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paradoxical b12 deficiency - getting injections
hi there I have symptoms of anaemia but b13 comes back high My anxiety is getting the roof and eyesight etc getting very bad Super fatigued all the time So how can I get some b12 injections and see if this helps me ?
hi there I have symptoms of anaemia but b13 comes back high My anxiety is getting the roof and eyesight etc getting very bad Super fatigued all the time So how can I get some b12 injections and see if this helps me ?
Sarahpoppe232
in
Pernicious Anaemia Society
1 year ago
I have terrible RLS, it includes not only LEGS, but also my HANDS AND MOUTH CHATTERING
I have been suffering, RLS which includes not only my LEGS but also my HANDS AND MOUTH & JAWS CHATTERING, can anyone can help me ??. I HAVE ATTACHED my IRON REPORT. Patient Name: Mr.RAMANATH T SCollected: 16/Jul/2023 09:14AM Age/Gender: 64 Y 4 M 24 D /MReceived: 16/Jul/2023 12:52PM UHID/MR No
I have been suffering, RLS which includes not only my LEGS but also my HANDS AND MOUTH & JAWS CHATTERING, can anyone can help me ??. I HAVE ATTACHED my IRON REPORT. Patient Name: Mr.RAMANATH T SCollected: 16/Jul/2023 09:14AM Age/Gender: 64 Y 4 M 24 D /MReceived: 16/Jul/2023 12:52PM UHID/MR No
Ramuu
in
Restless Legs Syndrome
1 year ago
Looking for guidance on RLS and Parkinson's Management
Good Morning, Read this forum regularly... thank you for sharing ... Looking to learn more about RLS and Parkinson's, especially from persons with these two conditions particularly their medication management. My husband has both conditions, RLS since mid 2000s, Parkinson's since 2018. And we are
Good Morning, Read this forum regularly... thank you for sharing ... Looking to learn more about RLS and Parkinson's, especially from persons with these two conditions particularly their medication management. My husband has both conditions, RLS since mid 2000s, Parkinson's since 2018. And we are
gardening57
in
Restless Legs Syndrome
1 year ago
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Vitamins
I inject sc roughly every other week but am going to try every week. I’ve read that necessary to take folic acid ( various ideas on this re amounts) but do you take other vitamins especially B vitamins on a regular basis? Also recommendations re potassium intake? Any other nutritional advice welcome.
I inject sc roughly every other week but am going to try every week. I’ve read that necessary to take folic acid ( various ideas on this re amounts) but do you take other vitamins especially B vitamins on a regular basis? Also recommendations re potassium intake? Any other nutritional advice welcome.
smg1950
in
Pernicious Anaemia Society
1 year ago
Iron Deficiency
Are many people diagnosed with PV Iron deficient at the time of diagnosis? I’ve read on the internet that almost everyone with PV is iron deficient at time of diagnosis (hence the low ferritin) and that phlebotomy makes the iron deficiency worse. My heam told me I was iron deficient before even starting
Are many people diagnosed with PV Iron deficient at the time of diagnosis? I’ve read on the internet that almost everyone with PV is iron deficient at time of diagnosis (hence the low ferritin) and that phlebotomy makes the iron deficiency worse. My heam told me I was iron deficient before even starting
Hereforalongtime
in
MPN Voice
1 year ago
Bit confused and overwhelmed
Hello, Thanks for being there! Recently given advice from GP to start B12 tablets over the counter but told I may need injections in 3 months time after being retested. Beyond exhausted and struggling to go to work, rest of my life on pause for now. After 2 weeks went back and now started on loading
Hello, Thanks for being there! Recently given advice from GP to start B12 tablets over the counter but told I may need injections in 3 months time after being retested. Beyond exhausted and struggling to go to work, rest of my life on pause for now. After 2 weeks went back and now started on loading
Bequia
in
Pernicious Anaemia Society
1 year ago
Is it worth having a private iron panel done when the NHS results can be so different?
Whom should I believe? A few months ago (April) I had the results above via Medichecks. Last week these were the NHS results: Serum Iron: 29.5umol/L (14.00 - 30.00umol/L) Serum Ferritin 22 (13.00 - 150.00ug/L) Transferrin Saturation 39 (20.00 - 50.00%) TIBC 76 (50.00 - 72.00) So according to NHS
Whom should I believe? A few months ago (April) I had the results above via Medichecks. Last week these were the NHS results: Serum Iron: 29.5umol/L (14.00 - 30.00umol/L) Serum Ferritin 22 (13.00 - 150.00ug/L) Transferrin Saturation 39 (20.00 - 50.00%) TIBC 76 (50.00 - 72.00) So according to NHS
Alanna012
in
Thyroid UK
1 year ago
Supplements
Hi lovely people. Just a question. In the past, I have had v low iron, folate rock bottom and prob other vitamins low that I never had checked. I have worked a lot on my micro biome/gut this past year plus supplementing continuously. I cut out gluten as leaky gut was diagnosed through a test.
Hi lovely people. Just a question. In the past, I have had v low iron, folate rock bottom and prob other vitamins low that I never had checked. I have worked a lot on my micro biome/gut this past year plus supplementing continuously. I cut out gluten as leaky gut was diagnosed through a test.
FoxyTed
in
Thyroid UK
9 months ago
"Heterogeneous group of anemias"
This appears to be a chapter from a book. It's an organization of "a heterogeneous group of anemias characterized by the presence of large red blood cell precursors called megaloblasts in the bone marrow. This condition is due to impaired DNA synthesis, which inhibits nuclear division...". Therefore
This appears to be a chapter from a book. It's an organization of "a heterogeneous group of anemias characterized by the presence of large red blood cell precursors called megaloblasts in the bone marrow. This condition is due to impaired DNA synthesis, which inhibits nuclear division...". Therefore
WiscGuy
in
Pernicious Anaemia Society
1 year ago
Topamax insomnia?
Keppra made me sick and kept Me up till 4AM So I started topamax. It also seems to Be alerting. Anyone had this side effect go away? Getting Pretty bummed...
Keppra made me sick and kept Me up till 4AM So I started topamax. It also seems to Be alerting. Anyone had this side effect go away? Getting Pretty bummed...
wantokporo
in
Restless Legs Syndrome
1 year ago
So nervous
Hi guys, coming to ask you guys a question but so afraid of a bad answer. You wouldn't believe how I've been shaking and feeling so nervous and worried and not sleeping about my stomach. I've been having this little pin like mild aches in my stomach and these test you have to get with PA drives me up
Hi guys, coming to ask you guys a question but so afraid of a bad answer. You wouldn't believe how I've been shaking and feeling so nervous and worried and not sleeping about my stomach. I've been having this little pin like mild aches in my stomach and these test you have to get with PA drives me up
25092
in
Pernicious Anaemia Society
11 months ago
RE iron tablet recommendations
Hi again I have to get my iron levels up.. I have one perscription from my GP for 305 mg Caps Ferrous fumurate (but when I go to the pharmacies here they only have Galfer which has sooo many horrible ingredients, some of which have been banned in Australia, some euro countries)... And my private Endo
Hi again I have to get my iron levels up.. I have one perscription from my GP for 305 mg Caps Ferrous fumurate (but when I go to the pharmacies here they only have Galfer which has sooo many horrible ingredients, some of which have been banned in Australia, some euro countries)... And my private Endo
ChristinaMay
in
Thyroid UK
9 months ago
waiting for ferritin infusion
I suffer with low iron and often have anaemia. The problem I am having is that when I have my infusion my ferritin goes up to 163 and then it slowly starts dropping I normally get about 6 months before my levels start dropping that I need regular blood tests I start feeling exhausted but I need to
I suffer with low iron and often have anaemia. The problem I am having is that when I have my infusion my ferritin goes up to 163 and then it slowly starts dropping I normally get about 6 months before my levels start dropping that I need regular blood tests I start feeling exhausted but I need to
Jolee91
in
Restless Legs Syndrome
1 year ago
Taking Ferrous Sulphate Exhausts Me, Any Alternatives?
Hi All, In February 2023 I requested a blood test from my GP as I felt generally awful. I had muscle and joint pain, shortness of breath, dizziness, irritability, hair loss, overall skin sensitivity and moderate acne that scarred. I was also losing my evenings as my body was so tired, I’d nap for hours
Hi All, In February 2023 I requested a blood test from my GP as I felt generally awful. I had muscle and joint pain, shortness of breath, dizziness, irritability, hair loss, overall skin sensitivity and moderate acne that scarred. I was also losing my evenings as my body was so tired, I’d nap for hours
Sparklymacarons
in
Pernicious Anaemia Society
1 year ago
I noticed something.
I have done many trials of different amounts and forms of B12. I went over my notes and it could be that when I switched forms there were positive effects when I overlapped forms in that I still had both forms in my blood stream. Emphasis on could be. I have decided to change my self-treating regiment
I have done many trials of different amounts and forms of B12. I went over my notes and it could be that when I switched forms there were positive effects when I overlapped forms in that I still had both forms in my blood stream. Emphasis on could be. I have decided to change my self-treating regiment
WIZARD6787
in
Pernicious Anaemia Society
1 year ago
Hi there , could anyone tell me where to buy methylcobalamine or hydroxocobalamine for self injection. Thank you
I was diagnosed with PA 11 years ago and started to SI just a year ago. My GP will only give me a prescription for 6 vials of hyhydroxocobalamine a year. Could anyone advice me where I can purchase more . Thanks
I was diagnosed with PA 11 years ago and started to SI just a year ago. My GP will only give me a prescription for 6 vials of hyhydroxocobalamine a year. Could anyone advice me where I can purchase more . Thanks
Helliborous
in
Pernicious Anaemia Society
1 year ago
Mrjustatip
Hello, I'm 70 years old. Last week I had a vitamin B12 shot on Monday, and then on Tuesday I saw a hematologist because I wanted to rule out that I'm anemic. He ordered labs (they did them right there on site). A few minutes later, he said I was not anemic and was also probably not B12 deficient. (so
Hello, I'm 70 years old. Last week I had a vitamin B12 shot on Monday, and then on Tuesday I saw a hematologist because I wanted to rule out that I'm anemic. He ordered labs (they did them right there on site). A few minutes later, he said I was not anemic and was also probably not B12 deficient. (so
MrJustatip
in
Pernicious Anaemia Society
1 year ago
B12 deficiency - it’s official! What next?
Thank you to all the kind people who responded to my first enquiry seven months ago - you can see the history here https://healthunlocked.com/pasoc/posts/149321418/should-i-be-asking-for-a-test-for-pa?responses=149357417 After correcting a folate deficiency at the beginning of the year my B12 levels
Thank you to all the kind people who responded to my first enquiry seven months ago - you can see the history here https://healthunlocked.com/pasoc/posts/149321418/should-i-be-asking-for-a-test-for-pa?responses=149357417 After correcting a folate deficiency at the beginning of the year my B12 levels
Realtiger
in
Pernicious Anaemia Society
9 months ago
Ferritin success, anyone wishing to try the same ... especially if vegan
After years with ferritin scraping along bottom of the range it has at last risen, to nearly double and I thought others might like to know to see if the same works for you too. There are two things I have done (after prescribed ferrous fumarate did not resolve the problem), 1) I regularly take
After years with ferritin scraping along bottom of the range it has at last risen, to nearly double and I thought others might like to know to see if the same works for you too. There are two things I have done (after prescribed ferrous fumarate did not resolve the problem), 1) I regularly take
thyr01d
in
Thyroid UK
1 year ago
My evaluation of which form of B12 is best.
The best form of B12 is not known. What is in fashion is different in different countries. Supply, what has been used before, difficulty storing, profit, etc. It is also the newest and that is often seen as better. Hydroxocobalamin is often touted as the best. The only justification is that blood tests
The best form of B12 is not known. What is in fashion is different in different countries. Supply, what has been used before, difficulty storing, profit, etc. It is also the newest and that is often seen as better. Hydroxocobalamin is often touted as the best. The only justification is that blood tests
WIZARD6787
in
Pernicious Anaemia Society
1 year ago
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