Hey, i have recently returned to the UK after 6 years in NZ having being diagnosed with SLE and mixed Cryoglobulinemia, I am looking for anyone who is also suffering with Cryo. Please get in touch i;d love to hear from you.
Many thanks
Hels
Looking for Cryoglobulinemia sufferers: Hey, i have... - LUPUS UK
Looking for Cryoglobulinemia sufferers
Written by
helsnz34
To view profiles and participate in discussions please or .
Read more about...
1 Reply
•
Hi, I'm John from Vasculitis UK. Cryo is a bit exotic, but there is a lady in West Yorkshire who has it. We have a meeting of the Yorkshire Vasculitis Suport Group on Sunday so I'll see if she is there or try to find out who she is.
Not what you're looking for?
You may also like...
does anyone know where to find a flexible job suitable for people with SLE?
Hello everyone,
I hope you all are doing good during this days, I wanted to ask if any of you...
Feelings of disappointment
With having Lupus and a few other conditions, being on steroids and suffering from anxiety and...
Colonoscopy update and thanks
Well I survived! I had sedation and it didn't hurt at all. I agree the worst part was the prep -...
Sun protection. Mineral sun lotion on a budget
Staying protected from UV rays is high on many peoples list this week, with layering and staying...
Opthamology appointment re Hydroxychloroquine
Are any of you going to an Eye hospital for the yearly checks if taking hydroxychloroquine? I’m...
Fatigue has reached a whole other level, after 10.5 years. Scared it’s narcolepsy….
Lupus and Radiotherapy
Hi, looking for information sources if anyone knows of any
