Posts - PBCers Organization | HealthUnlocked

PBCers Organization

1,459 members•288 posts

All posts for March 2020

Gallbladder removal & NSAID use

Will having your gallbladder removed help with PBC? And can we take ibuprofen to help the inflammation?

Will having your gallbladder removed help with PBC? And can we take ibuprofen to...

•5 years ago

PBC Patient Registry / CoRDS

I thought I would share this video from CoRDS - we partnered with them to create our PBC Patient Registry that was launched last fall. While many of us are...

I thought I would share this video from CoRDS - we partnered with them to create...

•5 years ago

PBC and COVID-19

Some information on liver disease and that it heightens the risk for serious disease if infected....

Some information on liver disease and that it heightens the risk for serious dis...

Administrator•5 years ago

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My erythrocyte reading is off the chart low, 4.48, but my gastroenterologist makes nothing of it, but it reflects my liver condition, yes?

I am an 81 year old male diagnosed a year ago with Stage 3; on 500 mg Ursodiol 2 x daily, my blood results have returned to normal, except for the...

I am an 81 year old male diagnosed a year ago with Stage 3; on 500 mg Ursodiol 2...

•5 years ago

Blood thinners post surgery

I have to have knee replacement surgery. The surgeon said I need to be on a blood thinner, which I knew. I have progressed to the beginning of cirrhosis. What...

I have to have knee replacement surgery. The surgeon said I need to be on a bloo...

•5 years ago

Primary Biliary Cholangitis Volunteers Needed for At-Home Research Study

Volunteers with Primary Biliary Cholangitis are needed to participate in a research study from home. If you qualify, you can contribute to the development of...

Volunteers with Primary Biliary Cholangitis are needed to participate in a resea...

Administrator•5 years ago

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Amonia

What do you do with high ammonia levels?

What do you do with high ammonia levels?

•5 years ago

Anyone having Hemoglobin problems?

I have been having liver enzyme elevations since 2015. Never real high like some I see in these posts. On one 500 mg URSO since March 2019. All liver labs...

I have been having liver enzyme elevations since 2015. Never real high like some...

•5 years ago

Autoimmune disease awareness month

Share for awareness

Share for awareness

•5 years ago

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Introducing myself

I am Allison. I live in Texas. I unfortunately became very sick in late 2014, bit didn't go to the Dr for a few months. I was hospitalized and diagnosed with...

I am Allison. I live in Texas. I unfortunately became very sick in late 2014, b...

•5 years ago

Southwest FL Meet and Greet

Southwest FL Meet and Greet Saturday March 28, 2020 – 11:30 AM – 1:30 PM Let’s meet for lunch and make new friends! Carol Roberts from the PBCers...

Southwest FL Meet and Greet Saturday March 28, 2020 – 11:30 AM – 1:30 PM Let’s...

•5 years ago

Virginia Mason Liver Center of Excellence in Seattle Washington

I’m researching the Virginia Mason Liver Center of Excellence in Seattle for a second opinion for PBC. I’m wondering if anyone in the group seeking treatment...

I’m researching the Virginia Mason Liver Center of Excellence in Seattle for a s...

•5 years ago

Another soul destoying trip to the hepatologist.

My ALP was 300! 6 months ago it was 150. Billirubin was 1.7 it is always high. Doctor has ordered a dexascan and a fibroscan and labs again in 2 months. I was...

My ALP was 300! 6 months ago it was 150. Billirubin was 1.7 it is always high. D...

•5 years ago

Participating in reviewing the design and process of a clinical trial

Would you be interested in being involved in helping a pharmaceutical company working in PBC review / evaluate its current process in developing their clinical...

Would you be interested in being involved in helping a pharmaceutical company wo...

•5 years ago

Opportunity to share your itching experience with pharma

We have been contacted by a company developing a treatment for PBC itching to connect them with patients who may be willing to be interviewed and recorded on...

We have been contacted by a company developing a treatment for PBC itching to co...

•5 years ago

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