Posts - Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

21,626 members • 15,336 posts

All posts for May 2024

It's 4am and zero sleep tonight

Hi everyone,Update re appointment with prof Brendan Yee at Woolcock. I saw him Wed via video link, lovely chap. I take lowest dose of sifrol.125mg and dr...

Hi everyone,Update re appointment with prof Brendan Yee at Woolcock. I saw him W...

JenniferBut

•15 days ago

9 Replies

Pregabalin

Hello again: I am now down to 50mg per day from 275mg reducing by 25mg weekly. Its not been a problem until now. The dizziness and nausea has returned big...

Hello again: I am now down to 50mg per day from 275mg reducing by 25mg weekly. I...

Keith1231

•15 days ago

13 Replies

Changing opiods

I have severe restless legs and have suffered for many years Recently I came off pramipexole, after augmentation. I am now on Targin 40 mg daily, 15mg at 2pm...

I have severe restless legs and have suffered for many years Recently I came of...

Trish8433

•15 days ago

10 Replies

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I think Strawberries are aggravating my RLS?!

Hello, I think we are all familiar with if you had a terrible night with your legs you think back to everything you did in the afternoon/evening. I think...

Hello, I think we are all familiar with if you had a terrible night with your l...

LavendarCat

•16 days ago

4 Replies

Gabapentin pharmacy change

is it possible that the same medication received from two different providers would not be the same? I have recently returned from a 3 month stay in the...

is it possible that the same medication received from two different providers wo...

Daal

•17 days ago

4 Replies

RLS, Augmentation and Finding a Neurologist in the SW of England

Good morning, I am a long-time sufferer of Fibromyalgia/CFS/RLS, these being my main areas of health concerns, being initially diagnosed way back in 1990. I...

Good morning, I am a long-time sufferer of Fibromyalgia/CFS/RLS, these being my ...

grabananny123

•17 days ago

22 Replies

Help please

I've been in 2 x 88 microgram of pramipexole for about a year, I'm anemic and have just been prescribed ferrous fumarate 210mg a day, I have hated the...

I've been in 2 x 88 microgram of pramipexole for about a year, I'm anemic and ha...

Mittons

•17 days ago

21 Replies

2nd post update from neurology and quick Q. can you see your muscles moving?

hi only my second post, had a very disappointing appt with a private neurologist over my RLS and muscle twitching. brief history mine started as muscle...

hi only my second post, had a very disappointing appt with a private neurologist...

Zenawarrior73

•17 days ago

15 Replies

Cough medicine

Any ideas of cough medicine that husband can take that does not make RLS worse. In UK. Hay fever and chesty cough.

Any ideas of cough medicine that husband can take that does not make RLS worse. ...

Ephemera

•17 days ago

12 Replies

Whirly Whirly bird.

You’ve heard about the whirly whirly bird that flies in ever decreasing circles until it finally flies up its own orifice. Well if not then you’ve probably...

You’ve heard about the whirly whirly bird that flies in ever decreasing circles ...

HipHop1972

•17 days ago

21 Replies

Buprenorphine

IF I dont succeed in finding a Gp who will prescribe my Buprenorphine tablets I may have to try patches instead . Can anyone tell me the usual strength to...

IF I dont succeed in finding a Gp who will prescribe my Buprenorphine tablets I ...

Huntingleroy

•17 days ago

11 Replies

RLS and augmentation – the battle for sufficient treatment.

A HUGE thank you to everyone who has answered and advised me - both on inquiries regarding switch from pramipexole to pregabalin and experiences of treating...

A HUGE thank you to everyone who has answered and advised me - both on inquiries...

Gibbel

•17 days ago

1 Reply

Severe rls

Other meds my mom also has taken are these meds.: gabapentin 800mg, duloksetin hcl. 30-60 mg.

Other meds my mom also has taken are these meds.: gabapentin 800mg, duloksetin ...

SevereRLS-4mom

•17 days ago

4 Replies

update in RLS in pregnancy

I wanted to thank you all for your advice and understanding. I had midwife appointment today and mentioned rls. As expected she knew the name, but was...

I wanted to thank you all for your advice and understanding. I had midwife ap...

Pamests

•17 days ago

4 Replies

Really severe rls plus mds

I recently was able to see my moms records. She has been told she has mds too. Also there is a problem with her blood levels. The doctors cant seem to get her...

I recently was able to see my moms records. She has been told she has mds too. A...

SevereRLS-4mom

•17 days ago

14 Replies

Changing from Ropinorol to Gabapentin.

I had a sleep study done and I have Mild sleep apnea. They told me to quit taking 1.5 mg Ropinorol and start taking 300 mg gabapentin. I can't sleep and I...

I had a sleep study done and I have Mild sleep apnea. They told me to quit ta...

Jackyscooter

•18 days ago

5 Replies

Thinking of switching to Gabapentin or Pregabalin

I had an absolutely horrible night last night. I take 2mg of Ropinirole but took an extra one last night. It's very ineffective and causes me all sorts of...

I had an absolutely horrible night last night. I take 2mg of Ropinirole but took...

Baldrick123

•18 days ago

8 Replies

Buprenorphine update - one week in

Well, I’ve been taking Buprenorphine for a week now, and I can barely believe it. I have had zero RLS! My IRLSS has gone from the high 30s to 0....

Well, I’ve been taking Buprenorphine for a week now, and I can barely believe it...

Claire_lc

•18 days ago

30 Replies

Buprenorphine

I thought I would share my story . I live in Gloucestershire and have suffered with chronic rls for over 30 yrs Dopamine Agonists worked quite well until I hit...

I thought I would share my story . I live in Gloucestershire and have suffered w...

Huntingleroy

•18 days ago

18 Replies

My Story

I've had RLS since childhood and didn't know that I had the malady. Of recent years, it has gotten worse and I was placed on 1mg Pramipexole which worked...

I've had RLS since childhood and didn't know that I had the malady. Of recent y...

Tiredkicker

•18 days ago

17 Replies

Best medication

What is the best medication to switch to when coming off mirapex?

lorri214

•19 days ago

11 Replies

buprenorphine for sleep apnea patients

Does anyone know if you can use buprenorphine if you have sleep apnea and use a cpap? I was taking mirapax and oxycodone. Went off mirapax. Took my last...

Does anyone know if you can use buprenorphine if you have sleep apnea and use a ...

lorri214

•19 days ago

9 Replies

iron clinic - transfusions

hello - has anyone accessed an iron transfusion via the Harley street iron clinic? Despite all my other iron readings being fine my ferritin level remains at...

hello - has anyone accessed an iron transfusion via the Harley street iron clini...

Drls

•19 days ago

10 Replies

Severe symptoms in pregnancy.

I’ve had RLS ever since I was a child, I never felt a need to have official diagnosis as it wasn’t severe and knew my triggers and how to elevate the symptoms....

I’ve had RLS ever since I was a child, I never felt a need to have official diag...

Pamests

•19 days ago

35 Replies

Update

Just an update as some one sagested me to try iron and vitamin c as was going away and waiting on seeing a specialist. I did it and it made a massive...

Just an update as some one sagested me to try iron and vitamin c as was going aw...

Bigrob1

•19 days ago

2 Replies

Non alcoholic drinks

With the introduction of non alcoholic drinks and knowing it is recommended, when taking Gabapentin, you don’t drink alcohol. Is it safe to take these non...

With the introduction of non alcoholic drinks and knowing it is recommended, whe...

Ex-rugbyplayer

•19 days ago

10 Replies

Restless legs and peri menopause

Hi allNew to the group! I'm having a really bad time with insomnia because of RLS. I had it under control when I started on HRT. The times I've had RLS have...

Hi allNew to the group! I'm having a really bad time with insomnia because of RL...

Bluebellgel

•20 days ago

7 Replies

started buprenorphine

I live in Australia, SE Queensland. After finding this site and all the advise three months ago. I saw my GP, told him about HealthUnlocked and gave him the...

I live in Australia, SE Queensland. After finding this site and all the advise ...

Miss_E

•20 days ago

17 Replies

Food allergy tests that might help with an anti-RLS diet??

I have previously expressed skepticism on this forum about using diet alone to not just lessen, but completely eliminate RLS. For myself, I know that certain...

I have previously expressed skepticism on this forum about using diet alone to n...

UsableThought

•20 days ago

9 Replies

medication rotation

My RLS doctor, who I have found to be most knowledgeable about RLS put me on Buprenorphine,( .5 mg is my lowest effective dose). I was on Pramipexole without...

My RLS doctor, who I have found to be most knowledgeable about RLS put me on Bup...

teakabeagle

•20 days ago

10 Replies

Posts - Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

All posts for May 2024

It's 4am and zero sleep tonight

Pregabalin

Changing opiods

I think Strawberries are aggravating my RLS?!

Gabapentin pharmacy change

RLS, Augmentation and Finding a Neurologist in the SW of England

Help please

2nd post update from neurology and quick Q. can you see your muscles moving?

Cough medicine

Whirly Whirly bird.

Buprenorphine

RLS and augmentation – the battle for sufficient treatment.

Severe rls

update in RLS in pregnancy

Really severe rls plus mds

Changing from Ropinorol to Gabapentin.

Thinking of switching to Gabapentin or Pregabalin

Buprenorphine update - one week in

Buprenorphine

My Story

Best medication

buprenorphine for sleep apnea patients

iron clinic - transfusions

Severe symptoms in pregnancy.

Update

Non alcoholic drinks

Restless legs and peri menopause

started buprenorphine

Food allergy tests that might help with an anti-RLS diet??

medication rotation

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