Right Sided pelvic pain: Hi I am new... - Pelvic Pain Suppo...

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Right Sided pelvic pain

della333AB profile image
6 Replies

Hi I am new here and wanted to tell my story with the hope that I can get a better understanding as to what is happening with me, as I am really confused and my mental health is really suffering because of this.I had a hysterectomy (full laproscopic) in May 2013 for heavy periods and pelvic pain. The findings were Adenmyosis in the womb.

Three years previous to the hysterectomy I was diagnosed with Fibromyalgia and Interstial Cystitis. And then in 2013 after the hysterectomy and removal of my ovaries my journey began.

I have never experienced so much pain and misery in all my life continously for the last 11 years. I have had right side chronic pelvic pain ever since my Hysterectomy. My fibromyalgia is alot worse and so is the interstital cystitis.

A recent CT scan showed a 3.5cm mass. GP ordered a MRI to confirm if benign and the results where a probable implanted device left in from patients previous hysterectomy.

A followup appointment from Gyny said the radiologist has it wrong. After asking for a second opinion I was offered a vaginal scan which was painful and this revealed a 3cm area consistant with the MRI scan.!!

I am so confused in constant pain and nothing is happening. Five weeks ago I was told I would go on a list for laporoscopy but now this has been declined due to to many adhesions and maybe injury to the bowel by the surgeon who preformed the hysterectomy.

I have been on Morphine for 10 years now and at a loss what to do so I thought in posting my story I could be given some advice. Thankyou.

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della333AB
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6 Replies
LNLPANDORAS profile image
LNLPANDORAS

I would would find a highly recommended urogynocologist AND a highly recommended medical malpractice attorney.

Dondonsm23 profile image
Dondonsm23 in reply toLNLPANDORAS

God bless you , you have been through it must be thinking were do I go from here take all the advice you can keep going look into what the previous lady advised to xx

della333AB profile image
della333AB in reply toDondonsm23

Thankyou for your reply unfortunately I'm at a loss what to do.

della333AB profile image
della333AB in reply toLNLPANDORAS

Thankyou for your reply. Unfortunately for me I am unable to pay privately. I am not allowed to change healthboard unless I move to another area. And when I asked for a second opinion its the same Gyny team. I just want them to be honest and they are not they knew about this in 2015 (no one ever told me) but because it hasn't grown in size they wont do anything. I feel like I'm going crazy this has caused me agony for years.

Goldsun profile image
Goldsun

I am so sorry you have suffered so much. I really hope you can get some answers soon. It is so frustrating waiting, I hope you get some good advice from other members. Thank you for sharing your story ❤️

della333AB profile image
della333AB in reply toGoldsun

Thankyou for your reply

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