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PBCers Organization
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Results of Taking Diuretics for Ascites from Cirrhosis

I'm curious what to expect taking diuretics for my ascites. I have a large tense...

PBC and stem cells

Hello- I am newly diagnosed with PBC and am curious if anyone here has done a st...

Amazon smile

just got quarterly notice of quarterly donations made to American Liver Associat...
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Cyclosporine post-transplant effects on fingernails.

I am 3y8m post-liver transplant because of PBC liver failure and am immunesuppre...

Intermittent fasting for PBC

Hi all! Has anyone here tried intermittent fasting to control symptoms and impro...

Hepatocellular Carcinoma

Through an MRI in January they discovered an 8 mm x 8 mm lesion on my liver. In ...

Insatiable Itching Update for me

Hey PBCers! I wanted to let you know that my insatiable itching that lasted over...

Gallbladder removal & NSAID use

Will having your gallbladder removed help with PBC? And can we take ibuprofen to...

PBC Patient Registry / CoRDS

I thought I would share this video from CoRDS - we partnered with them to create...

PBC and COVID-19

Some information on liver disease and that it heightens the risk for serious dis...

My erythrocyte reading is off the chart low, 4.48, but my gastroenterologist makes nothing of it, but it reflects my liver condition, yes?

I am an 81 year old male diagnosed a year ago with Stage 3; on 500 mg Ursodiol 2...

Blood thinners post surgery

I have to have knee replacement surgery. The surgeon said I need to be on a bloo...

Primary Biliary Cholangitis Volunteers Needed for At-Home Research Study

Volunteers with Primary Biliary Cholangitis are needed to participate in a resea...

Amonia

What do you do with high ammonia levels?

Anyone having Hemoglobin problems?

I have been having liver enzyme elevations since 2015. Never real high like some...

Autoimmune disease awareness month

Share for awareness

Introducing myself

I am Allison. I live in Texas. I unfortunately became very sick in late 2014, b...

Southwest FL Meet and Greet

Southwest FL Meet and Greet Saturday March 28, 2020 – 11:30 AM – 1:30 PM Let’s...

Virginia Mason Liver Center of Excellence in Seattle Washington

I’m researching the Virginia Mason Liver Center of Excellence in Seattle for a s...

Another soul destoying trip to the hepatologist.

My ALP was 300! 6 months ago it was 150. Billirubin was 1.7 it is always high. D...

Participating in reviewing the design and process of a clinical trial

Would you be interested in being involved in helping a pharmaceutical company wo...

Opportunity to share your itching experience with pharma

We have been contacted by a company developing a treatment for PBC itching to co...

Urine

Just this week, I've been having an issue with my urine smelling strange. I don'...

Hi there.

Hi. I'm Mary Jo. I was diagnosed 2 months ago with PBC after more than 5 years o...

Mucus and sore throat

It’s been a week since being diagnosed with Stage 2 PBC. My doctor stopped the U...

Second opinion?

I was diagnosed with Stage 2 PBC. I live in Richmond Virginia area. Does anyone ...

Is this normal when you start taking Ursodiol?

I was diagnosed February 16, 2020 with Stage 2 PBC. I have so many questions and...

Anyone have a suggestion for a good doctor for a PBC patient in the Phoenix area?

We are in the process of moving our primary residence from Illinois (Chicago are...

Dr Silviera’s fatigue study at Yale

In November of 2019 the PBCers Organization set up a booth at AASLD Liver Meetin...

2020 PBC Conference moves to 2021

https://pbcers.org/2020PBC/conf.htm Please notice the new dates. We have moved ...
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