Posts - NRAS | HealthUnlocked

NRAS

36,607 members • 45,226 posts

All posts for January 2023

vastly different perspective of different rheumatologist: so am I terribly controlled after all?

hello all. I don’t know what to make of my face to face appointment yesterday and I feel rather emotional. It’s been well over two years since I saw a...

hello all. I don’t know what to make of my face to face appointment yesterday an...

Bon1

•1 year ago

61 Replies

angel54

Thanks everyone for your feedback regarding being advised to go to GP if need steroids.

Thanks everyone for your feedback regarding being advised to go to GP if need st...

Angels54

•1 year ago

Be the first to reply

Pip Review

Pip Review - Hi I’ve just received my pip review form today which is due in September. Is this typical? I have 3 weeks to complete it and get information. Any...

Pip Review - Hi I’ve just received my pip review form today which is due in Sept...

debjw

•1 year ago

33 Replies

Want to take advantage of all our features? Just log in!

Dry Skin

I have had dry skin since I was diagnosed with Rheumatoid arthritis and lupus about eight years ago. I was tested for Sjogrens and it was negative, but in any...

I have had dry skin since I was diagnosed with Rheumatoid arthritis and lupus ab...

JenniferW

•1 year ago

25 Replies

Imraldi shortage

Hi everyone. Has anyone else been contacted by Sciensus saying their deliveries will be more frequent due to an Imraldi shortage? I had a delivery confirmed...

Hi everyone. Has anyone else been contacted by Sciensus saying their deliveries ...

Mich1701

•1 year ago

2 Replies

Major Flare

Hello all, its been sometime since I put something on here. I have had RA for about 15 years and after being diagnosed, methotrexate kept it under control for...

Hello all, its been sometime since I put something on here. I have had RA for a...

mads1

•1 year ago

16 Replies

Exercising with active RA

It's been about 10 months now since my RA symptoms came crashing in and I was completely crippled within 4 weeks. Once I was given Naproxen and a little...

It's been about 10 months now since my RA symptoms came crashing in and I was co...

Gottarelax

•1 year ago

31 Replies

Consentyx

Hi all ! I was wondering if anyone is on Cosentyx? I will be starting in the next couple of weeks afer being on benepali for 3 years and it's not really doing...

Hi all ! I was wondering if anyone is on Cosentyx? I will be starting in the nex...

Ewillow

•1 year ago

8 Replies

ra consultant

Hi can anyone recommend a good ra consultant in kingston/epsom/central and south london? or a website where to find real feedback? many thanks

Hi can anyone recommend a good ra consultant in kingston/epsom/central and sout...

lindyloo2018

•1 year ago

6 Replies

Eggs!

Hello everyone I m still flaring and someone has just mentioned that my liking for fried eggs may not be good for me. We re having building works done so...

Hello everyone I m still flaring and someone has just mentioned that my liking...

TheBoys

•1 year ago

40 Replies

Methotrexate

Hi I received a call yesterday from rheumatologist nurse she said my bloods last week are extremely high for liver tests I just moved up to 20mg of...

Hi I received a call yesterday from rheumatologist nurse she said my bloods last...

Brian1977

•1 year ago

22 Replies

Methotrexate

just started my first weekly dose of MTX, 17.5 mg, daily folic acid , for inflammatory arthritis. Flares were frequent, painful, unable to walk, not a good...

just started my first weekly dose of MTX, 17.5 mg, daily folic acid , for inflam...

BeachsideVia

•1 year ago

8 Replies

Rituximab/ Covid

Hello. I took my Rituximab infusion last week and I’m worried about getting Covid in the future again Can anyone on Rituximab who caught Covid share...

Hello. I took my Rituximab infusion last week and I’m worried about getting Co...

ks1966

•1 year ago

12 Replies

shoulder replacement surgery

I have seen my specialist in November and says I need a total shoulder replacement surgery I have very little mobility in my shoulder he says I will not get...

I have seen my specialist in November and says I need a total shoulder replacem...

Tobymax35

•1 year ago

3 Replies

absence from work

has anyone ever been dismissed from work due to rheumatoid related absence? I’m in the process of trying to get better meds as the rituximab hasn’t worked that...

has anyone ever been dismissed from work due to rheumatoid related absence? I’m ...

Natikins

•1 year ago

15 Replies

HIP REPLACEMENT SURGERY

Hello, Am booked for a hip replacement operation on 1st February. I had 2 knee replacement operations in 2017 and 2018. Although a hip replacement is...

Hello, Am booked for a hip replacement operation on 1st February. I had 2 knee ...

JGBH

•1 year ago

43 Replies

Fluid on Knee - Surgery - Query

Hi all, like many of you the old inflammatory arthritis affects certain joints. I’m somewhat lucky in the regard I only have two affected joints - left elbow...

Hi all, like many of you the old inflammatory arthritis affects certain joints...

gr95

•1 year ago

1 Reply

Exercise & Back to Sports meeting

If you would like to participate in the group and/or help yourself and others get the most out of exercise and sport while dealing with the symptoms of IA, why...

If you would like to participate in the group and/or help yourself and others ge...

Aribah-NRAS

Partner•1 year ago

Be the first to reply

NRAS & Sciensus meeting Jan 2023

Dear All, Before I start for those who do not know me, I am Tim Chaplin Head of Service at NRAS. I thought I would post an update about Sciensus and a...

Dear All, Before I start for those who do not know me, I am Tim Chaplin Head of...

Hidden

•1 year ago

12 Replies

Autoimmune protocol diet

Has anyone got any experience of the above? I am supposed to be running a marathon on April 2nd but having been newly diagnosed with RA I am struggling with...

Has anyone got any experience of the above? I am supposed to be running a marath...

Blacksheep83

•1 year ago

12 Replies

Do you live with a long-term health condition and pay for your prescriptions?

Can you spare 10 minutes to complete our survey and share your experience with us?https://surveys.parkinsons.org.uk/s/MCOXQF/ Open until 26 Feb.

Can you spare 10 minutes to complete our survey and share your experience with u...

Aribah-NRAS

Partner•1 year ago

2 Replies

methotraxate tablets verses methotrexate injection to stop mtx oral side effects?

HI thanks to mtx tablets causing oral thrush my RA consultant has suggested that I try mtx injections instead. I will be going from weekly 15mg mtx tablets...

HI thanks to mtx tablets causing oral thrush my RA consultant has suggested tha...

lindyloo2018

•1 year ago

40 Replies

Proud of my son running the Marathon for RA April 23. He’s busy training for it.

Here’s what he wrote and was accepted to run the London Marathon for RA 🥰

12Gemini123

•1 year ago

11 Replies

Amgevita and recurring chest infections

Does anyone who’s on Amgevita suffer with recurring, serious chest infections ? Have only been on it for 4 months but have had 3 chest infections and a very...

Does anyone who’s on Amgevita suffer with recurring, serious chest infections ?...

Purplepoppy2

•1 year ago

8 Replies

Update on breathlessness

Having ruled out any immediate issues with my heart, lung function tests have been done now. The results were sent to Aberdeen and I have had a chest x-ray...

Having ruled out any immediate issues with my heart, lung function tests have be...

Scottishlad

•1 year ago

4 Replies

Shoulder op & pain in (quicker to type everywhere) 😉 you might need a coffee or tea to read this as I do tend to write war & peace 🙄🤣

Hi everyone Around the beginning of October I started getting pain in my hands that was worse at night, it then got worse with pins & needles in my fingers, my...

Hi everyone Around the beginning of October I started getting pain in my hands t...

Garnacha

•1 year ago

20 Replies

rituximab and filgotinib

anyone any experience with either of these two drugs please? I’m on tocilizumab but it’s effectiveness is waning and I’ve been offered these as an......

anyone any experience with either of these two drugs please? I’m on tocilizumab ...

tamnwill

•1 year ago

12 Replies

upping Steriods

my liver inflammation is rising , I’m just getting over covid, two neg lateral flows now, but I have orange urine and as I passed out was taken to hosp did...

my liver inflammation is rising , I’m just getting over covid, two neg lateral f...

Eternity6

•1 year ago

25 Replies

RA as connective tissue disorder

https://www.cedars-sinai.org/health-library/diseases-and-conditions/c/connective-tissue-disorders.html Have just come across this…. First time I have heard...

https://www.cedars-sinai.org/health-library/diseases-and-conditions/c/connective...

Hidden

•1 year ago

16 Replies

Headaches and dizziness

Hi everyone just wanted to ask has anyone else suffered with headache, dizziness, woozy and feeling generally lousy while taking sulfasalazine,was advised to...

Hi everyone just wanted to ask has anyone else suffered with headache, dizziness...

Jeremycfc

•1 year ago

14 Replies

Posts - NRAS | HealthUnlocked

NRAS

All posts for January 2023

vastly different perspective of different rheumatologist: so am I terribly controlled after all?

angel54

Pip Review

Dry Skin

Imraldi shortage

Major Flare

Exercising with active RA

Consentyx

ra consultant

Eggs!

Methotrexate

Methotrexate

Rituximab/ Covid

shoulder replacement surgery

absence from work

HIP REPLACEMENT SURGERY

Fluid on Knee - Surgery - Query

Exercise & Back to Sports meeting

NRAS & Sciensus meeting Jan 2023

Autoimmune protocol diet

Do you live with a long-term health condition and pay for your prescriptions?

methotraxate tablets verses methotrexate injection to stop mtx oral side effects?

Proud of my son running the Marathon for RA April 23. He’s busy training for it.

Amgevita and recurring chest infections

Update on breathlessness

Shoulder op & pain in (quicker to type everywhere) 😉 you might need a coffee or tea to read this as I do tend to write war & peace 🙄🤣

rituximab and filgotinib

upping Steriods

RA as connective tissue disorder

Headaches and dizziness

Search posts

Pinned Posts

Latest poll

Do you know any children or adults living with Juvenile Idiopathic Arthritis (JIA)?

Topics

Archive