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Desperate for some advice
Hi, im hoping someine can relate.I was diagnosed with Endometriosis about 11 years ago and have had my left tube and ovary removed on my 3rd laparoscopy. I've got an appointment this week to hopefully get a date for a hysterectomy. Over the past 4 weeks, I've had chronic diarrhoea, heavy bloating across
Hi, im hoping someine can relate.I was diagnosed with Endometriosis about 11 years ago and have had my left tube and ovary removed on my 3rd laparoscopy. I've got an appointment this week to hopefully get a date for a hysterectomy. Over the past 4 weeks, I've had chronic diarrhoea, heavy bloating across
Marvel-
in
Endometriosis UK
6 months ago
Stage 4 OC — Deposits on liver
Hi ladies! Could do with a bit of advice, as am spiralling a bit. For context, my Mum (54) was diagnosed with HGS stage 3c/4a OC in Jan 2022. BRACA gene negative. Immediately started three rounds of chemo, then had optimal debunking surgery and full hysterectomy, and continued with three more rounds
Hi ladies! Could do with a bit of advice, as am spiralling a bit. For context, my Mum (54) was diagnosed with HGS stage 3c/4a OC in Jan 2022. BRACA gene negative. Immediately started three rounds of chemo, then had optimal debunking surgery and full hysterectomy, and continued with three more rounds
georgialocksss
in
My Ovacome
6 months ago
Does a hysterectomy make a difference?
Has anyone found long term benefits from having a hysterectomy to treat endometriosis? Han x
Has anyone found long term benefits from having a hysterectomy to treat endometriosis? Han x
Han93
in
Endometriosis UK
6 months ago
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Advice request - going in circles with doctors
Hi all, I've been suffering with endometriosis for years but I'm really struggling to get proper help with it, and the doctors seem to be thinking now it might be something else. I've had surgery to remove endometriosis twice (and the second time I also had an ovarian cyst removed which was larger than
Hi all, I've been suffering with endometriosis for years but I'm really struggling to get proper help with it, and the doctors seem to be thinking now it might be something else. I've had surgery to remove endometriosis twice (and the second time I also had an ovarian cyst removed which was larger than
Bookworm321123
in
Endometriosis UK
6 months ago
Surgery for fallopian tubes removal
Hi Has anyone had fallopian tubes removed but ovaries and uterus left intact? I've been advised to have this surgery through keyhole , ct scan shows abscesses in tubes. Although six months ago another scN showed abscess near uterus and one doctor mentioned hysterectomy. The doctor I saw this morning
Hi Has anyone had fallopian tubes removed but ovaries and uterus left intact? I've been advised to have this surgery through keyhole , ct scan shows abscesses in tubes. Although six months ago another scN showed abscess near uterus and one doctor mentioned hysterectomy. The doctor I saw this morning
Hannah818
in
Pelvic Pain Support Network
6 months ago
Multiple conditions leading to burnout
Hi everyone, Any constructive advice welcome. To give context, I have PCOS, endo, degenerative discs, lymphocytic colitis and my gynae now thinks I have adenomyosis too. I also suffer with frequent migraines. My consultant has recently advised I am likely to need a hysterectomy and has discussed injections
Hi everyone, Any constructive advice welcome. To give context, I have PCOS, endo, degenerative discs, lymphocytic colitis and my gynae now thinks I have adenomyosis too. I also suffer with frequent migraines. My consultant has recently advised I am likely to need a hysterectomy and has discussed injections
Devils_Advocate
in
Endometriosis UK
7 months ago
Bowel preparation before surgery
Hi everyone! 💛 Just been on pre op assessment and nurse said I don’t need to do bowel preparation at home. I will have hysterectomy with bowel resection and Endo excision. Has anyone had bowel preparation at hospital just before the operation? I am quite concerned what is going on 🤷♀️
Hi everyone! 💛 Just been on pre op assessment and nurse said I don’t need to do bowel preparation at home. I will have hysterectomy with bowel resection and Endo excision. Has anyone had bowel preparation at hospital just before the operation? I am quite concerned what is going on 🤷♀️
Endolemon
in
Endometriosis UK
7 months ago
still unsure about hysterectomy, been waiting over 1 year for op date, and taken a year to see consultant for a discussion
Was diagnosed with deep filtrating endometriosis and adenomyosis in 2019 following an MRI, and I am now awaiting a laporoscopy (been waiting over a year) and want to be under anaesthetic for that experience. Having a mirena coil was a positive thing for me, as stopped alot of the pain and heaviness of
Was diagnosed with deep filtrating endometriosis and adenomyosis in 2019 following an MRI, and I am now awaiting a laporoscopy (been waiting over a year) and want to be under anaesthetic for that experience. Having a mirena coil was a positive thing for me, as stopped alot of the pain and heaviness of
coletteholt
in
Endometriosis UK
7 months ago
Advice on egg freezing and hysterectomy for severely heavy bleeding
Hi everyone, I'm doing a little bit of research so I can take a huge stack of notes to my next gynaecology appointment, and wondered if anyone was able to share their experiences. I'm looking at potentially freezing some of my eggs, as I have endometriomas. I'm still undecided as to whether I want children
Hi everyone, I'm doing a little bit of research so I can take a huge stack of notes to my next gynaecology appointment, and wondered if anyone was able to share their experiences. I'm looking at potentially freezing some of my eggs, as I have endometriomas. I'm still undecided as to whether I want children
GrouchoSparx
in
Endometriosis UK
7 months ago
Anyone been diagnosed with adenomyosis after menopause
I'm 55, post menopausal and just been diagnosed with adenomyosis, also with fibroids and gartner duct cyst, wondering if hysterectomy is the way to go
I'm 55, post menopausal and just been diagnosed with adenomyosis, also with fibroids and gartner duct cyst, wondering if hysterectomy is the way to go
Mel5523
in
Menopause and Perimenopause Support
7 months ago
endometriosis on uterine artery.
I had my second surgery yesterday. Surgeon removed a lot of endo but was unable to remove it from my uterine artery due to the risk of hysterectomy and we would like to have another baby at some point before I go down this route. I was just wondering if anyone else has this? Were you able to conceive
I had my second surgery yesterday. Surgeon removed a lot of endo but was unable to remove it from my uterine artery due to the risk of hysterectomy and we would like to have another baby at some point before I go down this route. I was just wondering if anyone else has this? Were you able to conceive
Emmaja_ne
in
Endometriosis UK
7 months ago
Right Sided pelvic pain
Hi I am new here and wanted to tell my story with the hope that I can get a better understanding as to what is happening with me, as I am really confused and my mental health is really suffering because of this.I had a hysterectomy (full laproscopic) in May 2013 for heavy periods and pelvic pain. The
Hi I am new here and wanted to tell my story with the hope that I can get a better understanding as to what is happening with me, as I am really confused and my mental health is really suffering because of this.I had a hysterectomy (full laproscopic) in May 2013 for heavy periods and pelvic pain. The
della333AB
in
Pelvic Pain Support Network
7 months ago
Constipation & Deep infiltrating endo any tips?
hi all Had a recent diagnosis of deep infiltrating endo seen to be throughout pelvis, adhered to fallopian tubes, ovaries, rectum and sigmoid colon, got significant issues now with chronic constipation, much worse when on a period, saw my own GP last week who suggested probiotics , about to pick those
hi all Had a recent diagnosis of deep infiltrating endo seen to be throughout pelvis, adhered to fallopian tubes, ovaries, rectum and sigmoid colon, got significant issues now with chronic constipation, much worse when on a period, saw my own GP last week who suggested probiotics , about to pick those
Menopausal7
in
Endometriosis UK
5 months ago
Mother Diagnosed with Stage 4 OC, recurrence, now liver traces
Hi everyone, looking for advice/suggestions: My Mother currently fighting stage 4 Ovarian Cancer recurrence (high grade Serous Carcinoma) first diagnosed in January 2022. Started Chemo in Feb, 2022, got a Full Hysterectomy surgery and received Hipec chemotherapy, was free of cancer by August only
Hi everyone, looking for advice/suggestions: My Mother currently fighting stage 4 Ovarian Cancer recurrence (high grade Serous Carcinoma) first diagnosed in January 2022. Started Chemo in Feb, 2022, got a Full Hysterectomy surgery and received Hipec chemotherapy, was free of cancer by August only
akhilsalwan
in
My Ovacome
7 months ago
Mother Diagnosed with Stage 4 OC - Recurrence, now Liver traces
Hi everyone, looking for advice/suggestions: My Mother currently fighting stage 4 Ovarian Cancer recurrence (high grade Serous Carcinoma) first diagnosed in January 2022. Started Chemo in Feb, 2022, got a Full Hysterectomy surgery and received Hipec chemotherapy, was free of cancer by August only to
Hi everyone, looking for advice/suggestions: My Mother currently fighting stage 4 Ovarian Cancer recurrence (high grade Serous Carcinoma) first diagnosed in January 2022. Started Chemo in Feb, 2022, got a Full Hysterectomy surgery and received Hipec chemotherapy, was free of cancer by August only to
akhilsalwan
in
OvaCare
7 months ago
High Testosterone Level
Has Anyone experienced high testosterone level along with hypothyroidism or have any ideas why I should have it. I haven't posted for a long time for various reasons and being very unwell. However reached the end of my tether with our GP practice and everything else. Getting nowhere and no life I
Has Anyone experienced high testosterone level along with hypothyroidism or have any ideas why I should have it. I haven't posted for a long time for various reasons and being very unwell. However reached the end of my tether with our GP practice and everything else. Getting nowhere and no life I
Sallybones
in
Thyroid UK
7 months ago
Alexa
hi just seen this add on to my usual h/u log in. Well as above my name is Alexa and my journey began in 2020 when l had an unexpected bleed at the age of 74. My first surgeon didn’t take me seriously when l told him l had a post meno haemorrhage which to be blunt kept me on the loo for almost half
hi just seen this add on to my usual h/u log in. Well as above my name is Alexa and my journey began in 2020 when l had an unexpected bleed at the age of 74. My first surgeon didn’t take me seriously when l told him l had a post meno haemorrhage which to be blunt kept me on the loo for almost half
AlexaMac
in
Gynae Cancer Support
7 months ago
Consultant decided to withhold info from laparoscopy :(
Hello lovelies. I hope you don't mind me posting. I'm not actually sure what my diagnosis is. So, I have been having severe pelvic pain for 2 years and had lots of tests. In the summer i had a laparoscopy, which showed an enlarged uterus, query adenomyosis. That's all it said and that was sent to my
Hello lovelies. I hope you don't mind me posting. I'm not actually sure what my diagnosis is. So, I have been having severe pelvic pain for 2 years and had lots of tests. In the summer i had a laparoscopy, which showed an enlarged uterus, query adenomyosis. That's all it said and that was sent to my
Mindfullness4791
in
Endometriosis UK
7 months ago
Consultant decided to withhold information from laparoscopy :(
Hello lovelies. So, I have been having severe pelvic pain for 2 years and had lots of tests. In the summer i had a laparoscopy, which showed an enlarged uterus, query adenomyosis. That's all it said and that was sent to my gp.I had a scan previous to this that showed a large fibroid. When I queried this
Hello lovelies. So, I have been having severe pelvic pain for 2 years and had lots of tests. In the summer i had a laparoscopy, which showed an enlarged uterus, query adenomyosis. That's all it said and that was sent to my gp.I had a scan previous to this that showed a large fibroid. When I queried this
Mindfullness4791
in
Pelvic Pain Support Network
7 months ago
black bowel blood.
I’ve been diagnosed with endometriosis in my pelvis after it was found on my appendix after my appendectomy for about two years now, I’ve been bleeding from my bowels, and it really is loads with a few black clots, Now it’s around 10 + days a month ( I’m 16 years post complete hysterectomy , so no
I’ve been diagnosed with endometriosis in my pelvis after it was found on my appendix after my appendectomy for about two years now, I’ve been bleeding from my bowels, and it really is loads with a few black clots, Now it’s around 10 + days a month ( I’m 16 years post complete hysterectomy , so no
Joonaspryte
in
Endometriosis UK
22 days ago
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