I’m not being disrespectful. I just don’t get it. Have I had it so long I just accept it as normal?
I really hate knowing I have this. I hate having to decide when or if I tell a partner. My kids don’t even know. I don’t want to be treated differently.
Maybe I’m lucky now & wil pay later. I just can’t let this stupid unfair disease dictate my life. I get blood work done regularly so I’m not in denial. I don’t understand why I’m not as concerned as you.
it’s hard to swallow. I took it as a death sentence and worried myself sick over it. In time, you learn to cope and accept. It’s very important you have a hepatologist with whom you put full trust in. Let him be your guide.
Idk. When i first found out i was so freaked out. I was just released from constant care for breast cancer and thought i could just not worry about anything now. But boom. Started feeling like crap two months later. Did a life style change. Lost weight. Then numbers got worse. Saw the liver doc and got this diagnosis Feel good. Blood work after 3 months actually showed improvement. I guess i am responding to the urso. But i have to get the elf test done still and i am sitting in labcorp waiting to get blood drawn. My kids know. But i told them i am on meds. I am divorced and not dating anyone so i have no one significant other to tell. I eat healthy. Drink occasionally. Get more sleep then usual and exercise. All good things. We can live long and happy or get killed in a car accident tomorrow 😂 so be happy. Be as concerned as you want.or not. Just be mindful so you can be the healthiest version of you. Make sense?
Hi Dixie - what other choice do we have? I’m thankful there are meds which keep liver enzymes from progressing. I can think of far worse things to have. I don’t like taking the Urso, but have learned to live w it. I say this with kindness and concern- it is a very “livable” disease to have. Try not to get too overwhelmed- my kids are fully aware ( although they are not fully aware that I do get exhausted at times, and sometimes I have some leg pains) that’s the worst of it - which is not horrible!!! Eat well, cut back on alcohol and live a full, happy life!!!
You are not alone!!!!
Hepatocellular Carcinoma
Newly diagnosed with PBC
TERRIBLE ITCHING TRIED ABOUT EVERY FTIG AND LOTIONS
Lfts back up
Dry skin
