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NRAS

36,693 members • 45,317 posts

All posts for January 2023

Cholesterol

Just had a cholesterol test and I think the GP wants to prescribe stations. Do these interact at all with MTX or COSENTYX? I have changed my diet, but on...

Just had a cholesterol test and I think the GP wants to prescribe stations. Do t...

Gilliancheche

•1 year ago

30 Replies

Statins and RA

hello everyone, my GP has decided after having RA for 9 years to put me on low dose of Steroids my cholesterol is 5.3 which is apparently borderline ,bit...

hello everyone, my GP has decided after having RA for 9 years to put me on low d...

Gladjake

•1 year ago

12 Replies

Update on PIP application

Just an update on my PIP application, so 2 weeks ago i got my date for my telephone assessment which was for this morning at 9am and they even phoned me...

Just an update on my PIP application, so 2 weeks ago i got my date for my teleph...

julie1908

•1 year ago

20 Replies

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Wafrin

Do you have to stop taking biologic (Abatacept) if you go on wafrin.

Pasjc

•1 year ago

10 Replies

Would you class this scenario as effectively managed?

Hi everyone, I always get good advice on here and my rheumatology nurse, whose number I was so delighted to get, is not returning my calls. I have RA and...

Hi everyone, I always get good advice on here and my rheumatology nurse, whose n...

Sunshinereturns

•1 year ago

12 Replies

Mobility Scooters

I am seriously considering buying a mobility scooter, if you have one how did you get on with it.

I am seriously considering buying a mobility scooter, if you have one how did yo...

Rachmaninov2

•1 year ago

28 Replies

Shinglix injections for shingles

I am after a bit of advice please. I know a lot of you have had these injections, mine is due next week, so, do I take my methotrexate injections as per normal...

I am after a bit of advice please. I know a lot of you have had these injections...

Poshcards

•1 year ago

12 Replies

amgevita

anybody else had a achy body 24 hours after taking amgevita? If so is this a permanent side effect or does it ease after so long?

anybody else had a achy body 24 hours after taking amgevita? If so is this a per...

cba84

•1 year ago

1 Reply

Coming off mex

Sorry about the late reply. I have been away for 3 weeks. Finally got to go on a cruise, first since COVID. Except from wearing a facemask due to medical...

Sorry about the late reply. I have been away for 3 weeks. Finally got to go on...

worldtraveler2

•1 year ago

16 Replies

Back pain

I recently wrote a message stating i,ve got grade 2 spondylolisthesis and facet joint arthrosis in my back,i,ve spoken to my doctor about the awful pain that...

I recently wrote a message stating i,ve got grade 2 spondylolisthesis and facet ...

gradyjackjacob

•1 year ago

12 Replies

Here’s something to SMILE about in gloomy January!

NRAS unique E-Learning programme SMILE-RA will help you to acquire further knowledge about your disease and how to manage it between consultations. Now also...

NRAS unique E-Learning programme SMILE-RA will help you to acquire further knowl...

Aribah-NRAS

Partner•1 year ago

1 Reply

Well it’s finally got me !! Covid strikes again.

What an absolute bummer this rotten virus is. I was struck down on Sunday afternoon with what I thought was a cold. Had a fever and high temperature for almost...

What an absolute bummer this rotten virus is. I was struck down on Sunday aftern...

Leics

•1 year ago

40 Replies

advice on what next !

Good morning ! I have an appointment with my RA consultant on the 31st Jan and I would like advice as to what “ could “ be offered as I have crashed and...

Good morning ! I have an appointment with my RA consultant on the 31st Jan and ...

Geordieland

•1 year ago

13 Replies

Heard of the Biologic Ocreluzimab (Ocrevus) used for treating MCTD/RA?

Happy New Year to all RA warriors. Onwards & upwards for 2023🙏 My daughter with MCTD was offered Ocreluzimab following a near anaphylactic reaction to the 2nd...

Happy New Year to all RA warriors. Onwards & upwards for 2023🙏 My daughter with...

Wangpaupau

•1 year ago

2 Replies

Hemp gel and morphine

Just wondering if anyone used hemp gel for their swollen fingers etc? I used to use it but stopped now I'm on morphine as not sure about interactions. (Can't...

Just wondering if anyone used hemp gel for their swollen fingers etc? I used to ...

Haz58

•1 year ago

2 Replies

Here I go again! 😔

Well I finished the course of prednisolone and 24 hours later I'm start to flare again! Now I can't start to take the Leflunomide now either as I have a chest...

Well I finished the course of prednisolone and 24 hours later I'm start to flar...

Haz58

•1 year ago

9 Replies

Helpline.

Hello everyone. I rang my Rheumys helpline the other day to ask for my pre infusion blood work. I was informed by a recording that the helpline is no...

Hello everyone. I rang my Rheumys helpline the other day to ask for my pre in...

ks1966

•1 year ago

11 Replies

Life insurance /critical illness

Hi all, My partner and I are sorting out of life insurance ans critical illness. Royal London want to charge me a premium (totally expecting that) but then...

Hi all, My partner and I are sorting out of life insurance ans critical illness...

JustHereForGin

•1 year ago

17 Replies

Do biologics (and other RA meds) frequently stop working?

Hello everyone, Tha k you so much for the friendly replies on my previous message. One recurring theme That I noticed was that biologics stop working at some...

Hello everyone, Tha k you so much for the friendly replies on my previous messag...

Ryka

•1 year ago

46 Replies

Gadgets!

Hi everyone - just wondered what gadgets you used for things like shampoo/conditioner, toothpaste, cans and jars? If you have any links to stuff you have...

Hi everyone - just wondered what gadgets you used for things like shampoo/condi...

Amandaazz

•1 year ago

17 Replies

more twitching and tingling

Hi all Not sure where this should be posted but... in addition to the strong twitching (which I haven't gone to GP about) for a while now I have also had...

Hi all Not sure where this should be posted but... in addition to the strong t...

Brychni

•1 year ago

21 Replies

dental work and systemic steroids

Hi I am having a flare at the moment. seeing rumy wednesday but tomorrow due to have dental work - new crown to be done, elapsed time 3 weeks between work...

Hi I am having a flare at the moment. seeing rumy wednesday but tomorrow due ...

lindyloo2018

•1 year ago

14 Replies

Methotrexate

Has anyone experienced hair loss or hair thinning whilst taking methotrexate? If so do you have advice about how to stop it getting steadily worse? What can...

Has anyone experienced hair loss or hair thinning whilst taking methotrexate? I...

GrannyTWest

•1 year ago

33 Replies

RA Experience: Baricitinib/olumiant 4mg.

Hello,10 days ago I started treatment with Baricitinib/olumiant 4mg about. The rheumatologist has asked me to continue my prednisone 4mg for the 1st week,...

Hello,10 days ago I started treatment with Baricitinib/olumiant 4mg about. The ...

Ryka

•1 year ago

33 Replies

Palindromic rheumatism

I have had symptoms of palindromic rheumatism for 7 years. It has come alongside a diagnosis of Wegeners vasculitis which I am being treated for. I see the...

I have had symptoms of palindromic rheumatism for 7 years. It has come alongside...

rwl89t1967

•1 year ago

35 Replies

12 weeks on Adalimumab, lots of pain and fatigue. Feeling depressed.

Hi everyone, can anyone offer any words or comfort or advice please?I was told at the beginning that this would change my life. A few weeks back I visited...

Hi everyone, can anyone offer any words or comfort or advice please?I was told a...

Comeonpeeps

•1 year ago

18 Replies

Off topic: Menopause as Positive Force

https://www.positive.news/society/why-women-entering-the-menopause-should-embrace-their-inner-crone/ Long read, but worth it x

https://www.positive.news/society/why-women-entering-the-menopause-should-embrac...

Hidden

•1 year ago

1 Reply

Anemia

Is iron deficiency anemia a common symptom of RA?

vnett

•1 year ago

16 Replies

Leflunomide question

I'm starting Leflunomide this month, sooner rather than later but am unsure when it would be best for me to take it daily. At the mo I'm on the following meds...

I'm starting Leflunomide this month, sooner rather than later but am unsure when...

Haz58

•1 year ago

15 Replies

Not a great start to the new year.

Adalimumab is not the drug for me . 😩Side effects were the reason it was causing more problems . 6th drug fail. Not sure where I go from here. Had a crusty...

Adalimumab is not the drug for me . 😩Side effects were the reason it was causin...

J1707-

•1 year ago

39 Replies

Posts - NRAS | HealthUnlocked

NRAS

All posts for January 2023

Cholesterol

Statins and RA

Update on PIP application

Wafrin

Would you class this scenario as effectively managed?

Mobility Scooters

Shinglix injections for shingles

amgevita

Coming off mex

Back pain

Here’s something to SMILE about in gloomy January!

Well it’s finally got me !! Covid strikes again.

advice on what next !

Heard of the Biologic Ocreluzimab (Ocrevus) used for treating MCTD/RA?

Hemp gel and morphine

Here I go again! 😔

Helpline.

Life insurance /critical illness

Do biologics (and other RA meds) frequently stop working?

Gadgets!

more twitching and tingling

dental work and systemic steroids

Methotrexate

RA Experience: Baricitinib/olumiant 4mg.

Palindromic rheumatism

12 weeks on Adalimumab, lots of pain and fatigue. Feeling depressed.

Off topic: Menopause as Positive Force

Anemia

Leflunomide question

Not a great start to the new year.

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