Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

6,607 members • 8,142 posts

All posts for April 2023

metastatic Lobular

Recently diagnosed metastatic lobular to peritoneal only and waiting arrival of Kisquali. Started Letrozole a week and a half ago. Am taking Xgeva shots...

Recently diagnosed metastatic lobular to peritoneal only and waiting arrival of ...

CLC-52

•1 year ago

10 Replies

Looking for Info on Verzenio ..Ibrance is off The Table!

Any info, links and personal experience would be greatly appreciated!Thanks!🙏🏼

Any info, links and personal experience would be greatly appreciated!Thanks!🙏🏼...

AutumnLove

•1 year ago

10 Replies

Far Infrared Heat Mat with Bone Mets

Has anyone used a Far Infrared Heat Mat that is filled with crystals? I have MBC with bone mets in spine. A friend let me use her mat and I found it really...

Has anyone used a Far Infrared Heat Mat that is filled with crystals? I have MB...

Hidden

•1 year ago

13 Replies

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xgeva/Denosumab

Hi everyone I have been on treatment now for 3 years for MBC, I have bilateral lobular her2+ with mets to my spine, ribs, hips, long bones and my peritoneum....

Hi everyone I have been on treatment now for 3 years for MBC, I have bilateral...

Crazycocker

•1 year ago

23 Replies

For those with bone Mets resolved by medication….

was there damage to the bones after the Mets resolved? Did you need radiation or something else to heal the bone where the Mets wax resolved?

was there damage to the bones after the Mets resolved? Did you need radiation or...

HbbM

•1 year ago

28 Replies

Frustration

Hey there, I am a little frustrated about my current treatment - especially because it seems that none of you are or have been on this IV chemo alone...

Hey there, I am a little frustrated about my current treatment - especially bec...

Iwasborntodothis

•1 year ago

53 Replies

S1 E2 - When Surgical Menopause Wreaks Havoc on Sex Life and Mental Health

There are different sets of challenges when you’re originally diagnosed under 40. One of those challenges is how being surgically induced into menopause rather...

There are different sets of challenges when you’re originally diagnosed under 40...

Adamskd1

•1 year ago

3 Replies

Wanted to share these inspirational thoughts with all of you. Sending hugs.

23 Manifesto Rules for the Year.1. Stare fear in the face. So often fear stops us. Instead live fearless - knowing when to stop and when to move and when to be...

23 Manifesto Rules for the Year.1. Stare fear in the face. So often fear stops u...

love2golfwell

•1 year ago

6 Replies

Lumps from fulvestrant shots

I still have lumps from the past 4 months. How do I get them to go away? It is getting harder for the nurse to find a spot to inject and it is painful when...

I still have lumps from the past 4 months. How do I get them to go away? It is...

JoeyCallie

•1 year ago

25 Replies

why do some MBC get mastectomies?

Hi All, Why do some MBC’ers get a mastectomy ? Even some that are not Oglio’s? Do you think there is a benefit? I know they say there isn’t but I’m seeing...

Hi All, Why do some MBC’ers get a mastectomy ? Even some that are not Oglio’s? ...

DDIL1

•1 year ago

38 Replies

What type of Breast Cancer do you have?

Hello everyone, I am a Breast Cancer Patient Support Manager at SHARE, and a two time cancer survivor myself. I had breast and colon cancer. I am wondering,...

Hello everyone, I am a Breast Cancer Patient Support Manager at SHARE, and a tw...

Adamskd1

•1 year ago

36 Replies

A Sweet and Precious Time

I just wanted you to know that your tender messages have lifted my heart! I never anticipated such an outpouring of love from people across the world. To...

I just wanted you to know that your tender messages have lifted my heart! I neve...

Bestbird

•1 year ago

42 Replies

Lymph Node Armpit Advice

Hello everyone! I have not posted in a while since life has been crazy these past few months. Mom is on year 3 of clear breast scans and hoping to get in the...

Hello everyone! I have not posted in a while since life has been crazy these pa...

janeths466

•1 year ago

13 Replies

nurse called

the nurse called me today and talked to Dr. My dr wants me to keep taking the ibrance til I run out. So I have one more week to go then I have my off week....

the nurse called me today and talked to Dr. My dr wants me to keep taking the ib...

Northcarolinafighter

•1 year ago

2 Replies

Strange Symptoms

I am on Letrozole 25 mg and Ibrance 75 mg. Last summer I developed a feeling of pins and needles all over my body when I went outside in the heat. As a result,...

I am on Letrozole 25 mg and Ibrance 75 mg. Last summer I developed a feeling of ...

sevoia

•1 year ago

5 Replies

Worried

Hi, I was diagnosed with breast cancer in January 2020, had surgery, told my cancer was stage 2 by the surgeon, based on lymph nodes and tumor size. My first...

Hi, I was diagnosed with breast cancer in January 2020, had surgery, told my can...

Dragonfighter

•1 year ago

15 Replies

Coming off Ibrance and fulvestrant. Not feeling great.

Hello. So I am changing meds since I had a progression while on Ibrance and Fulvestrant. I am currently on a med break. I guess to get everything out of my...

Hello. So I am changing meds since I had a progression while on Ibrance and Ful...

Ticket123

•1 year ago

26 Replies

Inspirational

https://youtu.be/8hhd4bFLiIY

AutumnLove

•1 year ago

15 Replies

ibrance schedule

Can anyone on here help me? I had to stop ibrance for an extra week til my numbers came back up. So I technically only took 2 weeks worth instead of 3. Now...

Can anyone on here help me? I had to stop ibrance for an extra week til my numbe...

Northcarolinafighter

•1 year ago

33 Replies

Vitamin D supplements and elevated blood work

here is my story and my question. Everything has been going well for me for about a year. Blood work stable, tumor marker test levels decreasing and stable...

here is my story and my question. Everything has been going well for me for a...

CatLady2022

•1 year ago

14 Replies

Fatigue

I have been on ibrance and letrazole for 5 years. I was diagnosed WITH MBC 5 years ago after being cancer free for 20 years from my breast cancer diagnosis. My...

I have been on ibrance and letrazole for 5 years. I was diagnosed WITH MBC 5 yea...

Alnmouth

•1 year ago

36 Replies

Beautiful Thivers

Happy Easter BIG HUGS

Hidden

•1 year ago

9 Replies

Co-Pay Fund Open

If you are looking for financial assistance, the metastatic breast cancer fund is currently open again via the Patient Advocate Foundation Co-Pay Relief...

If you are looking for financial assistance, the metastatic breast cancer fund i...

purplelikep

•1 year ago

Be the first to reply

Hey Y'all

Just stumbled across this site. I'm a MBC Thriver!! In July 2017 it was confirmed that I in fact had HR+ HER2- BC after years of mammograms and ultrasounds. I...

Just stumbled across this site. I'm a MBC Thriver!! In July 2017 it was confirme...

tamtam425

•1 year ago

11 Replies

metastatic lobular carcinoma to peritoneum

just diagnosed with metastatic lobular carcinoma to the peritoneal. Will start Letrozole/Kisquali soon. Anyone with success on this drug? It’s relatively...

just diagnosed with metastatic lobular carcinoma to the peritoneal. Will start ...

CLC-52

•1 year ago

16 Replies

Back into the operating room, today.

Hopefully, today will be walk in the park with only one large lesion being removed from the liver. In January, I had six lesions removed from my liver, The...

Hopefully, today will be walk in the park with only one large lesion being remov...

jersey-jazz

•1 year ago

23 Replies

Breast cancer

Hi folks, I was diagnosed with breast cancer in January of this year. My first surgery removed a lump and 2 lymph nodes, the second was to take more shavings....

Hi folks, I was diagnosed with breast cancer in January of this year. My first s...

Pixiemax19

•1 year ago

27 Replies

xeloda.

hey ladies ! I’m going to start xeloda in a couple of days. My mbc has progressed in bones and now a spot on the liver. Any info for me for people that are on...

hey ladies ! I’m going to start xeloda in a couple of days. My mbc has progress...

Eliactida1955

•1 year ago

46 Replies

have anyone taken part in the serena 6 trial and can tell me how they got on

I have stage 4 metastatic breast cancer (liver and bones) iv done 6 cycles of Ec chemotherapy and I’m due to start letrazole and abmeciclib on April 21st...

I have stage 4 metastatic breast cancer (liver and bones) iv done 6 cycles of Ec...

Sharonpat

•1 year ago

10 Replies

giredestrant with Everolimus trial

Ibrance and Fulvestrant stopped working. 😢oncologist wants me to do this trial. Has anybody had any experience with this trial or either drug?? Thanks for...

Ibrance and Fulvestrant stopped working. 😢oncologist wants me to do this trial....

Ticket123

•1 year ago

16 Replies

Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

All posts for April 2023

metastatic Lobular

Looking for Info on Verzenio ..Ibrance is off The Table!

Far Infrared Heat Mat with Bone Mets

xgeva/Denosumab

For those with bone Mets resolved by medication….

Frustration

S1 E2 - When Surgical Menopause Wreaks Havoc on Sex Life and Mental Health

Wanted to share these inspirational thoughts with all of you. Sending hugs.

Lumps from fulvestrant shots

why do some MBC get mastectomies?

What type of Breast Cancer do you have?

A Sweet and Precious Time

Lymph Node Armpit Advice

nurse called

Strange Symptoms

Worried

Coming off Ibrance and fulvestrant. Not feeling great.

Inspirational

ibrance schedule

Vitamin D supplements and elevated blood work

Fatigue

Beautiful Thivers

Co-Pay Fund Open

Hey Y'all

metastatic lobular carcinoma to peritoneum

Back into the operating room, today.

Breast cancer

xeloda.

have anyone taken part in the serena 6 trial and can tell me how they got on

giredestrant with Everolimus trial

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