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Should I take this Urso?
Went to gp today to ask about the itching I get on a night time. I have PBC/AIH crossover. Doc gave me some Urso to take at night, but I always read the information leaflet and it says "Do not take if you have any other liver condition than PBC. My dilemma now is should I take them or not....I am
Went to gp today to ask about the itching I get on a night time. I have PBC/AIH crossover. Doc gave me some Urso to take at night, but I always read the information leaflet and it says "Do not take if you have any other liver condition than PBC. My dilemma now is should I take them or not....I am
Alley27
in
PBC Foundation
12 years ago
Race for life!!!!! WOOOHOOO! well I never thought I'd say that!
Well... I only bloomin well DID IT! :-) yup! Thats me with my daughter in the picture! I must say I did have to walk after the 3 k mark for about a minute and then again just before the 500km mark again, but I RAN most of the way! I went in the joggers section...not at all confident about the pain in
Well... I only bloomin well DID IT! :-) yup! Thats me with my daughter in the picture! I must say I did have to walk after the 3 k mark for about a minute and then again just before the 500km mark again, but I RAN most of the way! I went in the joggers section...not at all confident about the pain in
ClaireB1973
Graduate
in
Couch to 5K
12 years ago
Why Me?..
Does anyone else think that sometimes maybe life isn't worth living for. Everyday i go through the same thing over and over again, Sleep, school, put on lotion, sleep etc. I hate not being really pretty like the other girls at school and wearing slutty shorts and tank tops showing off their body's, at
Does anyone else think that sometimes maybe life isn't worth living for. Everyday i go through the same thing over and over again, Sleep, school, put on lotion, sleep etc. I hate not being really pretty like the other girls at school and wearing slutty shorts and tank tops showing off their body's, at
Gabbyeva54
Volunteer
in
MY SKIN
12 years ago
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Anxiety back again :(
Hi everyone im new to this site feel quite relieved to see im not the only one. I find it hard to talk about my feelings and think i keep things bottled up too long so thought writing about it might be easier. i think i have always been a nervous/ anxious / shy person since i was a child. Would always
Hi everyone im new to this site feel quite relieved to see im not the only one. I find it hard to talk about my feelings and think i keep things bottled up too long so thought writing about it might be easier. i think i have always been a nervous/ anxious / shy person since i was a child. Would always
tash21
in
Anxiety Support
12 years ago
Hysterectomy done now the HRT decision
So after many sleepless nights due to the pain of endo & the worry I finally had my hysterectomy last wednesday, including removal of my ovaries & tubes. I must admitt I am in nowhere near as much pain as i thought i would be & i am feeling more positive & optemistic than i have done in years so hopefully
So after many sleepless nights due to the pain of endo & the worry I finally had my hysterectomy last wednesday, including removal of my ovaries & tubes. I must admitt I am in nowhere near as much pain as i thought i would be & i am feeling more positive & optemistic than i have done in years so hopefully
CLS1
in
Endometriosis UK
12 years ago
My diagnosis
Hi all, I am new to the site and this is the second time I have tried to post this so fingers crossed it works this time! I suffered a DVT back in 1998 when my two boys were 1 1/2 and 3 1/2 respectively so a surprise to everyone that with all that running around and as a non-smoker I'd be a candidate
Hi all, I am new to the site and this is the second time I have tried to post this so fingers crossed it works this time! I suffered a DVT back in 1998 when my two boys were 1 1/2 and 3 1/2 respectively so a surprise to everyone that with all that running around and as a non-smoker I'd be a candidate
Hidden
in
Hughes Syndrome APS Forum
12 years ago
First Aid for Choking.
My mother, who is 82, was recently diagnosed and now lives with me. She frequently coughes, wheezes and breathes heavily, especially at night. I am very frightened that she will choke and I won't know how to help her. Is there any official first-aid approach for PSP-type choking that I should know
My mother, who is 82, was recently diagnosed and now lives with me. She frequently coughes, wheezes and breathes heavily, especially at night. I am very frightened that she will choke and I won't know how to help her. Is there any official first-aid approach for PSP-type choking that I should know
AmandaF
in
PSP Association
12 years ago
Looking for Cryoglobulinemia sufferers
Hey, i have recently returned to the UK after 6 years in NZ having being diagnosed with SLE and mixed Cryoglobulinemia, I am looking for anyone who is also suffering with Cryo. Please get in touch i;d love to hear from you. Many thanks Hels
Hey, i have recently returned to the UK after 6 years in NZ having being diagnosed with SLE and mixed Cryoglobulinemia, I am looking for anyone who is also suffering with Cryo. Please get in touch i;d love to hear from you. Many thanks Hels
helsnz34
in
LUPUS UK
12 years ago
Temporary Sleep Aid
I once sought psychological comfort for this depressing disorder and told them that getting to sleep was difficult for me. I'm not too fond of a lot of meds and especially sleep aids so it was suggested that I try benadryl, it works and to continue its effectiveness I alter the dosage from week to week
I once sought psychological comfort for this depressing disorder and told them that getting to sleep was difficult for me. I'm not too fond of a lot of meds and especially sleep aids so it was suggested that I try benadryl, it works and to continue its effectiveness I alter the dosage from week to week
painB4painafter
in
Fibromyalgia Action UK
12 years ago
Does phlebitis in surface veins show up in an ultrasound?
I have had a couple of leg venous ultrasounds, which I passed with flying colors, in the past year. But recent developments -- pain goes away with higher INR, the stronger the leg muscles get, now that I have returned to exercise and PT --the less pain in my legs I feel -- All suggest that the DVT-like
I have had a couple of leg venous ultrasounds, which I passed with flying colors, in the past year. But recent developments -- pain goes away with higher INR, the stronger the leg muscles get, now that I have returned to exercise and PT --the less pain in my legs I feel -- All suggest that the DVT-like
GinaD
in
Hughes Syndrome APS Forum
12 years ago
What type of doctors do u see?
Hi, I was wondering what type of specialist do you all see? I have a wonderful pulmonary doctor that monitors my inr and warfarin. I really liked the hematologist, but I only seen him once. It looks like the doctor I see the most is the one I like the least and that is the rheumatologist. I really
Hi, I was wondering what type of specialist do you all see? I have a wonderful pulmonary doctor that monitors my inr and warfarin. I really liked the hematologist, but I only seen him once. It looks like the doctor I see the most is the one I like the least and that is the rheumatologist. I really
KellyO
in
Hughes Syndrome APS Forum
13 years ago
Can someone help me with symptoms? Is is possible to be on Heparin and Warfarin and still experience awful symptoms? Help please.
I suffered a massive DVT in 2003 that almost killed me. Had another in 2009. Finally diagnosed with APS in 2010. Have been on Coumadin, but now realize I was experiencing symptoms all along that may be related to APS. I am wondering if others have had the problems I'm having. In the last week my INR
I suffered a massive DVT in 2003 that almost killed me. Had another in 2009. Finally diagnosed with APS in 2010. Have been on Coumadin, but now realize I was experiencing symptoms all along that may be related to APS. I am wondering if others have had the problems I'm having. In the last week my INR
TheKid
in
Hughes Syndrome APS Forum
13 years ago
Anybody gone from warfarin back to fragmin?
I am wondering whether to ask if I can try going back to fragmin alone. I have been on warfarin for 6 years and right now it is driving me nuts. I think I am in peri menopause and my INR changes everyday. So I am always testing and adjusting my doses. And actually I really want to be able to eat foods
I am wondering whether to ask if I can try going back to fragmin alone. I have been on warfarin for 6 years and right now it is driving me nuts. I think I am in peri menopause and my INR changes everyday. So I am always testing and adjusting my doses. And actually I really want to be able to eat foods
Jade
in
Hughes Syndrome APS Forum
13 years ago
Do I have Hughes Syndrome? Details below.
In 2002 I had a femoral DVT (I had not been on a long haul flight). Warfarin was prescribed for 6 months. After this period test were carried out to determine the cause. I was told I have Thrombophilia (prothombin 20210) and have been put on warfarin for life.Thankfully since taking warfarin I no longer
In 2002 I had a femoral DVT (I had not been on a long haul flight). Warfarin was prescribed for 6 months. After this period test were carried out to determine the cause. I was told I have Thrombophilia (prothombin 20210) and have been put on warfarin for life.Thankfully since taking warfarin I no longer
JoyceyMee33
in
Hughes Syndrome APS Forum
13 years ago
'Funny Turns' and Hughes Syndrome
Having been diagnosed with Hughes Syndrome in 2002 (main symptoms: numb fingers, blind spots, migraines, dizziness, unsteady gait, speach and memory problems) and having seen Prof Hughes, then and subsequently, I was tried first with 75mg aspirin (no effect), then Plavix (no effect), then 5,000IU Fragmin
Having been diagnosed with Hughes Syndrome in 2002 (main symptoms: numb fingers, blind spots, migraines, dizziness, unsteady gait, speach and memory problems) and having seen Prof Hughes, then and subsequently, I was tried first with 75mg aspirin (no effect), then Plavix (no effect), then 5,000IU Fragmin
Manofmendip
in
Hughes Syndrome APS Forum
12 years ago
APS is associated with transverse myelitis
Transverse myelitis or TM may be a clinical presentation of APS according to doctors, Hehdi, Uthman and Khamashta. One symptom associated with TM is neuromyelitis optica which causes eye pain. One can be tested for an antibody marker called NMO-igG. Personally, I am trying to distinguish symptoms of
Transverse myelitis or TM may be a clinical presentation of APS according to doctors, Hehdi, Uthman and Khamashta. One symptom associated with TM is neuromyelitis optica which causes eye pain. One can be tested for an antibody marker called NMO-igG. Personally, I am trying to distinguish symptoms of
haley
in
Hughes Syndrome APS Forum
12 years ago
Has anyone had trouble with Seborrheic dermatitis?
I have a rash on my face which dermatologist diagnosed as seborrheic dermatitis....seems this is a side effect of PD.
I have a rash on my face which dermatologist diagnosed as seborrheic dermatitis....seems this is a side effect of PD.
BaileyT
in
Cure Parkinson's
13 years ago
Going to have great day
I'm going to get on my mini excerise bike ride down to the beach its so sunny a beautiful day to nice to sit here feeling sorry for myself. When i get there i'm going to wade in the ocean up to my knees to feel the lovely water lapping over my feet. Now my little dog and i will chase the ball up and
I'm going to get on my mini excerise bike ride down to the beach its so sunny a beautiful day to nice to sit here feeling sorry for myself. When i get there i'm going to wade in the ocean up to my knees to feel the lovely water lapping over my feet. Now my little dog and i will chase the ball up and
joss
in
Cure Parkinson's
12 years ago
Poem 4 - DBS - 1 procedure down and 2 to go
Poem 4 The day began before dawn but it wasn’t too bad, I want all to know. I can report - That’s one procedure down but still two more to go. By 9:00 AM I had a few extra holes in the top of my almost bald head. And by Noon, I was home comfy under the covers in my very own bed. The second
Poem 4 The day began before dawn but it wasn’t too bad, I want all to know. I can report - That’s one procedure down but still two more to go. By 9:00 AM I had a few extra holes in the top of my almost bald head. And by Noon, I was home comfy under the covers in my very own bed. The second
FifteenyearsPD
in
Cure Parkinson's
13 years ago
Bad tempers and sleet with an under active thryoid and stressed adrenals
Today, I have gone on to the next phase of treating my underactive thyroid, via a very well known and respected nutritonist/doctor. As I am sure if this calms down some of my other multi conditions might behave a bit better . Today I have a face like a bull dog chewing a wasp and have been slipping
Today, I have gone on to the next phase of treating my underactive thyroid, via a very well known and respected nutritonist/doctor. As I am sure if this calms down some of my other multi conditions might behave a bit better . Today I have a face like a bull dog chewing a wasp and have been slipping
MaryF
Administrator
in
Hughes Syndrome APS Forum
13 years ago
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