Scleroderma & Raynaud's UK (SRUK)
6,789 members3,213 posts

What to expect


I am new to the community and would welcome any self help advice also what to expect. I had an infection and sepsis 18months ago following this I felt constantly tired and aching joints following several tests it was determined I was ANA positive so referred to a rheumatologist. I continue to be ANA positive and SCL70 positive, I have also developed raynauds. I also appear to have developed a gluten intolerance. The specialist states I do not hit the criteria for a diagnosis of scleroderma but he has put me hydroxychloroquine to help with joint pain which I have been on for the last 5 weeks. I presently have tendon pain in the hips and ankle and pins and needles. I am not taking pain killers and have been on.a self imposed gluten free diet which I find is helping. So how can I help fatigue and tendon pain and am I likely to develop full blown scleroderma. I work full time and want to be able to manage this and work. Thanks in anticipation.

2 Replies

hi Butch54 your post sounds very much like me,I was diagnosed with secondary raynaunds 2 years ago with a positive ANA after i was ill with flu and a chest infection,my fingers and toes all swelled and i was soooo tired and cold all the time.I have nifedipine for the raynaunds and the last time i saw my rheumatologist she gave me hydroxychloroquine as my knees, ankles and knuckle joints on my hands are affected.I wish i had the answers about the fatigue all i can say is listen to your body and rest when you can,(its hard to realise your body and energy levels are not the same as before) I worked full time and now i can only work part time and had to change career. So far its just raynaunds showing in my blood tests my rheumatologist has mentioned MCTD( mixed connective tissue disease) i get the results next time i see her, i asked is anything else going to develope? she replied its possible!!.so who knows what the future will bring. Sorry I do not have the answers to your questions but you are not alone ,look after yourself, keep yourself warm and rest when you can, take care vic78


Thanks Vic78

The hydroxy appears to have kicked in a feeling quite good at present. Have to wait for the next rheumy appointment


You may also like...