Well it's been a long time since I had awful flares. 4 weeks of severe asthma chrmest inflammation, skin inflammation, bowel inflammation, joint inflammation, eye and ear inflammation.. Been horrible but genius rheumy has given me 3 weeks of antibiotics and high dose oral steroids.
Next week tcz infusion and 3 x 1000mg steroid infusions over 6 days ! Gonna glow in the dark !
Plus lupus added to list and secondary sjogrens playing up.
Isn't it weird this immune system !?
💩💩all kicking off there . 🤞the nuclear blast of meds work quickly. Keep going Allanah that wonderful spirit of yours will get you through x
I blame the solar flare- run out of other excuses! Get. Better Soon 😷
Lol. Yes I've been out watching. Gorgeous
its a guessing game what will happen next. My Sjogrens us also playing up,it drives me silly,my mouth is so sore.
sorry to read you're having a tough time , I am too sick of being sick it is so draining! Hope you feel better soon xx
Healing wishes to you too. 🙏🩷
Ah no. Hooe you improve too very soon x
You poor love. Glad rheumy is on the case. Hope things improve.
Yes. I'm lucky with him but he's due to retire!!
Oh my darling you have been through it haven't you. Sending war, hugs. xxx
Oh nooooo. I hope you soon feel on the mend and I’m sending healing wishes to you. 🙏🩷
Just had appointment through from rheumatologist! March 2025! Hope I can last that long- upwards and onwards if slowly…..😅
Blimey, Green, I don’t know what meds you have but I thought (and it’s my hospital’s policy and I thought still a NICE recommendation) that all patients on higher levels of DMARDs and biologics have to be seen, or a phone call appointment every 3-4 months. Even lower levels of meds when you are first diagnosed too. (Exception was earlier in the pandemic of course.) I hope you can be seen earlier than waiting 10 months unless this suits you and you’re steady. Although my RA is very steady my immune has been a bit bonkers so I’ve welcomed the chance to discuss things with my rheumy. Hope you can bring that appointment forward if you need to.
thank you 🤣
Baricitinib and sulfasalazine saline statins because the baricitinib raises cholesterol apparently! You would think I glow in the dark 😉
A roundabout!
Then the rheumy should be seeing or speaking to you every 3 to 4 months. Naughty of them to make you wait 10 months.
I haven't seen anyone since March 2023 when was told I would be seen in 6 months time for meds assessment, still waiting but on positive thought I am stable and have 3 monthly bloods done by G.P. I assume consultant sees results too.
The consultant should be able to access all the results from bloods taken at your GP surgery as it will go to a local hospital to be analysed and recorded online, but the rheumy does need from time to form to do a physical/joints assessment. Thankfully, as you said, you are stable. 🙏
That's ages .... yikes
Crazy isn’t it?😂
Yes!! I called to bring this appointment forward as I was so ill x
It's all go by the looks of it. Thank goodness for your consultant, even if he retires soon. Sending you a lorry load of strength and love. xxx
Thank so much. You keep well too x
oh wow you will be a glow stick! Horrible when it all comes and hits you in one go 🥰
I know ..every bit! 7 weeks to Glastonbury hope to be sorted then!
You will be! 🩷
Wow. You really are going through it. We all know about massive flares on here. I’ve had serious eye problems & RA for over 30yrs. (52 now). I’ve got a hole in my right retina. Going to need an op soon & on loads of eye drops. I’ll say what i always say. Spoil yourself. Get a chunk of cake & a lovely cuppa. Get into bed. If you have a tablet. Put on a good comedy. Or a box set. Just take your mind off your crap. Good luck. X
Poor you. What a nightmare you have. Thank goodness for rheumatologists. I hope you are feeling better soon.
I'm so sorry you've been having such a torrid time. 🤞the nuclear option destroys all that unwanted inflammation leaving you ready to rock on at all the summer festivals.
🙈 poor you. Have a question, getting my first toziludimab infusion next week, was on the subcut one before that. Any tips on what to expect.....apart from the glowing?
Aw honest tcz no problem. Just drink water as I sometimes get headache day 1. I moved to infusion and it literally changed my life! Yeah I'm having a big flare now but first for many years . Good luck, fingers crossed it does the trick x
Yes we really need to take care of it, x T C x
Oh yes 24 /7 .. full time job being sick! Thanks x
Make it a full time job to be well, x
Good thinking
Oh no!! Sending love and all the positive immune system calming vibes. I hope you're sorted for the Festival Season xxxxx
It's all coming at you in spades by the sounds of it. Sending you my best and hope the antibiotics, steroids and infusions do the trick. As for glowing in the dark...should we warn people it's not the Northern Lights again! Bless you, love Pip xx
Hope your feeling better soon that's quite a cocktail 💐🤗🤗🤗💕💕💕💕💕
Would rather a margharita!
😁😁👍👍💕💕💕💕
Awful for you. Hope u see some improvement with the meds 🙏
Eye clinic -Uveitis 
So many little joints in wrists/hands
Unexplained chest pressure
Me and sulfasalazine
