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New and Unsure about me
Hi I am new here and was wondering about symptoms of Lupus. My doctor is sending me to a rheumatologist to see what he says about my latest blood work. I had a positive ANA but the double strand was negative. My red blood cells are low, I am anemic for no reason, b12, and iron are fine, and the folic
Hi I am new here and was wondering about symptoms of Lupus. My doctor is sending me to a rheumatologist to see what he says about my latest blood work. I had a positive ANA but the double strand was negative. My red blood cells are low, I am anemic for no reason, b12, and iron are fine, and the folic
Tereslove
in
LUpus Patients Understanding and Support
9 years ago
Peter's health
Pete is not doing so well today, he seems to be choking a lot and producing excessive amounts of nasty sticky mucous. He does have his back up antibiotics but hopefully they will not be needed. He feels he bumbles from one thing to another but tries to remain cheerful. The back problem is seemingly being
Pete is not doing so well today, he seems to be choking a lot and producing excessive amounts of nasty sticky mucous. He does have his back up antibiotics but hopefully they will not be needed. He feels he bumbles from one thing to another but tries to remain cheerful. The back problem is seemingly being
sassy59
in
Lung Conditions Community Forum
9 years ago
Spinal Cord Stimulation
I need to recharge… Following the unsuccessful procedure I underwent at the end of November (Stellate Ganglion injections), my consultant from the pain clinic presented the future options, one of which had never been indicated before. I hadn’t really been listening to what he was saying until my ears
I need to recharge… Following the unsuccessful procedure I underwent at the end of November (Stellate Ganglion injections), my consultant from the pain clinic presented the future options, one of which had never been indicated before. I hadn’t really been listening to what he was saying until my ears
ecnico15
in
Pain Concern
9 years ago
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NY Attorney General accuses major retailers of selling contaminated, substituted and falsely labelled herbal supplements
On the basis of DNA barcoding technology tests conducted on top-selling store brands of herbal supplements at four national retailers in New York State — GNC, Target, Walgreens and Walmart, the New York State attorney general’s office has demanded that the retailers remove the products from their shelves
On the basis of DNA barcoding technology tests conducted on top-selling store brands of herbal supplements at four national retailers in New York State — GNC, Target, Walgreens and Walmart, the New York State attorney general’s office has demanded that the retailers remove the products from their shelves
AussieNeil
Partner
in
CLL Support
9 years ago
Clotting question
I have been taking a natto k enzyme (helps with sticky blood) since rheumy said my bloodwork even though I had a positive ANA, doesn't mean I have lupus and said because I can bike ride far, I do not have lupus. My question is, for anyone that has clotty blood from SLE could it be that when I have several
I have been taking a natto k enzyme (helps with sticky blood) since rheumy said my bloodwork even though I had a positive ANA, doesn't mean I have lupus and said because I can bike ride far, I do not have lupus. My question is, for anyone that has clotty blood from SLE could it be that when I have several
Natura
in
LUPUS UK
9 years ago
Natural Cures/Assistance & Help For Anxiety
There's a lot of people who come on here to vent and ask for assistance on coping with the overall symptoms of anxiety, which is obviously what's going to be the case as this is an anxiety support forum, however, why don't we share our knowledge of what we use to relieve our symptoms, without the use
There's a lot of people who come on here to vent and ask for assistance on coping with the overall symptoms of anxiety, which is obviously what's going to be the case as this is an anxiety support forum, however, why don't we share our knowledge of what we use to relieve our symptoms, without the use
chrisb123
in
Anxiety Support
9 years ago
Fibromyalgia? and more tests
Well, saw a fourth GP yesterday. My first GP who'd sent me to the neuro has left, the second was a guy who clearly didn't care and told me all my tests were 'clear' and when I looked at the screen and asked why one was 'flagged' he said 'oh yes, your vitamin D is low', the third just sent me away with
Well, saw a fourth GP yesterday. My first GP who'd sent me to the neuro has left, the second was a guy who clearly didn't care and told me all my tests were 'clear' and when I looked at the screen and asked why one was 'flagged' he said 'oh yes, your vitamin D is low', the third just sent me away with
achydunlin
in
LUPUS UK
9 years ago
Does Pegylated interferon alfa-2a cure ET? Some paper show yes. Is this credible?
I found a paper Quintás-Cardama A, Kantarjian H, Manshouri T, et al. Pegylated interferon alfa-2a yields high rates of hematologic and molecular response in patients with advanced essential thrombocythemia and polycythemia vera[J]. Journal of Clinical Oncology, 2009, 27(32): 5418-5424. This show the
I found a paper Quintás-Cardama A, Kantarjian H, Manshouri T, et al. Pegylated interferon alfa-2a yields high rates of hematologic and molecular response in patients with advanced essential thrombocythemia and polycythemia vera[J]. Journal of Clinical Oncology, 2009, 27(32): 5418-5424. This show the
Midas_
in
MPN Voice
9 years ago
Further Blood test inc B12
Please can anyone help with most recent blood test, thanks Haemoglobin concentration - 133.0 g/L (120.0 - 160.0) Total white blood count - 6.5 10*9/L (4.0 - 11.0) Platelet count - 252 10*9/L (150.0 - 400.0) Red blood cell count - 4.67 10*12/L (4.0 - 5.2) Haematocrit - 0.406 (0.36 - 0.46) Mean cell volume
Please can anyone help with most recent blood test, thanks Haemoglobin concentration - 133.0 g/L (120.0 - 160.0) Total white blood count - 6.5 10*9/L (4.0 - 11.0) Platelet count - 252 10*9/L (150.0 - 400.0) Red blood cell count - 4.67 10*12/L (4.0 - 5.2) Haematocrit - 0.406 (0.36 - 0.46) Mean cell volume
pamj-
in
Thyroid UK
9 years ago
Stopped taking all meds
Hi, I am after some advice. I was diagnosed with sle January 2012 after years of joint pain, rash and fatigue. I was prescribed hydroxychloroquine 400mg daily. It made no difference so I was prescribed methotrexate 17.5mg. Again it made no difference. Over the summer things were pretty bad so I was also
Hi, I am after some advice. I was diagnosed with sle January 2012 after years of joint pain, rash and fatigue. I was prescribed hydroxychloroquine 400mg daily. It made no difference so I was prescribed methotrexate 17.5mg. Again it made no difference. Over the summer things were pretty bad so I was also
Mandymerritt
in
LUPUS UK
9 years ago
What to expect
Hi I am new to the community and would welcome any self help advice also what to expect. I had an infection and sepsis 18months ago following this I felt constantly tired and aching joints following several tests it was determined I was ANA positive so referred to a rheumatologist. I continue to be
Hi I am new to the community and would welcome any self help advice also what to expect. I had an infection and sepsis 18months ago following this I felt constantly tired and aching joints following several tests it was determined I was ANA positive so referred to a rheumatologist. I continue to be
butch54
in
Scleroderma & Raynaud's UK (SRUK)
9 years ago
Lupus? Any Advice??
I have a couple of questions about this. I had 2 positive ANA tests and 2 negative. The drs all mentioned lupus. It started when i couldnt use either of my hands, even to lift a drink to my mouth and my arm dr checked my ANA and asked if i knew of lupus. (then followed was hemotologist) not ONE has said
I have a couple of questions about this. I had 2 positive ANA tests and 2 negative. The drs all mentioned lupus. It started when i couldnt use either of my hands, even to lift a drink to my mouth and my arm dr checked my ANA and asked if i knew of lupus. (then followed was hemotologist) not ONE has said
gemini2tru
in
LUPUS UK
9 years ago
Loss of sense of smell
I suddenly realised about 18 months ago that I have lost some of my sense of smell. This started with bleach and cat pee (!!) but has gradually got worse until when I was out with my Mum a couple of weeks ago I realised I couldn't smell the flowers she was raving about :( Similarly my sense of taste
I suddenly realised about 18 months ago that I have lost some of my sense of smell. This started with bleach and cat pee (!!) but has gradually got worse until when I was out with my Mum a couple of weeks ago I realised I couldn't smell the flowers she was raving about :( Similarly my sense of taste
ShellyB1
in
LUPUS UK
10 years ago
Yet Another "New Kid"
So I don't know if it matters, but I noticed through my reading that most of the posters are in the UK. I am in the US and have been reading the boards for a bit while I waited for the rest of my results to come in and for the final confirmation. I was informed on January 8th by my gastroenterologist
So I don't know if it matters, but I noticed through my reading that most of the posters are in the UK. I am in the US and have been reading the boards for a bit while I waited for the rest of my results to come in and for the final confirmation. I was informed on January 8th by my gastroenterologist
jmanderson1984
in
PBC Foundation
10 years ago
St. John's wort / hyperthroidism
Can you take St. John's wort while taking carbimazole for hyperthyroidism I have just been diagnosed?
Can you take St. John's wort while taking carbimazole for hyperthyroidism I have just been diagnosed?
Jadejade
in
Thyroid UK
10 years ago
Now what?
Following on my 'pushed pillar to post' post. Have seen my GP who confirms I have an auto-immune response throughout my nervous system - inflammation in my CNS apparently but they don't know what. They found O bands in my spinal fluid which may/may not be MS (my neurologist had ruled it out after clear
Following on my 'pushed pillar to post' post. Have seen my GP who confirms I have an auto-immune response throughout my nervous system - inflammation in my CNS apparently but they don't know what. They found O bands in my spinal fluid which may/may not be MS (my neurologist had ruled it out after clear
achydunlin
in
LUPUS UK
10 years ago
Lupus?
I've have had positive ANA for over two years and other symptoms and have been on medication for Lupus im now confused as when I had a check up the other day the specialist said it might not be lupus but also told me my blood test is showing that there's a problem with my Liver so I've now got to see
I've have had positive ANA for over two years and other symptoms and have been on medication for Lupus im now confused as when I had a check up the other day the specialist said it might not be lupus but also told me my blood test is showing that there's a problem with my Liver so I've now got to see
steph1
in
LUPUS UK
10 years ago
Positive ANA&Positive DsDna/ Negative ANA & Positive DdDna
Hello everyone, I am from the United Statesand saw your blog and thought I'd join. I am 33 recently had tests done positive ANA positive DsDna then sent to rheumatologist who retested Neg ANA and slightly higher still positive DsDna. I have a lot of the symptoms of SLE my mother also has and was diagnosed
Hello everyone, I am from the United Statesand saw your blog and thought I'd join. I am 33 recently had tests done positive ANA positive DsDna then sent to rheumatologist who retested Neg ANA and slightly higher still positive DsDna. I have a lot of the symptoms of SLE my mother also has and was diagnosed
Stormyweather541
in
LUPUS UK
10 years ago
Unsure if have lupus
Hi, I'd be grateful for any advise as I'm feeling really stuck. I saw gp back in sept as had been suffering bad fatigue, migraine type headaches aggravated by light, muscle aches and feeling really down, this had been ongoing for 2-3 months after bad chest infection and I was also pregnant at the time
Hi, I'd be grateful for any advise as I'm feeling really stuck. I saw gp back in sept as had been suffering bad fatigue, migraine type headaches aggravated by light, muscle aches and feeling really down, this had been ongoing for 2-3 months after bad chest infection and I was also pregnant at the time
mrs_t
in
LUpus Patients Understanding and Support
10 years ago
Anyone here take St. Johns Wort or Kalms?
I suffer with Atrial Fibrillation and am currently taking daily doses of Amiodorone 200mg, Bisoprolol 3.75mg and Warfarin 3.5mg - I have been feeling extremely stressed and a little low recently and want to take something to help me through this difficult period. Ihave been prescribed Diazepam for several
I suffer with Atrial Fibrillation and am currently taking daily doses of Amiodorone 200mg, Bisoprolol 3.75mg and Warfarin 3.5mg - I have been feeling extremely stressed and a little low recently and want to take something to help me through this difficult period. Ihave been prescribed Diazepam for several
joebob
in
AF Association
10 years ago
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