
Mumof3z
in
Pernicious Anaemia Society
1 year ago
Elevated enzymes from my blood test
I’m new here and was wondering if anyone had the same experience as me. When I was sick with flu like symptoms I had my bloodwork done. It came back with elevated liver enzymes. Then about 3 mos later another test done by my GI dr and still elevated. I have no symptoms and am in good health; just
I’m new here and was wondering if anyone had the same experience as me. When I was sick with flu like symptoms I had my bloodwork done. It came back with elevated liver enzymes. Then about 3 mos later another test done by my GI dr and still elevated. I have no symptoms and am in good health; just
Hope4me1
in
British Liver Trust
1 year ago
symptoms with treated PA
Hello forum Autoimmune Metaplastic Atrophic Gastritis (AMAG) results in the loss of parietal cells which causes a loss of production of stomach acid and intrinsic factor (IF). The loss of IF results in low B12. My general query is; are there consequences and symptoms connected to a lack of stomach
Hello forum Autoimmune Metaplastic Atrophic Gastritis (AMAG) results in the loss of parietal cells which causes a loss of production of stomach acid and intrinsic factor (IF). The loss of IF results in low B12. My general query is; are there consequences and symptoms connected to a lack of stomach
Laundretta
in
Pernicious Anaemia Society
11 months ago
still fighting for buprenorphine to be reinstated. I'm starting to lose battle with myself.
Have not had any sleep again......my leg so painful and jerking non stop.....took 5mgs Targin that I had in cupboard, didn't even calm it down....this is the third night now I have had less than 2 hours sleep......nauseated and beaten. I have a box of Buprenorphine in pantry , the dr has stopped me on
Have not had any sleep again......my leg so painful and jerking non stop.....took 5mgs Targin that I had in cupboard, didn't even calm it down....this is the third night now I have had less than 2 hours sleep......nauseated and beaten. I have a box of Buprenorphine in pantry , the dr has stopped me on
Hidden
in
Restless Legs Syndrome
1 year ago
advice please b12/folate
Hi, So a few years ago I had a b12/folate deficiency. I had easy bruising, unexplained weight loss, funny sensations just to make a few. In the end I was really unwell and had Macrocytosis so I was started on loading doses of b12 (followed by injections every 3 months and folic acid. My levels went
Hi, So a few years ago I had a b12/folate deficiency. I had easy bruising, unexplained weight loss, funny sensations just to make a few. In the end I was really unwell and had Macrocytosis so I was started on loading doses of b12 (followed by injections every 3 months and folic acid. My levels went
Emmy1991
in
Pernicious Anaemia Society
1 year ago
b12 iron relationship?
Hi friends…I was diagnosed with a b12 deficiency in June, which is thankfully improving with injections (I had horrible neuro symptoms). I had my iron tested twice over the summer, both well in the good range (over 100). However, this week I had an iron panel showing my iron is 40 (literally the bottom
Hi friends…I was diagnosed with a b12 deficiency in June, which is thankfully improving with injections (I had horrible neuro symptoms). I had my iron tested twice over the summer, both well in the good range (over 100). However, this week I had an iron panel showing my iron is 40 (literally the bottom
MuppDog
in
Pernicious Anaemia Society
10 months ago
Can you do subcut injection without pinching up skin?
Hello everyone! Previously, I have performed IM self injections. This has largely been fine and unproblematic, but a painful incident on the most recent attempt made me want to seek alternatives. I'm sure SC injections might be nicer for me as the needle is smaller and a lot of people on this forum
Hello everyone! Previously, I have performed IM self injections. This has largely been fine and unproblematic, but a painful incident on the most recent attempt made me want to seek alternatives. I'm sure SC injections might be nicer for me as the needle is smaller and a lot of people on this forum
Mereri
in
Pernicious Anaemia Society
1 year ago
Iron deficiency
Hello I’m asking a question with regards to low ferritin levels (17.4). I’m confused whether I should be prescribed folic acid or iron?!
Hello I’m asking a question with regards to low ferritin levels (17.4). I’m confused whether I should be prescribed folic acid or iron?!
sewingroom
in
Thyroid UK
10 months ago
Results Advice
Hi I’m looking for some advice on my recent bloods please, since my last test I dropped my levo back to 100mg a day and increased my lio by 5mg so I’m a little confused as to why my T3 has dropped🤷♀️the only thing I can think of is that I’ve been using Morningside lio for my 10mg dose in the morning
Hi I’m looking for some advice on my recent bloods please, since my last test I dropped my levo back to 100mg a day and increased my lio by 5mg so I’m a little confused as to why my T3 has dropped🤷♀️the only thing I can think of is that I’ve been using Morningside lio for my 10mg dose in the morning
PrincessAnnie
in
Thyroid UK
10 months ago
Targinact
I have had RLS for over 20 years and have tried most medications, the latest being Pregabalin, which was good but is now not working so well. I therefore asked my GP if I could try Targinact as I read this is now licensed for RLS. He has agreed and I just need to taper Pregabalin. Can anyone
I have had RLS for over 20 years and have tried most medications, the latest being Pregabalin, which was good but is now not working so well. I therefore asked my GP if I could try Targinact as I read this is now licensed for RLS. He has agreed and I just need to taper Pregabalin. Can anyone
Quiltingmum
in
Restless Legs Syndrome
10 months ago
Fundraising
I am very fortunate that I can pop down to P.A. Society Head Quarters to lend a hand. I did this morning. There are 4 volunteers helping the small amount of staff run the organisation . The person there today was inundated when I rocked up. As they are everyday. We could talk for weeks but I said, ‘No
I am very fortunate that I can pop down to P.A. Society Head Quarters to lend a hand. I did this morning. There are 4 volunteers helping the small amount of staff run the organisation . The person there today was inundated when I rocked up. As they are everyday. We could talk for weeks but I said, ‘No
Narwhal10
in
Pernicious Anaemia Society
1 year ago
cellulite in legs related to thyroid?
I have been exercising the same as always and eating clean, but have recently suffered from a cellulite appearance in my legs (when pressing on the skin or walking you can see it only). I am wondering if it is in fact celulite or water refention, and whether it is related to my Hashimoto’s disease.
I have been exercising the same as always and eating clean, but have recently suffered from a cellulite appearance in my legs (when pressing on the skin or walking you can see it only). I am wondering if it is in fact celulite or water refention, and whether it is related to my Hashimoto’s disease.
thyroidqueen12
in
Thyroid UK
1 year ago
Promethazine Hydrochloride
hi I have been desperate for sleep but my RLS has been so bad that I’ve found it impossible I managed to get a GP appointment and told her my story and background and although she was sympathetic said the RLS I’d very difficult to control I told her I had no desire to go back on to a DA and my problems
hi I have been desperate for sleep but my RLS has been so bad that I’ve found it impossible I managed to get a GP appointment and told her my story and background and although she was sympathetic said the RLS I’d very difficult to control I told her I had no desire to go back on to a DA and my problems
Hoochybaby
in
Restless Legs Syndrome
10 months ago
Asking for support following GP 'Results Normal' response
Hello everyone, Right now I'm in sore need of massive hugs as I've just burst into tears. Yesterday I sent in a two page letter to the GP putting in all my recent results (posted elsewhere) and asking them to look at my folate, B12, Iron panel and consider increasing my levo to 100mcg. I detailed my
Hello everyone, Right now I'm in sore need of massive hugs as I've just burst into tears. Yesterday I sent in a two page letter to the GP putting in all my recent results (posted elsewhere) and asking them to look at my folate, B12, Iron panel and consider increasing my levo to 100mcg. I detailed my
Sneedle
in
Thyroid UK
1 year ago
New papers on PA
There are often new interesting papers on pernicious anemia. I will add them to this thread to keep them all in one place. I'll try to the pick the ones I think are most novel & relevant, but plenty are published every month. To see more, check Google Scholar https://scholar.google.com/scholar?start=
There are often new interesting papers on pernicious anemia. I will add them to this thread to keep them all in one place. I'll try to the pick the ones I think are most novel & relevant, but plenty are published every month. To see more, check Google Scholar https://scholar.google.com/scholar?start=
jade_s
in
Pernicious Anaemia Society
1 year ago
Calquence and decreased hemoglobin
Hi Everyone! I have been on Calquence for just about a month and had my first labs yesterday. Neuts were normal. Platelets were steady at 120. My absolute WBC was 106,000 from 43,000, but that was to be expected. However, my hemoglobin was 10.3 from 11.2. I know it's just a slight decrease, but
Hi Everyone! I have been on Calquence for just about a month and had my first labs yesterday. Neuts were normal. Platelets were steady at 120. My absolute WBC was 106,000 from 43,000, but that was to be expected. However, my hemoglobin was 10.3 from 11.2. I know it's just a slight decrease, but
albie58
in
CLL Support
1 year ago
B12 testing...don't know what to do...
Hello all ... I've been looking into possible pernacious anemia, following the advice of a member on my blood test results...my levels have varied a lot over the past few years and despite increasing my dose of Thorne basic B, my overall levels have not increased. (See screenshot attached - the lowest
Hello all ... I've been looking into possible pernacious anemia, following the advice of a member on my blood test results...my levels have varied a lot over the past few years and despite increasing my dose of Thorne basic B, my overall levels have not increased. (See screenshot attached - the lowest
Molly161018
in
Thyroid UK
1 year ago
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