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Experiences with
Abdominal hysterectomy
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B12 deficiency v. Ferritin deficiency
Hi everyone. Some of you may have come across one of my posts this week and may have interacted, but if not, hi 😊 I’ve been going through a lot of the posts on here looking for answers to my query before I post this, but haven’t seen anything that covers it. Is there anybody here that has suffered
Hi everyone. Some of you may have come across one of my posts this week and may have interacted, but if not, hi 😊 I’ve been going through a lot of the posts on here looking for answers to my query before I post this, but haven’t seen anything that covers it. Is there anybody here that has suffered
MLJ2024
in
Pernicious Anaemia Society
7 months ago
Ten years later….
Never quite sure whether this kind of post is cheering or just annoying, but, hey, it might cheer someone up and the rest can move swiftly on. In March 2014 I was diagnosed with 3a OC, with a CA125 of 3,900-ish and the BRCA1 gene. Had a total hysterectomy and weekly carbo/taxol on ICON8. Now I’m 77
Never quite sure whether this kind of post is cheering or just annoying, but, hey, it might cheer someone up and the rest can move swiftly on. In March 2014 I was diagnosed with 3a OC, with a CA125 of 3,900-ish and the BRCA1 gene. Had a total hysterectomy and weekly carbo/taxol on ICON8. Now I’m 77
Boot1947
in
My Ovacome
1 month ago
Waiting for laparascopic Hysterectomy but struggling with womb and bowel symptoms
Hello everyone, I hopefully have a date next month for a laparoscopic Hysterectomy - waiting for confirmation in writing. Have been waiting for nearly 2 years on NHS. I am age 40, living in Scotland. I had none of these Gynae issues until about 3 years ago. Since then, I have had heavy bleeding, cramps
Hello everyone, I hopefully have a date next month for a laparoscopic Hysterectomy - waiting for confirmation in writing. Have been waiting for nearly 2 years on NHS. I am age 40, living in Scotland. I had none of these Gynae issues until about 3 years ago. Since then, I have had heavy bleeding, cramps
Kittie5117
in
Endometriosis UK
7 months ago
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pelvic pain
hi. I was diagnosed with Endo last year and had a total hysterectomy in November 2023, everything removed. I’m on estrogen only hrt. last Thursday I had a bit of red blood and since then pelvic pain. Can Endo come back?
hi. I was diagnosed with Endo last year and had a total hysterectomy in November 2023, everything removed. I’m on estrogen only hrt. last Thursday I had a bit of red blood and since then pelvic pain. Can Endo come back?
Emsie971
in
Endometriosis UK
2 months ago
Total hysterectomy with oopherectomy recovery advice needed please!
Hi all, it’s been about 3 years since I wrote into this group. Back then I was considering having a hysterectomy to help relive the symptoms of severe endo. I still couldn’t decide so I decided to wait and see how I felt in a few years. Well, life had other plans. I got stage 3 ovarian cancer at 40
Hi all, it’s been about 3 years since I wrote into this group. Back then I was considering having a hysterectomy to help relive the symptoms of severe endo. I still couldn’t decide so I decided to wait and see how I felt in a few years. Well, life had other plans. I got stage 3 ovarian cancer at 40
Hailun
in
Endometriosis UK
5 months ago
Is hysterectomy my only option?
I was told 12 months ago that I have abcess near ovary and uterus, possibly due to previous infected copper coil. Have had repeated episodes of pelvic pain, hospitalisation, antibiotic treatment. Doctor has now mentioned hysterectomy. I'm waiting for a recent CT scan. Doctor has not mentioned drainage
I was told 12 months ago that I have abcess near ovary and uterus, possibly due to previous infected copper coil. Have had repeated episodes of pelvic pain, hospitalisation, antibiotic treatment. Doctor has now mentioned hysterectomy. I'm waiting for a recent CT scan. Doctor has not mentioned drainage
Hannah818
in
Pelvic Pain Support Network
7 months ago
Pelvic Pain and spotting 9+ years post hysterectomy
Hi my mum had a full hysterectomy following a diagnosis of Stage 1C clear cell OC. 6 months of Chemo followed this. Since treatment and op she has been suffering with what has been described as chronic pelvic pain ever since. She had been told she cannot go on HRT as her cancer was Clear Cell. She
Hi my mum had a full hysterectomy following a diagnosis of Stage 1C clear cell OC. 6 months of Chemo followed this. Since treatment and op she has been suffering with what has been described as chronic pelvic pain ever since. She had been told she cannot go on HRT as her cancer was Clear Cell. She
Livkatt90
in
OvaCare
7 months ago
Pre Op assessment
I was diagnosed in July with stage 4 endo/adeno, bilateral endometriomas and a frozen pelvis, large ovarian cysts, enlarged falopian tubes following MRI and various ultrasounds. I have been on prostrop since, while on the waiting list for surgery. Last month I received a call from the endo nurse saying
I was diagnosed in July with stage 4 endo/adeno, bilateral endometriomas and a frozen pelvis, large ovarian cysts, enlarged falopian tubes following MRI and various ultrasounds. I have been on prostrop since, while on the waiting list for surgery. Last month I received a call from the endo nurse saying
EvilEdna77
in
Endometriosis UK
7 months ago
Started a Blog - The Size of a Melon
I have started a blog to share my experience of Ovarian Caner and hopefully help others. I would really appreciate it if you get time to read it and provide any comments or feedback. A Like, Share of Subscribe would be wonderful. I was diagnosed with an Ovarian Cyst in February and the cyst rapidly
I have started a blog to share my experience of Ovarian Caner and hopefully help others. I would really appreciate it if you get time to read it and provide any comments or feedback. A Like, Share of Subscribe would be wonderful. I was diagnosed with an Ovarian Cyst in February and the cyst rapidly
TeddyandGimli
in
My Ovacome
2 months ago
advice
Over the last few years the pain has returned but after visiting GP all I get is the pain can’t be endometriosis because of the
hysterectomy
. I have had
abdominal
scan and was told everything ok. The pain is excruciating. I feel like I’m on my own and no one is willing to help me.
Over the last few years the pain has returned but after visiting GP all I get is the pain can’t be endometriosis because of the
hysterectomy
. I have had
abdominal
scan and was told everything ok. The pain is excruciating. I feel like I’m on my own and no one is willing to help me.
Hidden
in
Endometriosis UK
11 months ago
Adenomyosis and hysterectomy
Hi, I was diagnosed with Adenomyosis and signs of endometriosis in 2019, been on the hysterectomy waiting list for 2 years and now I’m booked for surgery on 5th March. Now it’s getting closer I’m getting nervous and would just like to hear from anyone who’s had a hysterectomy and how the recovery was
Hi, I was diagnosed with Adenomyosis and signs of endometriosis in 2019, been on the hysterectomy waiting list for 2 years and now I’m booked for surgery on 5th March. Now it’s getting closer I’m getting nervous and would just like to hear from anyone who’s had a hysterectomy and how the recovery was
Kimmi36
in
Endometriosis UK
7 months ago
ivf and endometriosis: gender selection allowed?
Hi, I’m at the stage where I’m thinking about getting a hysterectomy because I just can’t take the pain anymore. The only thing stopping me is children. However, I don’t think I could ever bring a baby girl into the world thinking she could grow up with this condition it would break my heart everyday
Hi, I’m at the stage where I’m thinking about getting a hysterectomy because I just can’t take the pain anymore. The only thing stopping me is children. However, I don’t think I could ever bring a baby girl into the world thinking she could grow up with this condition it would break my heart everyday
Wilderpeople24
in
Endometriosis UK
7 months ago
Decapeptyl injection and marina coil
i have always been told that having endometriosis, i could not get the copper coil? i am currently getting the 3 monthly decapeptly injections and taking body identical HRT. i am not coping well with the progesterone and my doc has now suggested i continue with the injections and also get the marina
i have always been told that having endometriosis, i could not get the copper coil? i am currently getting the 3 monthly decapeptly injections and taking body identical HRT. i am not coping well with the progesterone and my doc has now suggested i continue with the injections and also get the marina
vjhm
in
Endometriosis UK
7 months ago
liver concerns
I had clear cell ovarian cancer and had debulking surgery and hysterectomy a year ago. I recently had sudden right side and back pain and had a scan with blood work. Everything came out ok except my liver numbers (ast and alt) were super high. Could this indicate the start of a reoccurrence? Has
I had clear cell ovarian cancer and had debulking surgery and hysterectomy a year ago. I recently had sudden right side and back pain and had a scan with blood work. Everything came out ok except my liver numbers (ast and alt) were super high. Could this indicate the start of a reoccurrence? Has
Marieck
in
My Ovacome
7 months ago
Right side pelvic pain
Hi I was diagnosed with serous tubal interepitial carcinoma ( stic) in August 2022 after a hysterectomy...I then have an omenectomy and pelvic washouts in sept 2022 ...have been relatively well since but recently have right side pelvic pain every day ...anyone any ideas or suffered with anything similar
Hi I was diagnosed with serous tubal interepitial carcinoma ( stic) in August 2022 after a hysterectomy...I then have an omenectomy and pelvic washouts in sept 2022 ...have been relatively well since but recently have right side pelvic pain every day ...anyone any ideas or suffered with anything similar
Sharonmc73
in
My Ovacome
7 months ago
Could I have Endometriosis?
Hi, I was diagnosed with PCOS at 21 after years of horrific periods. I had the mirena coil fitted for 6 years. No periods, but did get random crippling pains throughout the month and spotting. Had the coil removed July 2022. For the first 6 months my periods were perfect. On time, one/two days of bleeding
Hi, I was diagnosed with PCOS at 21 after years of horrific periods. I had the mirena coil fitted for 6 years. No periods, but did get random crippling pains throughout the month and spotting. Had the coil removed July 2022. For the first 6 months my periods were perfect. On time, one/two days of bleeding
HibiscusDream
in
Endometriosis UK
7 months ago
Coming off Prostap & Tibolone?
Hello all. Wondering if anyone could tell me their experience of coming off a course of Prostap (with or without Tibolone/HRT) please? If you’ve been through this, can I ask whether you just stop cold turkey? Or is it done gradually? Do you need to let your gynae know? Or was it just done on your
Hello all. Wondering if anyone could tell me their experience of coming off a course of Prostap (with or without Tibolone/HRT) please? If you’ve been through this, can I ask whether you just stop cold turkey? Or is it done gradually? Do you need to let your gynae know? Or was it just done on your
Purple_Badgers
in
Endometriosis UK
7 months ago
Hysterectomy. Thanks and goodbye
I have been posting for about a year re my pelvic pain, as initially I was told it could be Endo and then Adenomyosis. I've had a misdiagnosis, when infact I have 4 fibroids in my uterus. The largest being 6cm. This was confirmed on mri but missed by laparoscopy. I am having to out a big complaint in
I have been posting for about a year re my pelvic pain, as initially I was told it could be Endo and then Adenomyosis. I've had a misdiagnosis, when infact I have 4 fibroids in my uterus. The largest being 6cm. This was confirmed on mri but missed by laparoscopy. I am having to out a big complaint in
Mindfullness4791
in
Endometriosis UK
7 months ago
Chocolatemilk44
Diagnosed with ovarian stage 4 in may. I have had 8 rounds of chemo with hysterectomy. Maintenance drug is avastin.
Diagnosed with ovarian stage 4 in may. I have had 8 rounds of chemo with hysterectomy. Maintenance drug is avastin.
chocolatemilk44
in
My Ovacome
7 months ago
Vaginal Tablets Estradiol
Hi I've been on Tibolone since having full hysterectomy 3 years ago, following severe and rapid growing endometriosis. I went through such an ordeal with multiple surgeries in the end and whilst I'm ok and pain free now, it's always in the back of my mind that the endo could come back. I've been prescribed
Hi I've been on Tibolone since having full hysterectomy 3 years ago, following severe and rapid growing endometriosis. I went through such an ordeal with multiple surgeries in the end and whilst I'm ok and pain free now, it's always in the back of my mind that the endo could come back. I've been prescribed
catsrule40
in
Endometriosis UK
7 months ago
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