Posts - PBCers Organization | HealthUnlocked

PBCers Organization

1,394 members • 276 posts

All posts for November 2019

New to Group

Hi everyone. I joined recently and wanted to introduce myself. Figured I should do it soon since our Yahoo group is going away. I was diagnosed with PBC in...

Hi everyone. I joined recently and wanted to introduce myself. Figured I should ...

Shiloh01

•4 years ago

3 Replies

Update from CymaBay on Seladelpar study

Important Seladelpar Update – From PBCers Organization and Canadian PBC Society Clinical trials for PBC patients put on hold Seladelpar, a drug developed...

Important Seladelpar Update – From PBCers Organization and Canadian PBC Society ...

PBCCarol

•4 years ago

5 Replies

PBC Name Change

Some are asking why we “no” longer use the name Primary Biliary Cirrhosis for PBC. As most of you know, the name Primary Biliary Cirrhosis (PBC) was very...

Some are asking why we “no” longer use the name Primary Biliary Cirrhosis for PB...

PBCLinie

Administrator•4 years ago

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Growing our community

We are attempting to grow this community and increase the activity here. It would be great to see more interaction to messages. We don’t always have anything...

We are attempting to grow this community and increase the activity here. It woul...

PBCCarol

•4 years ago

2 Replies

Thank u

Doreen. Thanx so much for the post. Wow 30 years. It gets very scary and to hear that felt good. Blessings. Whatever u want to share in how u managed to do...

Doreen. Thanx so much for the post. Wow 30 years. It gets very scary and to hear...

2bear

•4 years ago

5 Replies

Intro

I’ve signed up here since the Yahoo digest is shutting down. I have downloaded the app for my phone to use in addition to using the website. I live in...

I’ve signed up here since the Yahoo digest is shutting down. I have downloaded t...

Hidden

•4 years ago

1 Reply

PBC

Hi for new members, I am Doreen and was diagnosed with PBC over 30 years ago. So don't think it it cant be controlled IT CAN and you can live a fairly...

Hi for new members, I am Doreen and was diagnosed with PBC over 30 years ago...

DoreenD

•4 years ago

9 Replies

Official Launch of PBC Patient Registry

The PBCers Organization is pleased to announce the official launch of our PBC Patient Registry today! This registry was created in partnership with CoRDS, a...

The PBCers Organization is pleased to announce the official launch of our PBC Pa...

PBCCarol

•4 years ago

1 Reply

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Official Launch of PBC Patient Registry

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Posts - PBCers Organization | HealthUnlocked

PBCers Organization

All posts for November 2019

New to Group

Update from CymaBay on Seladelpar study

PBC Name Change

Growing our community

Thank u

Intro

PBC

Official Launch of PBC Patient Registry

Search posts

Pinned Posts

Latest poll

In what areas of your life have you experienced the most challenges as someone with PBC?

Topics

Archive