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Newly diagnosed... Here are some obstacles and pitfalls to avoid before you fall into them!
Hello chat room friends and family. I created post a couple years back with help from the wonderful members of this chat room. They helped fill in the gaps that I missed in what turned into a fantastic post that has a timely effect for all the newly diagnosed that deal with this monster we call MS. It
Hello chat room friends and family. I created post a couple years back with help from the wonderful members of this chat room. They helped fill in the gaps that I missed in what turned into a fantastic post that has a timely effect for all the newly diagnosed that deal with this monster we call MS. It
Fancy1959
CommunityAmbassador
in
My MSAA Community
5 years ago
Campral (acamprosate) stopped me drinking :)
Hello all, bit over the top with my title, but this drug is certainly working for me, I used to drink 70+ units a week. I then cut right down but then crept up to around 40 units a week. I had regular breaks of a week or two before starting to drink again. My main concern was the constant urge to drink
Hello all, bit over the top with my title, but this drug is certainly working for me, I used to drink 70+ units a week. I then cut right down but then crept up to around 40 units a week. I had regular breaks of a week or two before starting to drink again. My main concern was the constant urge to drink
Kev12564
in
British Liver Trust
6 years ago
Just starting treatment!
Hi all I was diagnosed around 9 months ago with PCOS and we are currently TTC. I had my first appointment at fertility clinic on Tuesday which I couldn’t believe was actually located within the antenatal clinic within the hospital! I’m sure I’m not the first one to be upset by that or feel it’s insensitive
Hi all I was diagnosed around 9 months ago with PCOS and we are currently TTC. I had my first appointment at fertility clinic on Tuesday which I couldn’t believe was actually located within the antenatal clinic within the hospital! I’m sure I’m not the first one to be upset by that or feel it’s insensitive
Ruby92
in
PCOS UK (Verity)
6 years ago
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Major hair fall and alot of unwanted hair growth in body😭😭
This pcos is ruining my life ..I've discovered I have PCOS when I was 14 to and now I'm 20 to and it seems to get worse than better !! I'm half bald and neither I tried omega 3 pills or biotin pills and iron pills or spirulina or medical control birth pills or diets and gym also ....none of them work
This pcos is ruining my life ..I've discovered I have PCOS when I was 14 to and now I'm 20 to and it seems to get worse than better !! I'm half bald and neither I tried omega 3 pills or biotin pills and iron pills or spirulina or medical control birth pills or diets and gym also ....none of them work
Kitten95
in
PCOS UK (Verity)
6 years ago
Scary Update on a thread of mine
I thought I would update you all on my original thread, though not the update I would have liked to give. https://healthunlocked.com/hughes-syndrome/posts/138685399/advice-on-blood-test-result-please I had a long chat with my GP and he agreed to refer me to Hematology for advice, especially as I was
I thought I would update you all on my original thread, though not the update I would have liked to give. https://healthunlocked.com/hughes-syndrome/posts/138685399/advice-on-blood-test-result-please I had a long chat with my GP and he agreed to refer me to Hematology for advice, especially as I was
LupusKaren
in
Hughes Syndrome APS Forum
6 years ago
Ursodiol
Hi. Has anyone experienced problems with chemists getting your urso prescription? I have about 4 times now , it makes you anxious worrying if they will get the tablets in , I’ve been given eventually destolit ursodol. ( haven’t seen it before ) 150 mg. is this ok.? I normally have wockhardt 300 mg
Hi. Has anyone experienced problems with chemists getting your urso prescription? I have about 4 times now , it makes you anxious worrying if they will get the tablets in , I’ve been given eventually destolit ursodol. ( haven’t seen it before ) 150 mg. is this ok.? I normally have wockhardt 300 mg
Mrsfancypants
in
PBC Foundation
6 years ago
Watch and wait
I finally got the diagnosis of autoimmune hepatitis a few weeks ago after numerous tests, scans and liver biopsy. The liver consultant was keen to start me on steroids and immunosupprants but as I've previously had issues with steroids I wasn't keen. He arranged for me to see a specialist pharmacist
I finally got the diagnosis of autoimmune hepatitis a few weeks ago after numerous tests, scans and liver biopsy. The liver consultant was keen to start me on steroids and immunosupprants but as I've previously had issues with steroids I wasn't keen. He arranged for me to see a specialist pharmacist
GrandmaDylan
in
British Liver Trust
5 years ago
Aunt Svetlana (Beautiful Angel In Christ)
Hello! My name is, I will go by my nick name (Jo Jo)! Hope everyone here is doing well (or as I can imagine at times, as good as expected)... I am asking for support for myself. My Aunt Svetlana is just about the most bravest & strongest person I know. She had Breast Cancer about 12 years and was
Hello! My name is, I will go by my nick name (Jo Jo)! Hope everyone here is doing well (or as I can imagine at times, as good as expected)... I am asking for support for myself. My Aunt Svetlana is just about the most bravest & strongest person I know. She had Breast Cancer about 12 years and was
Hidden
in
SHARE Metastatic Breast Cancer
6 years ago
Going for my autoimmune hepatitis appointment this week after a 2yr wait
I’d put the post above up 2 year ago, can anyone give me advice on questions to ask at this initial appointment with the hepatologist this week please. I’d positive antibodies for autoimmune hepatitis and elevated liver enzymes. Many thanks 🎈
I’d put the post above up 2 year ago, can anyone give me advice on questions to ask at this initial appointment with the hepatologist this week please. I’d positive antibodies for autoimmune hepatitis and elevated liver enzymes. Many thanks 🎈
Suin
in
British Liver Trust
5 years ago
Just had a MRE
Just an update....I had a fibroscan several months ago, just after I was diagnosed with PBC, that showed stage 2-3 fibrosis. It was a real shocker considering I feel good, my labs were not terrible, and I appeared to be in good health. My hepatologist was also a bit surprised at the results so I was
Just an update....I had a fibroscan several months ago, just after I was diagnosed with PBC, that showed stage 2-3 fibrosis. It was a real shocker considering I feel good, my labs were not terrible, and I appeared to be in good health. My hepatologist was also a bit surprised at the results so I was
HealthyChik
in
PBC Foundation
6 years ago
Anyone w/ Hashimoto's using Myo-inositol plus selenium?
Saw this recent study in re using MI and Selenium to treat Hashimoto's. https://www.europeanreview.org/wp/wp-content/uploads/051-059-Myo-inositol-and-selenium-restore-euthyroid-state.pdf If so, how is it working for you? The MI I have is only 500 mg per capsule, and the study used 600 mg. It seems
Saw this recent study in re using MI and Selenium to treat Hashimoto's. https://www.europeanreview.org/wp/wp-content/uploads/051-059-Myo-inositol-and-selenium-restore-euthyroid-state.pdf If so, how is it working for you? The MI I have is only 500 mg per capsule, and the study used 600 mg. It seems
vocalEK
in
Thyroid UK
6 years ago
Happy New Year
Happy New Year one and all. After finding out I had cancer recently with a 7 hour surgery I am going to make every year count. Thank you all for helping me change my attitude about hair loss saying it means the chemo is doing it's job so hair loss so be it..chemo do your job.......not to sound snooty
Happy New Year one and all. After finding out I had cancer recently with a 7 hour surgery I am going to make every year count. Thank you all for helping me change my attitude about hair loss saying it means the chemo is doing it's job so hair loss so be it..chemo do your job.......not to sound snooty
Lovingfall
in
My Ovacome
6 years ago
Cramp
Hi another question as I am rather fed up with cramp.....feet legs hands.....sometimes from my big toe up to my groin and my hands, wrists and arms very annoying. Is this common with AIH PBC overlap or could it be related to another autoimmune condition thank you XXX
Hi another question as I am rather fed up with cramp.....feet legs hands.....sometimes from my big toe up to my groin and my hands, wrists and arms very annoying. Is this common with AIH PBC overlap or could it be related to another autoimmune condition thank you XXX
Vespa27
in
PBC Foundation
6 years ago
Autoimmune hepatitis
I finally got the confirmed diagnosis of autoimmune hepatitis today. It's not a shock as I have previously had at least one autoimmune disease and I don't drink. Unfortunately the hepatologist I saw in early Dec has now left my local hospital so I'll probably be referred to Manchester royal hospital.
I finally got the confirmed diagnosis of autoimmune hepatitis today. It's not a shock as I have previously had at least one autoimmune disease and I don't drink. Unfortunately the hepatologist I saw in early Dec has now left my local hospital so I'll probably be referred to Manchester royal hospital.
GrandmaDylan
in
British Liver Trust
6 years ago
Giving cpr effectively with asthma?
CPR with asthma. I’ve searched and found lots of advice for cpr to a patient with asthma. I’m a sports coach with recently diagnosed asthma and first aid trained but not yet fully managed and my concern is that I might not be able to effectively give cpr. Is it possible to administer cpr with reduced
CPR with asthma. I’ve searched and found lots of advice for cpr to a patient with asthma. I’m a sports coach with recently diagnosed asthma and first aid trained but not yet fully managed and my concern is that I might not be able to effectively give cpr. Is it possible to administer cpr with reduced
chopsterz
in
Asthma Community Forum
6 years ago
New research on PBC and light therapy
I was recently at my GI appointment and was telling her that due to my low mood and irritability, I'd started back on my light therapy. I have a litebook, which is a small portable device you sit beside you in the morning for 20 minutes while read or watch TV. Of note, it's also good for jet lag. Anyway
I was recently at my GI appointment and was telling her that due to my low mood and irritability, I'd started back on my light therapy. I have a litebook, which is a small portable device you sit beside you in the morning for 20 minutes while read or watch TV. Of note, it's also good for jet lag. Anyway
Lucky4
in
PBC Foundation
6 years ago
Is there anyone that has been diagnosed with Takayasu Arteritis?
Hi Everyone it would be great to hear of anyone that is suffering from Takayasu Arteritis. (Inflammation of the large vessels) I was diagnosed in summer 2017. It's very rare apparently! My immune system is attacking the large vessels. I take 20mg Methotrexate a week, I'm currently on 7mg Prednisone (
Hi Everyone it would be great to hear of anyone that is suffering from Takayasu Arteritis. (Inflammation of the large vessels) I was diagnosed in summer 2017. It's very rare apparently! My immune system is attacking the large vessels. I take 20mg Methotrexate a week, I'm currently on 7mg Prednisone (
Queenie-Stardust
in
NRAS
6 years ago
Pulmonary hypertension
I have widespread acute emphysema and have been placed on portable oxygen 4L which is all good, certainly helps when exercising. Yesterday I had a echograph completed and the specialist informed me - yes definite pulmonary hypertension and he will form a report to my doctor. Looking on google, this
I have widespread acute emphysema and have been placed on portable oxygen 4L which is all good, certainly helps when exercising. Yesterday I had a echograph completed and the specialist informed me - yes definite pulmonary hypertension and he will form a report to my doctor. Looking on google, this
Dampier
in
Lung Conditions Community Forum
6 years ago
Hair loss treatments
Hi everyone! I’m new. I can’t believe I’ve only just found Verity and this forum! I recently got diagnosed although I suspected it for a long time as I have acne, body hair, and most recently I’ve noticed hair loss too. It’s all very depressing but I recently found hope by reading that Spironalactone
Hi everyone! I’m new. I can’t believe I’ve only just found Verity and this forum! I recently got diagnosed although I suspected it for a long time as I have acne, body hair, and most recently I’ve noticed hair loss too. It’s all very depressing but I recently found hope by reading that Spironalactone
Cafeaulait
in
PCOS UK (Verity)
6 years ago
AF and the flu jab
Could anyone tell me if your are entitled to the free flu jab if you have AF, the reason I ask was the doctors said yes but when I went to have it they said it wasn't on their list and as it was not written on my notes by the doctor they could not give it to me. I have been in constant AF since I was
Could anyone tell me if your are entitled to the free flu jab if you have AF, the reason I ask was the doctors said yes but when I went to have it they said it wasn't on their list and as it was not written on my notes by the doctor they could not give it to me. I have been in constant AF since I was
TheKnitter
in
AF Association
6 years ago
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