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coming off avara
Due to the distressing hair loss I have decided to come off my Leflunomid. Bad move I know but the hair loss is disturbing. My hubby goes mental and worries I need a bit of advice please I am still taking Hydroxy and Diclofenac has been added in - Ive had some in the cupboard so added them in for
Due to the distressing hair loss I have decided to come off my Leflunomid. Bad move I know but the hair loss is disturbing. My hubby goes mental and worries I need a bit of advice please I am still taking Hydroxy and Diclofenac has been added in - Ive had some in the cupboard so added them in for
Hidden
in
NRAS
12 years ago
13 years later....
I want to introduce myself to all those on here. I am not a parent of a child with liver disease but an adult who was diagnosed with liver disease as a child. In September 1999 I started the school year as many 13 year olds would. I enjoyed seeing friends at school, went to swimming training
I want to introduce myself to all those on here. I am not a parent of a child with liver disease but an adult who was diagnosed with liver disease as a child. In September 1999 I started the school year as many 13 year olds would. I enjoyed seeing friends at school, went to swimming training
jenniwren
in
Children's Liver Disease Foundation
12 years ago
Getting rid of my horrible scalp psoriasis
I am a mature lady who has suffered from Psoriasis most of my life so you can imagine Ive tried everything and my hope for any success from any drug or product is 0. I decided to go all natural turning my back on traditional medication in favour of a more holistic approach. I set myself up for failure
I am a mature lady who has suffered from Psoriasis most of my life so you can imagine Ive tried everything and my hope for any success from any drug or product is 0. I decided to go all natural turning my back on traditional medication in favour of a more holistic approach. I set myself up for failure
psoriasisscalp
in
MY SKIN
12 years ago
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i am back
Hi everyone have not been on for a while, the truth is i missed the support from this site. At the moment i am trying to decide whether to gtake redundancy from work or fight to keep my job.They are encouraging me to take the redundancy so feel they want to get me out. Have not been to work for six weeks
Hi everyone have not been on for a while, the truth is i missed the support from this site. At the moment i am trying to decide whether to gtake redundancy from work or fight to keep my job.They are encouraging me to take the redundancy so feel they want to get me out. Have not been to work for six weeks
webby
in
Fibromyalgia Action UK
12 years ago
BURNS - I thought this might be useful to know
A young man sprinkling his lawn and bushes with pesticides wanted to check the contents of the barrel to see how much pesticide remained in it. He raised the cover and lit his lighter; the vapors ignited and engulfed him. His neighbour came out of her house with a dozen eggs and a bowl yelling: "bring
A young man sprinkling his lawn and bushes with pesticides wanted to check the contents of the barrel to see how much pesticide remained in it. He raised the cover and lit his lighter; the vapors ignited and engulfed him. His neighbour came out of her house with a dozen eggs and a bowl yelling: "bring
Eule
in
Fibromyalgia Action UK
12 years ago
What is likely to happen to me? Please, any advice is needed.
I am really terrified, I am being tested for APS and other things, but only the APS test is going to show anything up, because I had to be given Heparin injections before there was time to take bloods. Please tell me, I have no idea - what is this going to do to my life? This year alone I have been
I am really terrified, I am being tested for APS and other things, but only the APS test is going to show anything up, because I had to be given Heparin injections before there was time to take bloods. Please tell me, I have no idea - what is this going to do to my life? This year alone I have been
anniesensi
in
Hughes Syndrome APS Forum
12 years ago
Trying to re-gain my confidence after a fall....
Last Wednesday, whilst out for a run, (what else?!), misfortune befell me, and then I befell. I was running along, minding my own business and then a small dog ran out form a side street, right under my feet and tripped me up. I was just about to cross said side street and was close to the kerb, so
Last Wednesday, whilst out for a run, (what else?!), misfortune befell me, and then I befell. I was running along, minding my own business and then a small dog ran out form a side street, right under my feet and tripped me up. I was just about to cross said side street and was close to the kerb, so
Allyt
Graduate
in
Couch to 5K
12 years ago
HEPARIN
i AM ON HEPARIN FOR INR BELOW 3. OF LATE BEEN GIVING IT EVERY DAY AND I SEEM TO GET BRUISES ON TUMMY - DOES ANYONE ELSE HAVE THIS. YET WHEN IN HOSPITAL HARDLY A BRUISE ANY TIPS. IAM ALSO ON WARFARIN, STATIN AND PLAQUNIL.
i AM ON HEPARIN FOR INR BELOW 3. OF LATE BEEN GIVING IT EVERY DAY AND I SEEM TO GET BRUISES ON TUMMY - DOES ANYONE ELSE HAVE THIS. YET WHEN IN HOSPITAL HARDLY A BRUISE ANY TIPS. IAM ALSO ON WARFARIN, STATIN AND PLAQUNIL.
daisy11
in
Hughes Syndrome APS Forum
12 years ago
Going through insomnia phase
Despite taking 2 Tramadol, 2 Amitriptyline and a herbal sleep aid, I still can't sleep! Hoping to see Doctor soon to see if he can help. Does anyone else go through phases like this?
Despite taking 2 Tramadol, 2 Amitriptyline and a herbal sleep aid, I still can't sleep! Hoping to see Doctor soon to see if he can help. Does anyone else go through phases like this?
Gailbt
in
Fibromyalgia Action UK
12 years ago
Thinning hair and trying to cover it up!! ;-)
Sadly,I'm sure there are many of you out there with thinning hair, has anyone found a solution or a disguise? I've looked into hair transplant - yes I'm at my wits end - but no one will accept me because of the lupus!! I've tried wigs but they make me itch and I feel more self conscious and worry
Sadly,I'm sure there are many of you out there with thinning hair, has anyone found a solution or a disguise? I've looked into hair transplant - yes I'm at my wits end - but no one will accept me because of the lupus!! I've tried wigs but they make me itch and I feel more self conscious and worry
BetsieBoo
in
LUPUS UK
12 years ago
ADALIMUMAB HAVE ANY OF YOU HEARD OF THIS DRUG OR USING THIS DRUG?
Hi everyone Im on bit of a downer of late,my hands and feet are worse than ever,Im really tired i been taking my MTX for 3 months now ...3 Sat and 3 Sun,still feel sick everytime.mostly on Sunday.i take 15m of folic wed/thur. I have heard of this Adalimumab,apparently you can take it with
Hi everyone Im on bit of a downer of late,my hands and feet are worse than ever,Im really tired i been taking my MTX for 3 months now ...3 Sat and 3 Sun,still feel sick everytime.mostly on Sunday.i take 15m of folic wed/thur. I have heard of this Adalimumab,apparently you can take it with
minxy1960
in
NRAS
12 years ago
Only I would fall!!
I spent a lovely night tues with my Husband in a hotel then onto Wimbledon on Wed. Having a fab an well deserved break and watched men's quarters on court 1. Once the games finished there we decided to go to Murray Mound relaxed and happy for the 1st time since diagnosis in feb when I took a step onto
I spent a lovely night tues with my Husband in a hotel then onto Wimbledon on Wed. Having a fab an well deserved break and watched men's quarters on court 1. Once the games finished there we decided to go to Murray Mound relaxed and happy for the 1st time since diagnosis in feb when I took a step onto
Lg1968
in
LUPUS UK
12 years ago
My story- It may not be all rosy but it is as it is
One day 8 years or so ago I was looking forward to a first time trip to America. I had never been so far before and it was a once in a lifetime tour of California and the Gold Coast. I had been having a bit of trouble with fluid retention in my legs so, worried about D.V.T. I thought I would go
One day 8 years or so ago I was looking forward to a first time trip to America. I had never been so far before and it was a once in a lifetime tour of California and the Gold Coast. I had been having a bit of trouble with fluid retention in my legs so, worried about D.V.T. I thought I would go
tfc5
in
Kidney Transplant Patient Support
12 years ago
RUDE SHOP ASSISTANT DAY
I went into town to pay a bill yesterday and popped to my local WH Smith to get 2 x mags i went to the checkout where 2 middle aged women were talking went to the desk put down my mags they looked at me as if to say oh god we are having a conversation here do you mind lol so they were talking about some
I went into town to pay a bill yesterday and popped to my local WH Smith to get 2 x mags i went to the checkout where 2 middle aged women were talking went to the desk put down my mags they looked at me as if to say oh god we are having a conversation here do you mind lol so they were talking about some
Hidden
in
Fibromyalgia Action UK
12 years ago
Informing people at work?
Just wondering whether I ought to have a set of instructions about what to do in an attack keptwith a spare inhaler and spacer at work just in case. I work in a school and we have info about what to do for pupils with asthma. I'm a bit worried that I might have an attack or a reaction to a wasp sting
Just wondering whether I ought to have a set of instructions about what to do in an attack keptwith a spare inhaler and spacer at work just in case. I work in a school and we have info about what to do for pupils with asthma. I'm a bit worried that I might have an attack or a reaction to a wasp sting
Hidden
in
Asthma Community Forum
12 years ago
Liver Pain - Due to medications or is condition worsening?
I was diagnosed with AIH-PBC Overlap Syndrome, Stage 3, a couple of months ago. Prior to my diagnosis, I had symptoms, but I never experienced liver pain. Now, suddenly, I'm experiencing liver pain. I'm wondering if anyone can tell me if this is likely a sign that my condition is worsening or could
I was diagnosed with AIH-PBC Overlap Syndrome, Stage 3, a couple of months ago. Prior to my diagnosis, I had symptoms, but I never experienced liver pain. Now, suddenly, I'm experiencing liver pain. I'm wondering if anyone can tell me if this is likely a sign that my condition is worsening or could
KarenRL
in
PBC Foundation
12 years ago
Nitol?
Has anyone had their lupus flare triggered by Nitol Sleep Aid, or Fennel tea?? They're the only two things I did different last week and now I'm in a right blinking mess! Usual flare breathless, legs hurt, can't even think about standing up to get the remote from the other chair! Any ideas! Nitol is
Has anyone had their lupus flare triggered by Nitol Sleep Aid, or Fennel tea?? They're the only two things I did different last week and now I'm in a right blinking mess! Usual flare breathless, legs hurt, can't even think about standing up to get the remote from the other chair! Any ideas! Nitol is
Acorn1
in
LUPUS UK
12 years ago
Have met a couple of consultants recently who have a gobsmackingly different opinion of Hughes syndrome!
Was diagnosed with Hughes by Hughes a couple of years ago and have had 4 positive Anticardiolipin tests over time but although I have had plenty of TIA-like events and a 'suspected' DVT and PE, there is no hard evidence of clotting e.g. DVT ultrasound doc was undecided whether it was a clot or not and
Was diagnosed with Hughes by Hughes a couple of years ago and have had 4 positive Anticardiolipin tests over time but although I have had plenty of TIA-like events and a 'suspected' DVT and PE, there is no hard evidence of clotting e.g. DVT ultrasound doc was undecided whether it was a clot or not and
Eagle
in
Hughes Syndrome APS Forum
12 years ago
Newly diagnosed with AIH
Hi I am 31 and have just recently been diagnosed with AIH, I am just waiting for an appointment for a liver biopsy to determine the extent of the AIH. I'm still very overwhelmed by this diagnosis as I had never heard of this disease before. Can anyone shed a bit of light on the condition and is there
Hi I am 31 and have just recently been diagnosed with AIH, I am just waiting for an appointment for a liver biopsy to determine the extent of the AIH. I'm still very overwhelmed by this diagnosis as I had never heard of this disease before. Can anyone shed a bit of light on the condition and is there
jodenise80
in
British Liver Trust
12 years ago
BIOPSY QUESTION
I had a biopsy done in December 2011 which radiologist stated was a form of hepatitis. I then had that same biopsy sent to Johns Hopkins and they stated because I have had a positive AMA that it is PBC but biopsy showed could be a form of hepatitis. My AMA was positive one time, negative 1 time and
I had a biopsy done in December 2011 which radiologist stated was a form of hepatitis. I then had that same biopsy sent to Johns Hopkins and they stated because I have had a positive AMA that it is PBC but biopsy showed could be a form of hepatitis. My AMA was positive one time, negative 1 time and
general1
in
PBC Foundation
12 years ago
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