hello pbcers

[Maryob8844]

I sm in Louisiana USA. Pbc diagnosed 2015. Now stage 4 cirrhosis started undo today I don’t like it already. CA survivor from 2003 breast. Here I sm

[OdinsMom]

Guess I would ask why you weren't started on urso in 2015 to help prevent getting to stage 4? Many find that with time they adjust to urso.

[LorraineLouise]

So sorry about, the advancement in your PBC.

I guess I’m just wondering why you were not started on Urso back ,when you were diagnosed?

I was diagnosed in 2016.And my disease, has not progressed. I have other issues but as far as my PBC ,I am holding my own.

Were you going for blood test every 4 to 6 months. Any kind of scans?

I get labs every three months and MRIs every six months. So they have been keeping tract of it pretty well.

The Urso,seems to do a very good job. Hopefully it will help you as well.

Best Wishes,

Lorraine Louise

[Maryob8844 in reply to LorraineLouise]

Can’t take side effects of Urdu. N$ Bo it diarrhea. Feeling sick every day. I am trying again

[LorraineLouise in reply to Maryob8844]

I hope you could stick with it. And get past the side effects. I’m sure it will help you.

[OrangeTulip]

I really wish you well and I hope the medical community will come out with more procedures and medications to help with PBC and liver cirrhosis.