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Abdominal hysterectomy
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Does tibilone get better?
Hello everyone, I've just finished a 6 month course of prostap with no add back hrt. I had a pretty rough time on prostap alone, apparently I was supposed to be prescribed hrt alongside but never was, and in order to carry on my consultant has now added in tibilone. I thought the prostap was bad but
Hello everyone, I've just finished a 6 month course of prostap with no add back hrt. I had a pretty rough time on prostap alone, apparently I was supposed to be prescribed hrt alongside but never was, and in order to carry on my consultant has now added in tibilone. I thought the prostap was bad but
Womble84
in
Endometriosis UK
6 months ago
Post Surgery Issues
Hi All, I had a total laparoscopic hysterectomy in July and all healed well - very happy. Then the past few days the incision in my belly button has started hurting, I have a swollen belly and it feels like a UTI then I have some bleeding from my belly button and it has a red mark around it. It looks
Hi All, I had a total laparoscopic hysterectomy in July and all healed well - very happy. Then the past few days the incision in my belly button has started hurting, I have a swollen belly and it feels like a UTI then I have some bleeding from my belly button and it has a red mark around it. It looks
TJ2021
in
Endometriosis UK
6 months ago
first lap - nothing found. Please help.
Hi, I’m new here (or I’ve been acting like a shadow for months, reading your stories & experiences and feeling a sense of support from you all without reaching out, so firstly thank you) I have had ongoing pelvic pain since 2021. Continuously. It started as a niggle in my right ovary. I noticed it
Hi, I’m new here (or I’ve been acting like a shadow for months, reading your stories & experiences and feeling a sense of support from you all without reaching out, so firstly thank you) I have had ongoing pelvic pain since 2021. Continuously. It started as a niggle in my right ovary. I noticed it
GraceElli
in
Endometriosis UK
6 months ago
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pelvic floor
Hi everyone, I hope that you are doing okay. I was wondering if anyone is also suffering with pelvic floor dysfunction as well as evil endo? I have stage 3/4 my consultant wanted me to try prostap prior to hysterectomy (I am petrified) and have not started it yet. I guess I’m wondering if anyone
Hi everyone, I hope that you are doing okay. I was wondering if anyone is also suffering with pelvic floor dysfunction as well as evil endo? I have stage 3/4 my consultant wanted me to try prostap prior to hysterectomy (I am petrified) and have not started it yet. I guess I’m wondering if anyone
Silkthrow
in
Endometriosis UK
6 months ago
Bowel pain, bleeding and colonoscopy
Hello, I am writing today for advice - I am 40 year old, waiting for a Hysterectomy in Scotland. Suspected Endometriosis due to pain and bleeding, this is being managed with Provera and transexamic acid. Anyway, the most recent problem is bleeding from my bottom. Spoke to GP and had blood tests and
Hello, I am writing today for advice - I am 40 year old, waiting for a Hysterectomy in Scotland. Suspected Endometriosis due to pain and bleeding, this is being managed with Provera and transexamic acid. Anyway, the most recent problem is bleeding from my bottom. Spoke to GP and had blood tests and
Kittie5117
in
Endometriosis UK
6 months ago
Abdominal ultrasound
Hiya,Would just like people's views/experiences on if endo will be picked up on an ultrasound or the abdomen. I've had pelvic mri before which picked up endo everywhere and I'm awaiting surgery (endo,hysterectomy and bowel). I've not got abdomen pains so they've got me down for an ultrasound. I feel
Hiya,Would just like people's views/experiences on if endo will be picked up on an ultrasound or the abdomen. I've had pelvic mri before which picked up endo everywhere and I'm awaiting surgery (endo,hysterectomy and bowel). I've not got abdomen pains so they've got me down for an ultrasound. I feel
Loveneige
in
Endometriosis UK
6 months ago
Smear test problems
So I went for a smear on Tuesday and it was pretty awful. She couldn't find my cervix and I was bleeding (because I'm always bleeding). She tried all different sizes and had me lying on my side at one point but no joy. She said I'd have to come back in 6 weeks. Has anyone else had problems with smears
So I went for a smear on Tuesday and it was pretty awful. She couldn't find my cervix and I was bleeding (because I'm always bleeding). She tried all different sizes and had me lying on my side at one point but no joy. She said I'd have to come back in 6 weeks. Has anyone else had problems with smears
Sunset-lady
in
Endometriosis UK
6 months ago
Ovarian mass continued...
Hi all still in limbo. I got my results recently of MRI repeated in October last one was March. The mass has only increased marginally in size. I have repeated CEA and CA125 so should get those results tomorrow. Last time they said it was solid but this time they said it is not solid component. I don't
Hi all still in limbo. I got my results recently of MRI repeated in October last one was March. The mass has only increased marginally in size. I have repeated CEA and CA125 so should get those results tomorrow. Last time they said it was solid but this time they said it is not solid component. I don't
Ova104
in
My Ovacome
6 months ago
Starting "zolodex" or Gnhr injections
After months of arguing to get an appointment i got a cancellation last min yay! So she has suggested starting the Zolodex injections as my cries for a hysterectomy are ignored again, but honestly i think at this point if she said try licking windows i would give it a go! lol Just wondering if anyone
After months of arguing to get an appointment i got a cancellation last min yay! So she has suggested starting the Zolodex injections as my cries for a hysterectomy are ignored again, but honestly i think at this point if she said try licking windows i would give it a go! lol Just wondering if anyone
rubine7521
in
Women's Health
6 months ago
pain management
Hi all I had a full hysterectomy in February this year & endometriosis has already come back & is also on my bowel & bladder. I’ve taken so many meds & I’m still lying here awake in absolute agony. Any advice/recommendations for pain relief would be greatly appreciated. Thanks
Hi all I had a full hysterectomy in February this year & endometriosis has already come back & is also on my bowel & bladder. I’ve taken so many meds & I’m still lying here awake in absolute agony. Any advice/recommendations for pain relief would be greatly appreciated. Thanks
Penguin20_23
in
Women's Health
6 months ago
pain management
Hi all I had a full hysterectomy in February this year & endometriosis has already come back & is also on my bowel & bladder. I’ve taken so many meds & I’m still lying here awake in absolute agony. Any advice/recommendations for pain relief would be greatly appreciated. Thanks
Hi all I had a full hysterectomy in February this year & endometriosis has already come back & is also on my bowel & bladder. I’ve taken so many meds & I’m still lying here awake in absolute agony. Any advice/recommendations for pain relief would be greatly appreciated. Thanks
Penguin20_23
in
The Endometriosis Foundation
6 months ago
pain management
Hi all I had a full hysterectomy in February this year & endometriosis has already come back & is also on my bowel & bladder. I’ve taken so many meds & I’m still lying here awake in absolute agony. Any advice/recommendations for pain relief would be greatly appreciated. Thanks
Hi all I had a full hysterectomy in February this year & endometriosis has already come back & is also on my bowel & bladder. I’ve taken so many meds & I’m still lying here awake in absolute agony. Any advice/recommendations for pain relief would be greatly appreciated. Thanks
Penguin20_23
in
Endometriosis UK
6 months ago
Feeling low after consultant meeting following laoaroscopy
I have a long history of pelvic pain. I had a laparoscopy in August and no Endo was found but they did say I have a globular uterus, which is probably caused by Adenomyosis. I wasn't surprised, as I have all the symptoms. I met with the consultant and he did play my symptoms down. He said that the globular
I have a long history of pelvic pain. I had a laparoscopy in August and no Endo was found but they did say I have a globular uterus, which is probably caused by Adenomyosis. I wasn't surprised, as I have all the symptoms. I met with the consultant and he did play my symptoms down. He said that the globular
Mindfullness4791
in
Endometriosis UK
6 months ago
Local hospital treats endometriosis in general gyn
I started experiencing cyclical pain last summer, after ultrasound and mri they noted I had an 8cm endometioma on one ovary and DIE behind my other ovary. In February they said I would be discussed at mdt with endo specialist. In March I was told to wait for an appointment. In October I turned up to
I started experiencing cyclical pain last summer, after ultrasound and mri they noted I had an 8cm endometioma on one ovary and DIE behind my other ovary. In February they said I would be discussed at mdt with endo specialist. In March I was told to wait for an appointment. In October I turned up to
Hidden
in
Endometriosis UK
6 months ago
Going Private
I can't wait any longer so I've decided to go private and I've booked to see a consultant next week. I can't get my head around the fact I can see the same consultant I have to wait a year for on the NHS next week if I pay £200. I'm 50, currently on continuous provera and estrogen and I'm bleeding heavily
I can't wait any longer so I've decided to go private and I've booked to see a consultant next week. I can't get my head around the fact I can see the same consultant I have to wait a year for on the NHS next week if I pay £200. I'm 50, currently on continuous provera and estrogen and I'm bleeding heavily
Sunset-lady
in
Endometriosis UK
6 months ago
Biopsy prior lap
Hello ladies! I am about to have a partial hysterectomy in december, i am already terrified, gutted, i am s...ing on myself with fear. My consultant told me I need to have a biopsy from my womb prior to surgery so he can know there is nothing dodgy there except a lot of fibroids he has already seen
Hello ladies! I am about to have a partial hysterectomy in december, i am already terrified, gutted, i am s...ing on myself with fear. My consultant told me I need to have a biopsy from my womb prior to surgery so he can know there is nothing dodgy there except a lot of fibroids he has already seen
Pisi
in
Endometriosis UK
6 months ago
Adenomyosis
Do you always need a hysterectomy with Adenomyosis? I've just been diagnosed,also with suspected Endo, ovaries 'stuck' together and 6 ovarian cysts. Does it always progress to get much worse and possible endo cancer? I've had thyroid cancer and seen there is a link with Adenomyosis and thyroid cancer
Do you always need a hysterectomy with Adenomyosis? I've just been diagnosed,also with suspected Endo, ovaries 'stuck' together and 6 ovarian cysts. Does it always progress to get much worse and possible endo cancer? I've had thyroid cancer and seen there is a link with Adenomyosis and thyroid cancer
DarkStar85
in
Endometriosis UK
6 months ago
Caelyx and hair loss
Hello,This journey against ovarian cancer stage IV with bcra1 mutation started in June 2016, with chemo, debulking hysterectomy surgery and more chemo...stayed in avastin and then olaparib as maintenance until had a reocurrence in February 2022, spread to collarbone lymph nodes and tummy.Lost for the
Hello,This journey against ovarian cancer stage IV with bcra1 mutation started in June 2016, with chemo, debulking hysterectomy surgery and more chemo...stayed in avastin and then olaparib as maintenance until had a reocurrence in February 2022, spread to collarbone lymph nodes and tummy.Lost for the
Pumpkininja
in
My Ovacome
7 months ago
EGPA and Cancer
Hi Every one I was diagnosed with EGPA about 5 years ago. I have been on Methotrexate since then and on and off low doses of Prednisolone. I have hardly had any symptoms . However in February this year I was diagnosed with womb cancer, I had a hysterectomy which be re moved the cancer and chemo and
Hi Every one I was diagnosed with EGPA about 5 years ago. I have been on Methotrexate since then and on and off low doses of Prednisolone. I have hardly had any symptoms . However in February this year I was diagnosed with womb cancer, I had a hysterectomy which be re moved the cancer and chemo and
Farnorth
in
Vasculitis UK
7 months ago
STAGE 1C1 Grade 2
Hello all Hope everyone is doing ok. I am new here. I found out end of August that I had a 17cm cyst on my left ovary. The MRI did not determine if the cyst was malignant or benign. My gynae-oncologist arranged for emergency surgery on the 6th September but during surgery it burst. I had my left
Hello all Hope everyone is doing ok. I am new here. I found out end of August that I had a 17cm cyst on my left ovary. The MRI did not determine if the cyst was malignant or benign. My gynae-oncologist arranged for emergency surgery on the 6th September but during surgery it burst. I had my left
Kscott10
in
My Ovacome
7 months ago
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