Posts - Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

21,625 members • 15,323 posts

All posts for December 2022

Medication side-effects

Hi all. I'm tripping over my words, as well as having difficulty in accessing words. Tongue feels strange. I'm on 2mg of Ropinirole and 900mg Gabapentin. Been...

Hi all. I'm tripping over my words, as well as having difficulty in accessing w...

danamias

•1 year ago

19 Replies

What to take after Methadone

I have been on Methadone for about 3 years and though it works well the constipation was so bad, I finally came off of Methadone and want to go on a drug that...

I have been on Methadone for about 3 years and though it works well the constipa...

McClintok

•1 year ago

15 Replies

Methadone vs buprenorphine/naloxone

Hello all. I am in the "fortunate" position of being offered either methadone or Suboxone (buprenorphine/naloxone) for my refractory RLS. I have been...

Hello all. I am in the "fortunate" position of being offered either methadon...

Doctorplacebo

•1 year ago

8 Replies

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Did anyone see the Nightwalkers Fall magazine?

Most of the issue was about iron and RLS. Had several good articles but a couple of things I had not heard before, or at least I don't remember. When doing a...

Most of the issue was about iron and RLS. Had several good articles but a couple...

Opie__

•1 year ago

6 Replies

I added Mucinex to my list of DO NOT TAKE over the counter meds.

Well, I finally got IT... yes, covid. My husband came home with it and four days later I came down with it. I was trying to get ahead of it by taking Mucinex...

Well, I finally got IT... yes, covid. My husband came home with it and four day...

Reb0013

•1 year ago

23 Replies

Legal case against DA manufacturers?

Does anyone know of any legal cases against the pharma companies that make DAs? Augmentation has cost me my sanity, my health and my business, it looks like...

Does anyone know of any legal cases against the pharma companies that make DAs? ...

Hazuki

•1 year ago

4 Replies

Great RLS & Augmentation Articles (all available as PDFs)

I thought I’d share several articles that give, as far as I can tell, the best, evidence-based guidance for RLS and PLMD treatment + augmentation info. which...

I thought I’d share several articles that give, as far as I can tell, the best, ...

ircam2112

•1 year ago

2 Replies

Is it Primary RLS or Idiopathic Tramadol-induced RLS?

Hi, All. After more than 20 years of 2 x 50 mg tramadol AM and 2 x 50 mg tramadol PM (daily dose of 200 mg), I began titrating my tramadol dose several...

Hi, All. After more than 20 years of 2 x 50 mg tramadol AM and 2 x 50 mg tram...

Hidden

•1 year ago

14 Replies

Quitting Ropinirole ... Weeks 3 to 5

Hi all, It's now been 5 weeks since my last ropinirole. I'll quickly summarise my experience here and I have a couple of questions for those of you more...

Hi all, It's now been 5 weeks since my last ropinirole. I'll quickly summarise m...

Hazuki

•1 year ago

10 Replies

SIBO and RLS

I just found out I have Small Intestine Bacteria Overgrowth (SIBO) and am on two antibiotics. In some research regarding SIBO, there weee some studies that...

I just found out I have Small Intestine Bacteria Overgrowth (SIBO) and am on two...

Pipsee22

•1 year ago

13 Replies

Pramipexole vacations

I am currently completely off Pramipexole for 7 months, after being on it for 6 years. It was the only medication that gave me excellent relief and no side...

I am currently completely off Pramipexole for 7 months, after being on it for 6 ...

Hidden

•1 year ago

45 Replies

itching

I have an extremely itchy right foot every single night. It started intermittently about 3 years ago but now it’s keeping me awake every night and driving me...

I have an extremely itchy right foot every single night. It started intermittent...

Mum007

•1 year ago

5 Replies

worry about the future with stage 4 cancer and RLS and ILMD

I have been following this website for about nine months and wanting to give up Ropinerole but have put off doing it as I have been undergoing treatment for...

I have been following this website for about nine months and wanting to give up ...

Ruffabug

•1 year ago

17 Replies

A brief respite and now back with a vengeance

I suffer from restless legs syndrome and was prescribed pramipexole. I started a reduction program several months ago and by September I was down to half a...

I suffer from restless legs syndrome and was prescribed pramipexole. I started a...

RestlessMe

•1 year ago

29 Replies

Effective Neupro / Rotigotine dosage

Hi all. Things are bad enough and nothing else is being effective, so I’m trying Neupro for the first time. I’m well aware of the risks of augmentation but you...

Hi all. Things are bad enough and nothing else is being effective, so I’m trying...

ircam2112

•1 year ago

37 Replies

Reduction of Ropinirole

Hello fellow sufferers where ever you are in the world. I have been reducing my Ropinirole dosage by 0.25mg every 2 to 3 weeks depending how it’s going and am...

Hello fellow sufferers where ever you are in the world. I have been reducing my ...

HipHop1972

•1 year ago

23 Replies

Tyrosines d RLS

I’ve been reading g about Tyrosine deficits in TLS. My question is if it converttoL-Dooa and then to Dooamine, could it cause augmentation? Has anyone out...

I’ve been reading g about Tyrosine deficits in TLS. My question is if it convert...

Hidden

•1 year ago

1 Reply

Anti depressants and RLS

Hi fellow sufferers. I weaned myself off of Sertraline in the summer as partly responsible for worsening my severe RLS. And I had an iron infusion in August....

Hi fellow sufferers. I weaned myself off of Sertraline in the summer as partly ...

veronal

•1 year ago

14 Replies

Neurology Petition

If you live in the UK, please sign this petition. It's asking for a Neuro Taskforce to be set up to deal with the shortage of neurologists, poor treatment and...

If you live in the UK, please sign this petition. It's asking for a Neuro Taskfo...

Joolsg

•1 year ago

31 Replies

pramipexole (containing Dopamine), can it contribute to heart regurgitation?

I recently had an echocardiogram after chest x-ray for breathlessness and it was thought to show an enlarged heart , but later found it wasn’t, hence the ecg....

I recently had an echocardiogram after chest x-ray for breathlessness and it was...

Sunny70

•1 year ago

13 Replies

Night eating

Just curious if during night hours of not sleeping, do you find yourself eating just because you feel crazed? Doesn't matter what - anything to chew on might...

Just curious if during night hours of not sleeping, do you find yourself eating ...

ratfancy

•1 year ago

35 Replies

Nightwalkers publication - recommendation

I live (and suffer) in Florida. As I'm up at my usual 3:30 am tonight, I read the latest copy of the Nightwalkers publication from the RLS Foundation based in...

I live (and suffer) in Florida. As I'm up at my usual 3:30 am tonight, I read t...

ratfancy

•1 year ago

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Stimulants for RLS?

An idle thought - could stimulants, specifically dopamine reuptake inhibitors (like Ritalin, Adderall, Vyvanse) treat the symptoms of RLS? Intuitively I would...

An idle thought - could stimulants, specifically dopamine reuptake inhibitors (l...

howbeit-abroad

•1 year ago

6 Replies

NEVER CUT SLOW RELEASE MEDICATIONS

If you are on slow release Oxycodone etc NEVER cut it unless you are looking for a quick exit. You will stop breathing ..Yes you will die .They do make them...

If you are on slow release Oxycodone etc NEVER cut it unless you are looking for...

Shumbah

•1 year ago

8 Replies

Targin and nausea

I have been taking Targin 10/5 for 3 months and found it very effective. However I have also been experiencing nausea off and on and think it might be caused...

I have been taking Targin 10/5 for 3 months and found it very effective. However...

Walmer3463

•1 year ago

2 Replies

Dry mouth / Ulcers / Split lips / white corners of mouth .

For many reason people suffer dry mouth A lot of medication deplete our B vitamins. These products all contain Bs These Melvita lip product relieves pain...

For many reason people suffer dry mouth A lot of medication deplete our B vit...

Shumbah

•1 year ago

5 Replies

My Opinion: Collateral Damage due to Discontinuance of Pramipexole

Hi, All. I was going to write about this year's months-long Hell due to discontinuance of pramipexole virtually cold-turkey, following more than two decades...

Hi, All. I was going to write about this year's months-long Hell due to discont...

Hidden

•1 year ago

18 Replies

My Opinion and Experience: RLS is Not a Movement Disorder

By what I consider to be a generous definition, RLS now is generally accepted to be a "movement disorder." I say generous, because this definition includes...

By what I consider to be a generous definition, RLS now is generally accepted to...

Hidden

•1 year ago

40 Replies

Introduction and Preface to Comments

Hi, All. My first post. For several months, I've been reading your comments and empathizing with those who have suffered with this condition. To the extent...

Hi, All. My first post. For several months, I've been reading your comments an...

Hidden

•1 year ago

2 Replies

All regular use sublingual opioid medications etc how to protect your teeth.

REGULAR use of sublingual medications, from opioids to Valium etc I break mine into tiny pin head size pieces with a pill cutter. I know 200 mcg Temgesic or...

REGULAR use of sublingual medications, from opioids to Valium etc I break mine...

Shumbah

•1 year ago

12 Replies

Posts - Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

All posts for December 2022

Medication side-effects

What to take after Methadone

Methadone vs buprenorphine/naloxone

Did anyone see the Nightwalkers Fall magazine?

I added Mucinex to my list of DO NOT TAKE over the counter meds.

Legal case against DA manufacturers?

Great RLS & Augmentation Articles (all available as PDFs)

Is it Primary RLS or Idiopathic Tramadol-induced RLS?

Quitting Ropinirole ... Weeks 3 to 5

SIBO and RLS

Pramipexole vacations

itching

worry about the future with stage 4 cancer and RLS and ILMD

A brief respite and now back with a vengeance

Effective Neupro / Rotigotine dosage

Reduction of Ropinirole

Tyrosines d RLS

Anti depressants and RLS

Neurology Petition

pramipexole (containing Dopamine), can it contribute to heart regurgitation?

Night eating

Nightwalkers publication - recommendation

Stimulants for RLS?

NEVER CUT SLOW RELEASE MEDICATIONS

Targin and nausea

Dry mouth / Ulcers / Split lips / white corners of mouth .

My Opinion: Collateral Damage due to Discontinuance of Pramipexole

My Opinion and Experience: RLS is Not a Movement Disorder

Introduction and Preface to Comments

All regular use sublingual opioid medications etc how to protect your teeth.

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