So I don't know if it matters, but I noticed through my reading that most of the posters are in the UK. I am in the US and have been reading the boards for a bit while I waited for the rest of my results to come in and for the final confirmation. I was informed on January 8th by my gastroenterologist that they have confirmed PBC. There may be other factors at play in my case, but that remains to be seen. As a quick breakdown my labs are
Alk Phos: 151 (High was 248, low was 95)
ANA: Centromere pattern 1:320 titer
AMA: 87.3 U
GGTP: 76 IU/L
Liver biopsy report also states that it supports PBC. I have been referred to a hepatologist at another major hospital (Johns Hopkins) about an hour and a half away from where I live for further consultation.
Does anyone currently posting deal with gallbladder issues on top of the liver issues? I had a HIDA scan last week and found out that my gallbladder is also basically nonfunctioning. Ironically the reason that the PBC was discovered is the pain that I have when I am eating which seems to be the chronic cholecystititis and biliary dyskenisia I am dealing with.
So my GI doc says my liver isn't behaving and starts the Urso with the consult to the hepatologist, my PCP says my gallbladder isn't playing nice and has to be removed so gives me the surgical referral, and on top of that I have to see a rheumatologist to rule out any other autoimmune conditions. They seem especially fascinated by a red rash that showed up on the back of my one hand around the time I started getting so sick. It feels like my whole body has just decided to give up at once.