I am Mary Williams . I have had PBC for 20+ years and I have been taking URSO the whole time. I have no side effects from the medication. I have never met anyone else in person with PBC. It’s nice to be able to communicate with others and share.
PBC for over 20years: I am Mary Williams... - PBCers Organization
PBC for over 20years
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Icecream79
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I have never met anyone with PBC in person either. I had some initial side effects which were quite minor but been ok since last 13 years. It’s been pretty stagnant but I’m really worried about it getting worse suddenly. My ALT/AST markers were in 20s in the most recent LFT tests so I’m pleasantly surprised how well that’s been recently with no real change in my diet or exercise which are all over the place tbh. Good to connect with you here.
Mary thank you for sharing and giving me hope. I am 3 years into this journey and still navigating PBC. Any of your insights or advice are valuable.
Mary, you are not alone. What part of the country are you in?
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