I was diagnosed over 10 years ago. I’m on Urso for PBC. My levels went up slightly about 2 yrs ago. Prior to that my Dr said if he didn’t see my test results, he never think I had PBC. I read these posts & honestly it scares the crap out of me I don’t feel the way most of you feel. I have ADHD and have all my life (I’m 56 yr old female & took medication in 1975 for “hyperactivity”) but is that brain fog? I’m treated for osteo & rheumatoid arthritis. I have Sjorgens Syndrome, Reanoulds syndrome. I feel like I have more, but insignificant compared to PBCteach and bartend. I’ve have both hips and a knee replacement. Yes I get tired, but i don’t sleep well either. I go out with friends. I have a few drinks every othe week or so. I cut back- I drank a lot in the past. But I still drink. PBC doesn’t stop me- I rarely take anything for pain, but won’t take more than 1000 mg of Tylenol. I refuse to stop my life for this stupid disease. It’s not going to affect my life expectancy. I get tired, so what? My joints hurt. My eyes & mouth get crazy dry. life.
scarey: I was diagnosed over 10 years... - PBCers Organization
scarey
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DoxieShamrock
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