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Experiences with
Abdominal hysterectomy
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Is it hypothyroidism and not ADHD?
I had been diagnosed with hypothyroidism several years ago and was on Synthroid. I am not sure how it happened, but then I was told my thyroid "corrected" itself and no longer needed to be on it. At the time, I trusted my doctors and didn't know what I know now. I was not doing well at all, but had no
I had been diagnosed with hypothyroidism several years ago and was on Synthroid. I am not sure how it happened, but then I was told my thyroid "corrected" itself and no longer needed to be on it. At the time, I trusted my doctors and didn't know what I know now. I was not doing well at all, but had no
HeartWoman
in
Thyroid UK
3 years ago
Endometriosis spread to the kidney & ureter, nephrostomy fitted and more major surgery ahead… any advice or similar experience?
Since my last post I have been in and out of hospital ☹️ I had lots of blood in the urine and severe pain in my back and side. After tests and scans they found my left kidney wasn’t functioning and the ureter was blocked all down to growth of endometriosis. The surgeon confirmed in my previous surgery
Since my last post I have been in and out of hospital ☹️ I had lots of blood in the urine and severe pain in my back and side. After tests and scans they found my left kidney wasn’t functioning and the ureter was blocked all down to growth of endometriosis. The surgeon confirmed in my previous surgery
Greys90
in
Endometriosis UK
3 years ago
Advice 1rst reccurrence
Hi, I was diagnosed on Dec 2019, high grade fallopian tube cancer in stage 1, had radical hysterectomy, etc, and 6 cycles of carbo\taxol from march to july 2020, BRCA negative in blood. On september 2021 my CA 125 marked 80, it was 13 on june, and a reccurrence was confirmed in January 2022 in 8 areas
Hi, I was diagnosed on Dec 2019, high grade fallopian tube cancer in stage 1, had radical hysterectomy, etc, and 6 cycles of carbo\taxol from march to july 2020, BRCA negative in blood. On september 2021 my CA 125 marked 80, it was 13 on june, and a reccurrence was confirmed in January 2022 in 8 areas
Marylight
in
Gynae Cancer Support
3 years ago
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What are the best pads?
Hi all, so in about 5wks I'm have a total hysterectomy, I know I will need pads but which are the best ones to use/take in with me? Any advice would be great, thanks xx
Hi all, so in about 5wks I'm have a total hysterectomy, I know I will need pads but which are the best ones to use/take in with me? Any advice would be great, thanks xx
Pureunicorn
in
Endometriosis UK
3 years ago
Advice 1rst recurrence
Hi, I was diagnosed on Dec 2019, high grade fallopian tube cancer in stage 1, had radical hysterectomy, etc, and 6 cycles of carbo\taxol from march to july 2020, BRCA negative in blood. On september 2021 my CA 125 marked 80, it was 13 on june, and a reccurrence was confirmed in January 2022 in 8 areas
Hi, I was diagnosed on Dec 2019, high grade fallopian tube cancer in stage 1, had radical hysterectomy, etc, and 6 cycles of carbo\taxol from march to july 2020, BRCA negative in blood. On september 2021 my CA 125 marked 80, it was 13 on june, and a reccurrence was confirmed in January 2022 in 8 areas
Marylight
in
OvaCare
3 years ago
Advice 1st reccurrence
Hi, I was diagnosed on Dec 2019, high grade fallopian tube cancer in stage 1, had radical hysterectomy, etc, and 6 cycles of carbo\taxol from march to july 2020, BRCA negative in blood. On september 2021 my CA 125 marked 80, it was 13 on june, and a reccurrence was confirmed in January 2022 in 8 areas
Hi, I was diagnosed on Dec 2019, high grade fallopian tube cancer in stage 1, had radical hysterectomy, etc, and 6 cycles of carbo\taxol from march to july 2020, BRCA negative in blood. On september 2021 my CA 125 marked 80, it was 13 on june, and a reccurrence was confirmed in January 2022 in 8 areas
Marylight
in
My Ovacome
3 years ago
Advice 1st reccurrence
Hi, I was diagnosed on Dec 2019, high grade fallopian tube cancer in stage 1, had radical hysterectomy, etc, and 6 cycles of carbo\taxol from march to july 2020, BRCA negative in blood. On september 2021 my CA 125 marked 80, it was 13 on june, and a reccurrence was confirmed in January 2022 in 8 areas
Hi, I was diagnosed on Dec 2019, high grade fallopian tube cancer in stage 1, had radical hysterectomy, etc, and 6 cycles of carbo\taxol from march to july 2020, BRCA negative in blood. On september 2021 my CA 125 marked 80, it was 13 on june, and a reccurrence was confirmed in January 2022 in 8 areas
Marylight
in
SHARE Ovarian Cancer Support
3 years ago
HGSOC, BRCA -ve, Platinum Resistant Stage 4
Hi all Best wishes and thoughts to everyone going through this festive season managing OC. Looking for some direction as my wife and I just seem to be hitting wall after wall with her current condition and treatment. Journey so far: Diagnosed stage 3 c last Sept Carbo platin and Taxol for 4 cycles (12
Hi all Best wishes and thoughts to everyone going through this festive season managing OC. Looking for some direction as my wife and I just seem to be hitting wall after wall with her current condition and treatment. Journey so far: Diagnosed stage 3 c last Sept Carbo platin and Taxol for 4 cycles (12
Lamets
in
My Ovacome
3 years ago
Has anyone their endo return after a full hysterectomy?
I had a full hysterectomy back in July including ovaries. The endo had also spread to my bowel. Although I wasn't told specifically, the surgeon said my op went well and so I assumed that all the endo had been removed. The past week or so I've been getting some familiar pains back in my lower stomach
I had a full hysterectomy back in July including ovaries. The endo had also spread to my bowel. Although I wasn't told specifically, the surgeon said my op went well and so I assumed that all the endo had been removed. The past week or so I've been getting some familiar pains back in my lower stomach
Freddie20620
in
Endometriosis UK
3 years ago
On to my next treatment plan...
I had Clear Cell Ovarian Cancer, I then had 3 rounds of chemo, a total hysterectomy, then 3 more rounds of chemo. I saw my Gyn/Oncologist in December, & she told me that I was in remission, & my CT Scan had no signs of Cancer.... But she wants me to start a maintenance of Avastin for 2 years. Has anyone
I had Clear Cell Ovarian Cancer, I then had 3 rounds of chemo, a total hysterectomy, then 3 more rounds of chemo. I saw my Gyn/Oncologist in December, & she told me that I was in remission, & my CT Scan had no signs of Cancer.... But she wants me to start a maintenance of Avastin for 2 years. Has anyone
gta03
in
SHARE Ovarian Cancer Support
3 years ago
Laparoscopy after full hysterectomy?...
Hi warriors, I hope you are all having a good day, my question is, has anyone had a total hysterectomy with ovaries removed, then had another laparoscopy to find more endometriosis? Any advice and stories much appreciated 😊 Big hug x
Hi warriors, I hope you are all having a good day, my question is, has anyone had a total hysterectomy with ovaries removed, then had another laparoscopy to find more endometriosis? Any advice and stories much appreciated 😊 Big hug x
bighug
in
Endometriosis UK
3 years ago
Pain relief
Hi, I have severe endometriosis and am waiting for excision surgery and hysterectomy. I’ve avoided painkillers until now because of side effects particularly on my bowel but I’m really struggling to manage now. I’m not able to do much day to day anymore other than getting showered and dressed and
Hi, I have severe endometriosis and am waiting for excision surgery and hysterectomy. I’ve avoided painkillers until now because of side effects particularly on my bowel but I’m really struggling to manage now. I’m not able to do much day to day anymore other than getting showered and dressed and
Puffling1
in
Endometriosis UK
3 years ago
Cysts
I had a hysterectomy in 2011 but kept my ovaries. But Oct 2020 i had them removed. Can I still get cyst and endo even though it's all been removed?
I had a hysterectomy in 2011 but kept my ovaries. But Oct 2020 i had them removed. Can I still get cyst and endo even though it's all been removed?
gaynorwishes
in
Endometriosis UK
3 years ago
Anyone had Decapeptyl injections and no change in symptoms/no menopause onset?
I’m about to have my fifth decapeptyl injection to manage heavy bleeding with fibroids and nothing has changed, in fact possibly worse. Bleeding consistently since August with some flooding after 3rd injection. No menopause symptoms. Had add back tibolone HRT from the start but stopped 2 weeks ago
I’m about to have my fifth decapeptyl injection to manage heavy bleeding with fibroids and nothing has changed, in fact possibly worse. Bleeding consistently since August with some flooding after 3rd injection. No menopause symptoms. Had add back tibolone HRT from the start but stopped 2 weeks ago
Jlg-
in
Endometriosis UK
3 years ago
Still waiting
Hi not wrote for a while, I'm still waiting on a hysterectomy for my endometriosis, my pain is so bad today I can't hardly move I'm due my prostap injection tomorrow is this normal it's sooooo bad I could cry xx
Hi not wrote for a while, I'm still waiting on a hysterectomy for my endometriosis, my pain is so bad today I can't hardly move I'm due my prostap injection tomorrow is this normal it's sooooo bad I could cry xx
Bubblepoppy
in
Endometriosis UK
3 years ago
Total hysterectomy without HRT?
Hi, I had a total hysterectomy three weeks ago for severe endometriosis and adenomyosis. I have been offered oestrogen HRT but I’m reluctant to use it because of the endometriosis and bad reactions to the pill and coil in the past. I am trying herbal remedies and don’t feel too bad. Can anyone tell
Hi, I had a total hysterectomy three weeks ago for severe endometriosis and adenomyosis. I have been offered oestrogen HRT but I’m reluctant to use it because of the endometriosis and bad reactions to the pill and coil in the past. I am trying herbal remedies and don’t feel too bad. Can anyone tell
lauramw
in
Endometriosis UK
3 years ago
Dosage Change needed? Can you help
Hi All. It’s been some time and was doing well. Dosage had been more or less consistent and feeling well until now. I am taking in split doses 2 grains of NDT and 25mcg of T3. Started to put on weight and feeling a bit moody. Took bloods and results are as follows:- TSH- 0.005 (0.27-4.2) ; T3 - 4.39
Hi All. It’s been some time and was doing well. Dosage had been more or less consistent and feeling well until now. I am taking in split doses 2 grains of NDT and 25mcg of T3. Started to put on weight and feeling a bit moody. Took bloods and results are as follows:- TSH- 0.005 (0.27-4.2) ; T3 - 4.39
SophiaR
in
Thyroid UK
3 years ago
Pain after Hysterectomy
Hi ladies, I got diagnosed with Endometriosis and Adenomyosis earlier this year (although I suffer since I was 12). I've quickly decided to do the Hysterectomy as I don't want more kids. It's 2 months and 1 day today since the surgery but I still have pelvic pain, "period like" pain and also no excitement
Hi ladies, I got diagnosed with Endometriosis and Adenomyosis earlier this year (although I suffer since I was 12). I've quickly decided to do the Hysterectomy as I don't want more kids. It's 2 months and 1 day today since the surgery but I still have pelvic pain, "period like" pain and also no excitement
Suarez86
in
Endometriosis UK
3 years ago
Confused about surgery
Hi all I am really confused and really need some advise. I am 46 years old and have been suffering with Endometriosis since 2010 . I have have had 2 laparoscopy excisions over the years and have tried Zoladex and merina coil . Unfortunately nothing has really helped long term term. I have serve
Hi all I am really confused and really need some advise. I am 46 years old and have been suffering with Endometriosis since 2010 . I have have had 2 laparoscopy excisions over the years and have tried Zoladex and merina coil . Unfortunately nothing has really helped long term term. I have serve
Faithstar
in
Endometriosis UK
3 years ago
Non-surgical consultant recommendations
I have been referred to Worcester NHS for help with my endo. I have been triaged as non-urgent (despite being unable to walk for the last 10 days) and apparently that means at least a year for an initial appointment. I am thinking of paying privately because I just can't cope with this for another
I have been referred to Worcester NHS for help with my endo. I have been triaged as non-urgent (despite being unable to walk for the last 10 days) and apparently that means at least a year for an initial appointment. I am thinking of paying privately because I just can't cope with this for another
veggiegal
in
Endometriosis UK
3 years ago
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