Peroneal nerve stimulation

[moggie8]

Hi I was reading about this on Dr Berkowski blog , and is used for people that have tried medications and don't work . Just wondering if anyone has tried this?

[ChrisColumbus]

The Noctrix Nidra TOMAC device that gives electrical stimulation to the peroneal nerve is only currently available in some US states, can only be supplied on prescription, and costs US$7500. Reports of its effectiveness are mixed.

A couple of examples:

healthunlocked.com/rlsuk/po...

healthunlocked.com/rlsuk/po...

[moggie8 in reply to ChrisColumbus]

Oh ok , so you don't think it's worth it?

[ChrisColumbus in reply to moggie8]

It feels expensive, but it's not wildly out of line with general US health treatment costs. Some US experts are very supportive of it; read the two threads I've linked to above for two user experiences.

[SueJohnson in reply to moggie8]

You can't get it since it is not available in Australia.

[moggie8 in reply to SueJohnson]

Yes I have discovered that , but for the price big gamble.

[grassgree in reply to moggie8]

In the US, insurance covers most, if not all of it. It is also refundable if it doesn’t work.

[ChrisColumbus]

A cheaper alternative that IS available in Australia, although it works by vibration rather than electrical stimulation, is the Therapulse which costs $A100.95 including delivery for one, $A182.95 including delivery for two.

therapulse.co.uk/

Again, some find this useful others do not.

healthunlocked.com/rlsuk/po...

healthunlocked.com/rlsuk/po...

[moggie8 in reply to ChrisColumbus]

Oh great thanks I won't need a script for the therapy pulse will I

[ChrisColumbus in reply to moggie8]

No - you just pay your money and hope that it gives you relief! There is a 14 day money back guarantee in the UK, but I believe that it only applies to UK orders.

[moggie8 in reply to ChrisColumbus]

Well I have a vibrator tool here it has a handle on it I could just try that if the restless legs come back.

[ChrisColumbus in reply to moggie8]

Yes, always worth a try

[moggie8 in reply to ChrisColumbus]

Doesn't look can get it here in oz anyhow

[ChrisColumbus in reply to moggie8]

No, as I wrote - the Nidra is only available currently in selected US states.

[moggie8 in reply to ChrisColumbus]

I know I was actually talking about the Therapy Pulse

[ChrisColumbus in reply to moggie8]

If you click the Australian flag at the top of the Therapulse home page it shows Australian prices, and if you click Order Yours Now it will give you the opportunity to order two if you wish and also calculate shipping.

If it then says it no longer accepts Australian orders let us know!

Therapulse Australian order

[Doghorse in reply to moggie8]

Therapy pulse definitely takes the edge off an RLS attack, I have a pair for each leg,a cheap non evasive help

[moggie8 in reply to Doghorse]

I gather it's like a vibrator tool

[Doghorse]

You place it on your leg calves and it vibrates, seems to reduce the RLS attack, it's not a cure but is an aid, I find it really helps

[Anthas]

Therapulse didn't work for me unfortunately...

[violetta254]

I just have a small massage gun that I use on my legs when I wake up at night with RLS and it generally stops the breakthrough RLS. They cost 50-100 dollars or so.

[StanSliwa]

I live in NYstate outide of Buffalo and was prescribed the TOMAC device made by Naidra Noctrix Health. Insurance (UnitedHealthcare Medicare plan ) paid for it. Used for 3 weeks now.

I have mild RLS s/s left knee/leg only at night @ 930 PM. I quit all meds before using the device (Lyrica after gabepetin didn't work; only thing that woked was icing for 20 min then waiting to see if any relief. Usually 2 sessions eliminated s/s ) because of dizziness. Worked great 1st week then when I replaced the pads, no signal or stim at all on L side; OK on right so had the bands recalibrated. Too low on both sides when I laid out in recliner for treatment BUT felt adequate stem when brought legs to 90 degree bent at knee. Had recalibrated so when I lay out in recliner and worked!! Three days after recalibrated and still working on left side at 3rd setting where default set for therapy although now right leg twitching a used band at lowest setting continued until shut R band off.

At this point, I will continue to use and report result since I am also in a research study and reporting results to them.

[Gomma]

Not helpful most of the time. Bulky and hard to get comfortable when trying to get back to sleep

[rlswarrior]

I want to try it, but insurance refuses to cover it. We have been through multiple appeals and they say it is experimental, so they will not cover it. However, Anthem/BCBS in Georgia is happy to cover opioids for the rest of our lives. The company says it will help you work through the appeals, but they made many mistakes. We are working through our preparation for an independent external review, but I do not think it will happen.

My RLS specialist said to use a tens unit in those same spots. My pain specialist said to use the inferential current setting on my device to stimulate the peroneal nerve and play around with it to see what may work. That’s what I plan to do since I do not think Anthem/BCBS is going to budge. (I have tried every possible medication out there. The ones evaluating the appeals are not RLS experts ins any way, so they don’t even understand that we have limited medication options).

[DogBella]

I am currently using this device since February of this year. I live in CA and my Medicare/Supplement Insurance covers the cost. In the beginning it took awhile to get used to it. I can activate the band therapy in the dark. Since using it, I can sleep through the night a couple of times a week. I am slowly reducing my medications. For me, I do not find it bulky or difficult to use. My RLS has been quite severe in the past.

[teakabeagle]

I was in the study and found it moderately helpful if I started it right as the symptoms started , but it only lasted about 30 minutes after it shut off. The battery only gives you 2 30 minutes sessions so it really wasn’t enough for me. If I started it when the symptoms were pretty strong it did nothing. It is bulky and a bit tricky to turn on without turning on the lights. Not worth $7500 in my mind, but some people got a lot of relief. With all the cuts going on in the US I bet insurances that have been covering it will stop doing so.

[HappyGreenBean]

Have used various massage, stimulators placed (TENS) on that area and not found relief. I'm amazed that anyone would find relief from RLS through this method but if it helps others, great! Would be wonderful if there was an understanding of why some do react positively, while others don't.

Can't see it being any harm for you to try out a TENS device or massage device like others have suggested. If you find some it'll be great to add it to your arsenal of tools!

[moggie8 in reply to HappyGreenBean]

Thanks

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