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Very Upset and Confused
Hello everyone As many of you already know I have been formally diagnosed with Undifferentiated Connective Tissue Disease which is Lupus like. I have most of the Lupus SLE symptoms: positive ANA, thrombocytopenia, malar rash, other rashes, joint pain (feet, ankles, knees, elbows, wrists, hands), headaches
Hello everyone As many of you already know I have been formally diagnosed with Undifferentiated Connective Tissue Disease which is Lupus like. I have most of the Lupus SLE symptoms: positive ANA, thrombocytopenia, malar rash, other rashes, joint pain (feet, ankles, knees, elbows, wrists, hands), headaches
Crazy_Cat_Woman
in
LUPUS UK
5 years ago
Update on Labs
As a result of some of the helpful comments from fellow warriors I began tracking the blood levels below in addition to my compulsive monthly focus on PSA. The oncologist has had me getting a comprehensive metabolic test every 2 weeks for the first 3 months on Zytiga to see how it affects the kidneys
As a result of some of the helpful comments from fellow warriors I began tracking the blood levels below in addition to my compulsive monthly focus on PSA. The oncologist has had me getting a comprehensive metabolic test every 2 weeks for the first 3 months on Zytiga to see how it affects the kidneys
Philly13
in
Advanced Prostate Cancer
5 years ago
My Cancer Is Going Strong & A Warning
First, the warning. A week ago, I was in the airport in Bucharest, Romania after finishing a Danube river cruise. I set off an alarm and was taken out of line for a Geiger counter check. Five weeks after my VISION Lu-177 infusion and I was still radioactive! Romania had a radiation terrorist attack
First, the warning. A week ago, I was in the airport in Bucharest, Romania after finishing a Danube river cruise. I set off an alarm and was taken out of line for a Geiger counter check. Five weeks after my VISION Lu-177 infusion and I was still radioactive! Romania had a radiation terrorist attack
Stegosaurus37
in
Advanced Prostate Cancer
5 years ago
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What does this result mean please can anyone help
Hi hope someone can help I had thyroid blood test and results came back saying Abnormal need to speak with doctor ,they have booked me appointment by phone on 15 sept.my results were as follows TSH level 0.081 miu/L ( 0.38-5.33) says below low reference limit.T4 level 10.3 pmol/L ( 7.0-16.0) serum free
Hi hope someone can help I had thyroid blood test and results came back saying Abnormal need to speak with doctor ,they have booked me appointment by phone on 15 sept.my results were as follows TSH level 0.081 miu/L ( 0.38-5.33) says below low reference limit.T4 level 10.3 pmol/L ( 7.0-16.0) serum free
jessiejakes
in
Thyroid UK
5 years ago
What kind of Alk Phos numbers suggest bone mets?
Are numbers markedly elevated when there are bone mets or just higher than ones " usual " ie... substantially out of range... or just elevated substantially relative to ones historical readings
Are numbers markedly elevated when there are bone mets or just higher than ones " usual " ie... substantially out of range... or just elevated substantially relative to ones historical readings
Tommyj2
in
Advanced Prostate Cancer
5 years ago
Looking for data-
Looking for data-currently on taxotere and just finished 3rd infusion- Sharp increase over 200 points in Alk pho’s and AST, ALT. Yes I have bone and liver Mets- but this is second rechallenge with Taxotere after first in 2016- numerous treatments- Xofigo Xtandi Zytiga - You would think if taxotere is
Looking for data-currently on taxotere and just finished 3rd infusion- Sharp increase over 200 points in Alk pho’s and AST, ALT. Yes I have bone and liver Mets- but this is second rechallenge with Taxotere after first in 2016- numerous treatments- Xofigo Xtandi Zytiga - You would think if taxotere is
DSEE
in
Advanced Prostate Cancer
5 years ago
Enzalutamide + Abiraterone Acetate in Bone CRPC
New study below [1]. Abiraterone [Zytiga, Abi] & Enzalutamide [Xtandi, Enza] both target the androgen receptor [AR] axis, with Abi limiting the supply of androgens & Enza restricting access to the AR itself. It might seem worthwhile to combine the two, but that would depend on how effective the drugs
New study below [1]. Abiraterone [Zytiga, Abi] & Enzalutamide [Xtandi, Enza] both target the androgen receptor [AR] axis, with Abi limiting the supply of androgens & Enza restricting access to the AR itself. It might seem worthwhile to combine the two, but that would depend on how effective the drugs
pjoshea13
in
Advanced Prostate Cancer
5 years ago
Positive ANA test result today now waiting to see Dr
Hi, I’m new here and after a little bit of advice. I’m 38 and had a miscarriage at 7 weeks back in April. After the initial grief I read that there can be a link between lupus and miscarriage. My mum has lupus SLE and has since I was a child. I was tested In my teens and twenties (no idea what bloods
Hi, I’m new here and after a little bit of advice. I’m 38 and had a miscarriage at 7 weeks back in April. After the initial grief I read that there can be a link between lupus and miscarriage. My mum has lupus SLE and has since I was a child. I was tested In my teens and twenties (no idea what bloods
Ilovechips81
in
LUPUS UK
5 years ago
Latest labs look good?
Here's the deal. I've felt terrible since June 2017 when I was diagnosed with postpartum thyroiditis. I likely had Hashimotos for many years prior but wasn't ever diagnosed. At the time of dx, my TSH was over 100 and free levels were tanked. Symptoms flooded in over the following months including crushing
Here's the deal. I've felt terrible since June 2017 when I was diagnosed with postpartum thyroiditis. I likely had Hashimotos for many years prior but wasn't ever diagnosed. At the time of dx, my TSH was over 100 and free levels were tanked. Symptoms flooded in over the following months including crushing
crw2ddd
in
Thyroid UK
5 years ago
Understanding the Role of Polyautoimmunity in Rheumatic Diseases
Understanding the Role of Polyautoimmunity in Rheumatic Diseases Linda Peckel July 16, 2019 An estimated 5 percent of the world’s population is diagnosed with one of a group of heterogeneous autoimmune rheumatic diseases (ARDs) including systemic lupus erythematosus (SLE), rheumatoid arthritis (RA)
Understanding the Role of Polyautoimmunity in Rheumatic Diseases Linda Peckel July 16, 2019 An estimated 5 percent of the world’s population is diagnosed with one of a group of heterogeneous autoimmune rheumatic diseases (ARDs) including systemic lupus erythematosus (SLE), rheumatoid arthritis (RA)
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 years ago
St. John's wort and levothroxine
Hi I am on levothyroxine 75mcg and recently has a lot of stress and worry, feeling a bit depressed most days:( has anyone took St. John's wort while in levothyroxine? If so how did you find it? Any issues? Thank you as always
Hi I am on levothyroxine 75mcg and recently has a lot of stress and worry, feeling a bit depressed most days:( has anyone took St. John's wort while in levothyroxine? If so how did you find it? Any issues? Thank you as always
richard123
in
Thyroid UK
5 years ago
Advice on an MO at Johns Hopkins?
I am going to be in Baltimore in a couple of weeks and am thinking it might be a good idea to try to schedule a consultation. I live in Utah, am a physician who did pediatric residency at Johns Hopkins long ago, don’t know anyone outside of pediatrics there now. I have CHEK2c1100 deletion (blood test
I am going to be in Baltimore in a couple of weeks and am thinking it might be a good idea to try to schedule a consultation. I live in Utah, am a physician who did pediatric residency at Johns Hopkins long ago, don’t know anyone outside of pediatrics there now. I have CHEK2c1100 deletion (blood test
Milkweed
in
Advanced Prostate Cancer
5 years ago
Pain clinic fail.....😖 (long rant sorry)
I had an appointment with the pain clinic consultant last week after being seen by his registrar to get my pain medication sorted out. I’ve had chronic pain since a spontaneous Sacral fracture five years ago. I take Naproxen, Nortriptyline, Co-Codamol and Butrans patches. These had all been prescribed
I had an appointment with the pain clinic consultant last week after being seen by his registrar to get my pain medication sorted out. I’ve had chronic pain since a spontaneous Sacral fracture five years ago. I take Naproxen, Nortriptyline, Co-Codamol and Butrans patches. These had all been prescribed
Toplady
in
Pain Concern
5 years ago
GRAVES AND THYROTOXICOSIS : GASTROINTESTINAL FINDINGS
Graves’ Disease and the Manifestations of Thyrotoxicosis DeGroot LJ. https://www.ncbi.nlm.nih.gov/books/NBK285567/ GASTROINTESTINAL FINDINGS The appetite is characteristically increased. The effect of this increase is to offset, in part (sometimes completely), the loss of weight that might be expected
Graves’ Disease and the Manifestations of Thyrotoxicosis DeGroot LJ. https://www.ncbi.nlm.nih.gov/books/NBK285567/ GASTROINTESTINAL FINDINGS The appetite is characteristically increased. The effect of this increase is to offset, in part (sometimes completely), the loss of weight that might be expected
ling
in
Thyroid UK
5 years ago
Need your opinion on today's bloodwork.
Okay, So as mentioned before, I am aggressively loosing weight to deal with my liver disease. I have been on an all liquid diet for a month an half and on average I have been losing 7lbs a week since. Since my Fibroscan test in April, (where I was around 350lbs), I am not around 258lbs. I am slated
Okay, So as mentioned before, I am aggressively loosing weight to deal with my liver disease. I have been on an all liquid diet for a month an half and on average I have been losing 7lbs a week since. Since my Fibroscan test in April, (where I was around 350lbs), I am not around 258lbs. I am slated
Johnnyjaundice
in
Living with Fatty Liver and NASH
5 years ago
Auto antibody +2nd FET +long DOWNREG
Finally we had an appointment to see our consultant after only one embryo came back normal. He has advised us to have a new protocol for the next cycle. I had a few blood test done at the clinic for thyroid function and auto antibody profile. The thyroid function came back okay but the auto Ab profile
Finally we had an appointment to see our consultant after only one embryo came back normal. He has advised us to have a new protocol for the next cycle. I had a few blood test done at the clinic for thyroid function and auto antibody profile. The thyroid function came back okay but the auto Ab profile
savido1
in
Fertility Network UK
5 years ago
Early DM
Not diagnosed yet, but have signs, grottons sign on knuckles, mechanics fingers( think on feet too) rash in scalp very itchy, flushing on face that lasts for 24hrs then disappears ,rapid weight gain, breathlessness, which makes my temperature hot & weakness in back of thighs that is worse some days
Not diagnosed yet, but have signs, grottons sign on knuckles, mechanics fingers( think on feet too) rash in scalp very itchy, flushing on face that lasts for 24hrs then disappears ,rapid weight gain, breathlessness, which makes my temperature hot & weakness in back of thighs that is worse some days
Catpuss66
in
Myositis UK
5 years ago
Advanced Metastatic PC-Cervical Lymph node involvement
Hello All! I am active on other sites/forums but in need of some help/advice. Hubby dx at 44 yrs in April of 2017. Extensive mets to bones and lymph nodes. Diagnosed based on enlarged cervical lymph node above the clavicle on the left side of his neck. Completed 6 cycles of , takes daily casodex with
Hello All! I am active on other sites/forums but in need of some help/advice. Hubby dx at 44 yrs in April of 2017. Extensive mets to bones and lymph nodes. Diagnosed based on enlarged cervical lymph node above the clavicle on the left side of his neck. Completed 6 cycles of , takes daily casodex with
Bird8
in
Advanced Prostate Cancer
5 years ago
Rheumatology appointment - not sure what to expect
I'm very new to this, so apologies in advance for being a bit clueless! I had a blood test done for ANA back in the spring and it came back positive, as did some of the subsequent ENAs. I'm not absolutely sure why the blood tests were done, except that my FBC kept coming back with a very low WCC. Anyway
I'm very new to this, so apologies in advance for being a bit clueless! I had a blood test done for ANA back in the spring and it came back positive, as did some of the subsequent ENAs. I'm not absolutely sure why the blood tests were done, except that my FBC kept coming back with a very low WCC. Anyway
November90
in
LUPUS UK
5 years ago
Advice on confusing results
I would really appreciate one of you lovely forumites giving me feed back on these blood results please? After waiting 4.5 weeks to see a GP and going armed with an ammo of facts and figures all gleaned from previous posts, advice, suggested links and personal research I was bowled over to finally find
I would really appreciate one of you lovely forumites giving me feed back on these blood results please? After waiting 4.5 weeks to see a GP and going armed with an ammo of facts and figures all gleaned from previous posts, advice, suggested links and personal research I was bowled over to finally find
ILR2019
in
Thyroid UK
5 years ago
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