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You guys will probably be able to relate to this :)
So I'm clumsy and while making dinner I burnt my hand on the oven. First aid skills here - run it under cold water for 10 mins. So I weigh up which is worse : slight burn or raynauds maybe chilblain. Dinner was far more tempting than the cold water so I just left it. It's the little things that others
So I'm clumsy and while making dinner I burnt my hand on the oven. First aid skills here - run it under cold water for 10 mins. So I weigh up which is worse : slight burn or raynauds maybe chilblain. Dinner was far more tempting than the cold water so I just left it. It's the little things that others
Rp321
in
Scleroderma & Raynaud's UK (SRUK)
11 years ago
Hello everyone, I've been diagnosed with PBC and Autoimmune Hepatitis Overlap Syndrome in July'13.
Liver biyopsy showed stage 3 fibrosis. I'm 28 years old. My all elevated LFTs got back to normal ranges after 1.5 month i started using Urso 250mg (2*2). My doctor told me that this is a perfect progress so he didnt want to put me on corticosteroids. LFTs are all back to normal but it doesnt keep me
Liver biyopsy showed stage 3 fibrosis. I'm 28 years old. My all elevated LFTs got back to normal ranges after 1.5 month i started using Urso 250mg (2*2). My doctor told me that this is a perfect progress so he didnt want to put me on corticosteroids. LFTs are all back to normal but it doesnt keep me
Burke0626
in
PBC Foundation
11 years ago
Colestid Orange
Colestid Orange ( Colestipol Hydrochloride) 5.0g any one taking or tried this for the itching have been on Questran Light did little help for the itching phoned my consultant yesterday and he said to now try these one's same type of horrid powdered drink but just wanted to know if they might be a better
Colestid Orange ( Colestipol Hydrochloride) 5.0g any one taking or tried this for the itching have been on Questran Light did little help for the itching phoned my consultant yesterday and he said to now try these one's same type of horrid powdered drink but just wanted to know if they might be a better
cavi
in
PBC Foundation
11 years ago
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My Mini adventure - the Oxford Half Marathon
On Saturday I celebrated it being a year since I graduated C25K. Yesterday, Sunday, I completed my first ever serious race, the Oxford half marathon. I woke up with a mixture of excitement and nerves, got ready, managed to eat most of my breakfast and headed out with hubby to pick up my friend who
On Saturday I celebrated it being a year since I graduated C25K. Yesterday, Sunday, I completed my first ever serious race, the Oxford half marathon. I woke up with a mixture of excitement and nerves, got ready, managed to eat most of my breakfast and headed out with hubby to pick up my friend who
Rollertoaster
Graduate
in
Couch to 5K
11 years ago
The flu vaccine for APS patients in the UK
The flu vaccine is available now at most GP practices in the UK. As APS is a long-term condition, the majority of GPs advise that we have the vaccine. If you do chose to have the flu jab, most APS patients do not have any adverse reactions and it is considered safe and effective. However, if you are
The flu vaccine is available now at most GP practices in the UK. As APS is a long-term condition, the majority of GPs advise that we have the vaccine. If you do chose to have the flu jab, most APS patients do not have any adverse reactions and it is considered safe and effective. However, if you are
Hidden
in
Hughes Syndrome APS Forum
11 years ago
I am due to have a pic line fitted soon?
My veins are being difficult and keep hiding from the chemo nurses (little devils) and it has been suggested I have a pic line fitted for the remaining two chemos and for the months of Avastin. Any tips would be helpful. I am a little worried about the fact I already have a PUlmonary embolism. Jill
My veins are being difficult and keep hiding from the chemo nurses (little devils) and it has been suggested I have a pic line fitted for the remaining two chemos and for the months of Avastin. Any tips would be helpful. I am a little worried about the fact I already have a PUlmonary embolism. Jill
Jillwendy
in
My Ovacome
11 years ago
Hair Loss - options?!
Hi Ladies, Well, my mum's 6 month check up showed that it's back, so fighting gloves back on... This time, they'll probably use a combi drug - the side effect of which is hair loss. Can I ask, do any of you know if hair loss is a 'definite' side effect, or if it's a 'possible' side effect? Also, assuming
Hi Ladies, Well, my mum's 6 month check up showed that it's back, so fighting gloves back on... This time, they'll probably use a combi drug - the side effect of which is hair loss. Can I ask, do any of you know if hair loss is a 'definite' side effect, or if it's a 'possible' side effect? Also, assuming
Hidden
in
My Ovacome
11 years ago
Does the flu vaccine affect Warfarin
I expect we will all be going for our Flu "jabs" very soon, and I wondered if the vaccine affects how Warfarin works. Last year I was on weekly/fortnightly checks so did not query this. Now, however, I am on 10 weekly checks and wanted know if I should make an earlier appointment with the Warfarin
I expect we will all be going for our Flu "jabs" very soon, and I wondered if the vaccine affects how Warfarin works. Last year I was on weekly/fortnightly checks so did not query this. Now, however, I am on 10 weekly checks and wanted know if I should make an earlier appointment with the Warfarin
Enjoy
in
AF Association
11 years ago
Imagery for the relaxation- much needed after yesterdays jaunt!
Morning all my friends :D Hope you are all rested and not aching or hurting too much from yesterdays escapades :o I know I am and I spent most of the day chasing fluffies, baddies and trying to escape the naughtiness of those whom shall remain nameless............ you know who you are heheheheheh!
Morning all my friends :D Hope you are all rested and not aching or hurting too much from yesterdays escapades :o I know I am and I spent most of the day chasing fluffies, baddies and trying to escape the naughtiness of those whom shall remain nameless............ you know who you are heheheheheh!
Hidden
in
Fibromyalgia Action UK
11 years ago
New NICE Guidance released.
The Department of Health has asked the National Institute of Health and Care Excellence (NICE) to produce guidance on using topotecan, pegylated liposomal doxorubicin hydrochloride, paclitaxel, trabectedin and gemcitabine in the NHS in England and Wales. The Appraisal Committee has considered the evidence
The Department of Health has asked the National Institute of Health and Care Excellence (NICE) to produce guidance on using topotecan, pegylated liposomal doxorubicin hydrochloride, paclitaxel, trabectedin and gemcitabine in the NHS in England and Wales. The Appraisal Committee has considered the evidence
SoniaOvacome
in
My Ovacome
11 years ago
Have you taken Xarelto (rivaroxaban)?
Another request - please get in touch if you can relate to this and live in the UK: - We are looking for someone with AF who is willing to tell their story to the media and be photographed. Ideally they would be on warfarin or aspirin and have been refused a novel oral anticoagulant (dabigatran, rivaroxaban
Another request - please get in touch if you can relate to this and live in the UK: - We are looking for someone with AF who is willing to tell their story to the media and be photographed. Ideally they would be on warfarin or aspirin and have been refused a novel oral anticoagulant (dabigatran, rivaroxaban
AFAssociation1
in
AF Association
11 years ago
Referred to specialist unit
I have been waiting for the results of a liver biopsy since May-largely because the pathologist was off sick/on holiday and no-one knew whether or not I needed treatment for AIH overlap. I was diagnosed with PBC some 20years ago and had become a bit complacent because although I appear to have some of
I have been waiting for the results of a liver biopsy since May-largely because the pathologist was off sick/on holiday and no-one knew whether or not I needed treatment for AIH overlap. I was diagnosed with PBC some 20years ago and had become a bit complacent because although I appear to have some of
crundalite
in
PBC Foundation
11 years ago
I have had a high anti nuclear factor of 340, TSH fluctuating between 3.8-5.8, FT4 12.8. I have intermittent joint pain in fingers, hairloss
I have brain fog. I have see two rheumatologists who say my results are boarderline therefore I cannot be treated. I have been given a script for an antimalarial tablet. I don't feel normal but I am getting no where. Any thoughts?
I have brain fog. I have see two rheumatologists who say my results are boarderline therefore I cannot be treated. I have been given a script for an antimalarial tablet. I don't feel normal but I am getting no where. Any thoughts?
Frazzie1
in
Thyroid UK
11 years ago
PBC
Just found out that I'm AMA positive. My symptoms are itching and slight pain on my right lower rib. If you're AMA positive, does it mean you have PBC? I have read too much regarding PBC and I'm very worried and scared. My husband told me to be positive and I'm trying to.
Just found out that I'm AMA positive. My symptoms are itching and slight pain on my right lower rib. If you're AMA positive, does it mean you have PBC? I have read too much regarding PBC and I'm very worried and scared. My husband told me to be positive and I'm trying to.
barotacnuevo
in
PBC Foundation
11 years ago
Great North Fun Revisited
A day has gone by and the excitement has died down. My personal congratulations to everyone to attempted the GNR - and especially to those who got to the finish under their own steam. I seem to have created some excitement by blogging as I went along. In reality, it was a couple of posts at the start
A day has gone by and the excitement has died down. My personal congratulations to everyone to attempted the GNR - and especially to those who got to the finish under their own steam. I seem to have created some excitement by blogging as I went along. In reality, it was a couple of posts at the start
Malcy
Graduate
in
Couch to 5K
11 years ago
Zoloft and Ativan
Hi, anyone take the antidepressant Zoloft and the anti-anxiety drug Ativan. I'm taking both to try and get rid of my wretched Depression. Stay well. Martin
Hi, anyone take the antidepressant Zoloft and the anti-anxiety drug Ativan. I'm taking both to try and get rid of my wretched Depression. Stay well. Martin
martin1945
in
Lung Conditions Community Forum
11 years ago
Anyone on here NOT on Urso for their PBC? How are your LFTS with NOT being on this medicine?
I went off the Urso last year as a last resort as I had had a horrendous year with the itch( much like yr had before was diagnosed) . I had read an article about a new drug being trialed for PBC and it mentioned that quite a few of the participants who had never had ich from their PBC complained of
I went off the Urso last year as a last resort as I had had a horrendous year with the itch( much like yr had before was diagnosed) . I had read an article about a new drug being trialed for PBC and it mentioned that quite a few of the participants who had never had ich from their PBC complained of
littlemo
in
PBC Foundation
11 years ago
dry and thinning hair
hello , i have been taking methotrexate , 15mg weekly , hydroxychloroquine 2 tablets daily and 1 folic acid tablet weekly which have helped me greatly my problem is now iv got thin and very dry hair and was wondering as anybody got any advice to help me with this problem thank you Lorraine
hello , i have been taking methotrexate , 15mg weekly , hydroxychloroquine 2 tablets daily and 1 folic acid tablet weekly which have helped me greatly my problem is now iv got thin and very dry hair and was wondering as anybody got any advice to help me with this problem thank you Lorraine
lorrain
in
NRAS
11 years ago
Does Prednisolone make your hair fall out?
I could thatch a roof with what I have left every time I brush my hair, I didn't have this problem before and my hair feels a lot thinner to the touch, it used to feel quite thick. I don't have any bald patches (yet!) I'm getting quite worried about the amount of hair loss, it seems to have got worse
I could thatch a roof with what I have left every time I brush my hair, I didn't have this problem before and my hair feels a lot thinner to the touch, it used to feel quite thick. I don't have any bald patches (yet!) I'm getting quite worried about the amount of hair loss, it seems to have got worse
DazedAndConfused
in
PMRGCAuk
11 years ago
Shall I ring my rheumy nurse?
Hi all . Not been posting but reading all yours daily. Well I changed to sulfasalizine and mtx about 3 months ago and I thought this is it, as I felt loads better and nearly normal. Well started to flare again about 2 weeks ago and this last week have felt dreadful. Flares happening every couple of
Hi all . Not been posting but reading all yours daily. Well I changed to sulfasalizine and mtx about 3 months ago and I thought this is it, as I felt loads better and nearly normal. Well started to flare again about 2 weeks ago and this last week have felt dreadful. Flares happening every couple of
BossyB
in
NRAS
11 years ago
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