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NRAS

37,012 members • 45,736 posts

All posts for October 2022

Share your story with BBC

Have you had to leave your job because you are still waiting for first appointment to get diagnosed or because your waiting for a procedure/operation and can’t...

Have you had to leave your job because you are still waiting for first appointme...

Aribah-NRAS

Partner•2 years ago

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hear i am with another non ra ? so sorry to the gods of ra but i am asking it

hearing aids nhs v private whats your opinions please if you ask in hearing hub takes a month to get one answer my lot are getting fed up with me a what say...

hearing aids nhs v private whats your opinions please if you ask in hearing hub ...

pauluk60

•2 years ago

45 Replies

Media case study required - job loss due to waiting times

NRAS has been approached by national broadcaster to help find someone who has had to drop out of work due to delays in getting treatment for their long-term...

NRAS has been approached by national broadcaster to help find someone who has ha...

Clare-NRAS

Partner•2 years ago

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work and pain

so I got a job working in A&E doing admin which on paper felt like a good compromise of keeping me mentally busy without physically over doing it. 3 months in...

so I got a job working in A&E doing admin which on paper felt like a good compro...

heatherthornton578

•2 years ago

13 Replies

shoulder replacement

hi I’m under specialist for a total shoulder replacement but I have not given yet permission to be put on waiting list as I’m in a turmoil what to do I’m...

hi I’m under specialist for a total shoulder replacement but I have not given ye...

Tobymax35

•2 years ago

11 Replies

Help with sudden onset of new symptoms from possible flare

All of my conditions are in my profile... About a week ago I suddenly developed severe burning (felt like tearing) in my shoulders and elbows, swelling in my...

All of my conditions are in my profile... About a week ago I suddenly developed...

TiredNerd

•2 years ago

5 Replies

Repeat of full blood count

Hello everyone! Just looking for advice if anyone can help? I was told today by receptionist at doctors surgery that I have to have my full blood count...

Hello everyone! Just looking for advice if anyone can help? I was told today by ...

MaxineC

•2 years ago

30 Replies

Good news about methotrexate

The suppression of your immune system and the risks of being photosensitive with methotrexate are well known. It has prompted worries that those properties...

The suppression of your immune system and the risks of being photosensitive with...

oldtimer2

•2 years ago

4 Replies

New RA diagnosis and flu vaccine. Feel really bad. Normal?

Hi, As the title says, I’ve only recently been diagnosed with RA. 3+ years to diagnosis so used to feeling terrible. Had flu vaccine on sat am. Am back to...

Hi, As the title says, I’ve only recently been diagnosed with RA. 3+ years to d...

Boo01

•2 years ago

5 Replies

How often should I see my consultant rheumatologist?

I last saw my Rheumatologist on 8th December 2021. My next appointment has been rescheduled and then cancelled 7 times . My next rescheduled appointment is on...

I last saw my Rheumatologist on 8th December 2021. My next appointment has been ...

s2202

•2 years ago

46 Replies

Kevazar and feeling sick two days later

Hi, I'm enquiring if anyone is using Kevezar (Sarilumab) and if after injecting a day or so later they start dry vomiting ( nothing to bring up)....

Hi, I'm enquiring if anyone is using Kevezar (Sarilumab) and if after injecting ...

admad1

•2 years ago

9 Replies

Hydroxychloroquine staining

I was prescribed a daily dose of hydroxychloroquine, alongside weekly methotrexate, when I was diagnosed with RA and Sjogrens 7 years ago. Two years ago I...

I was prescribed a daily dose of hydroxychloroquine, alongside weekly methotrexa...

DoraBracken

•2 years ago

18 Replies

Sulfasalazine side effects.

Please can anyone help? I started sulfasalazine 6 months ago. I’m having side effects of nausea headaches and occasional vomiting. My RA consultant has told me...

Please can anyone help? I started sulfasalazine 6 months ago. I’m having side ef...

GillB45

•2 years ago

50 Replies

DENTIST VISIT & COVID PRECAUTIONS

When I visited the dentist in 2020 and 2021 the dentist and her assistant were well masked-up with at least FFP3s. But when I visited this year in August both...

When I visited the dentist in 2020 and 2021 the dentist and her assistant were w...

Jimminey

•2 years ago

30 Replies

Hoarse visit (6 weeks plus) linked to RA?

I have a hoarse voice with no pain or sore throat. It seems to be here to stay. I’m a teacher so do project my voice but have never had this in my previous 20...

I have a hoarse voice with no pain or sore throat. It seems to be here to stay. ...

Sunshinereturns

•2 years ago

17 Replies

NHS blunders kill daughter - mum speaks

https://healthunlocked.com/nras/posts/148478811/useful-article-from-the-guardian-about-how-nhs-medical-treatment-can-go-wrong?responses=148487458 I posted...

https://healthunlocked.com/nras/posts/148478811/useful-article-from-the-guardian...

Hezekiah

•2 years ago

2 Replies

blood tests and RA flares

HI has anyone noticed any changes in their blood test results when going into a flare? does wbc and/or neutrophils increase when you went into the flare ?...

HI has anyone noticed any changes in their blood test results when going into a...

lindyloo2018

•2 years ago

4 Replies

mtx and antibiotics and surgery

Hi everyone I am in a double whammy rhuemy says stop mtx for antibiotics , stop mtx 1 week prior to surgery and then the week of surgery. presumably to aid...

Hi everyone I am in a double whammy rhuemy says stop mtx for antibiotics , sto...

lindyloo2018

•2 years ago

23 Replies

Covid and flu vaccine 💪🏼

Hi Peeps 🙂 I had my 6th Covid (Spikevax) vaccination Saturday 1st October, along with my flu vaccine at my local surgery. I was lucky enough to have them...

Hi Peeps 🙂 I had my 6th Covid (Spikevax) vaccination Saturday 1st October, al...

Moomin8

•2 years ago

21 Replies

Today is #WorldSmileDay! 😃

Have you registered for the NRAS SMILE-RA e-learning programme yet? Join over 1000 others with RA who are learning more about their disease and how to manage...

Have you registered for the NRAS SMILE-RA e-learning programme yet? Join over 10...

Aribah-NRAS

Partner•2 years ago

Be the first to reply

what a carry on with my hat my coat and a English Rose ( i might not s ee you lot again after this post)

where were we oh that was it no no no well those with power to hold said no shes ok to carry on (you must be joking says i told to be qutte or b arrested...

where were we oh that was it no no no well those with power to hold said no ...

pauluk60

•2 years ago

38 Replies

starting RTX

I am starting infusions in 4 weeks time. Currently on Benepali having had to stop MTX (after 10 years. My rheum nurses are great but currently giving...

I am starting infusions in 4 weeks time. Currently on Benepali having had to s...

janmary

•2 years ago

17 Replies

6 Jabs, always careful re masking up….now positive…MTX Subcut & Leflunomide

I injected MTX on Monday evening, started cough/headache Tuesday so tested…negative. Full blown flare today and now positive….reported it. Do others stop the...

I injected MTX on Monday evening, started cough/headache Tuesday so tested…negat...

CallMeSunny

•2 years ago

14 Replies

Is it RA?

Hi everyone, just looking some advice. Over the past two year I have been having recurrent sore throats, seem to be nearly every other week but haven't needed...

Hi everyone, just looking some advice. Over the past two year I have been havin...

Livesoncoffee

•2 years ago

24 Replies

Help with injection location

Hi ya ive been injecting biologics for 11 years now and never done my belly? Ive had a really bad nerve pain injection on my thigh that is still sore 8 weeks...

Hi ya ive been injecting biologics for 11 years now and never done my belly? Iv...

Dave74

•2 years ago

32 Replies

Free covid tests?

Hi, I have RA & had a ritixumab infusion yesterday, with another booked for 2weeks, obviously I need to have a covid test before I have the 2nd, I did try the...

Hi, I have RA & had a ritixumab infusion yesterday, with another booked for 2wee...

gilox

•2 years ago

5 Replies

Covid Booster - Side Effects?

Hello everyone hope you’re doing well. When I had the Spikevaxx; (Moderna) booster in Spring I noticed that I developed a flare afterwards which lasted on and...

Hello everyone hope you’re doing well. When I had the Spikevaxx; (Moderna) boos...

TheBoys

•2 years ago

20 Replies

5th covid jab.

Went well and now have had 3 different brands over time which apparently is good! Again no side effects so I guess my immune system isn't a Diva 😀

Went well and now have had 3 different brands over time which apparently is goo...

Jackie1947

•2 years ago

35 Replies

Covid

Hi guys well still got covid its been 5 days now, but am feeling better and am going back to work tomorrow. My guy is still in hospital so cannot see him until...

Hi guys well still got covid its been 5 days now, but am feeling better and am g...

Carolsos

•2 years ago

17 Replies

carpal tunnel issues

hello everyone. I’ve been having huge issues with carpal tunnel pain in both left and right wrists recently. Seem to be alternating! Currently on 25mg MTX...

hello everyone. I’ve been having huge issues with carpal tunnel pain in both lef...

AR50cyclist

•2 years ago

23 Replies

Posts - NRAS | HealthUnlocked

NRAS

All posts for October 2022

Share your story with BBC

hear i am with another non ra ? so sorry to the gods of ra but i am asking it

Media case study required - job loss due to waiting times

work and pain

shoulder replacement

Help with sudden onset of new symptoms from possible flare

Repeat of full blood count

Good news about methotrexate

New RA diagnosis and flu vaccine. Feel really bad. Normal?

How often should I see my consultant rheumatologist?

Kevazar and feeling sick two days later

Hydroxychloroquine staining

Sulfasalazine side effects.

DENTIST VISIT & COVID PRECAUTIONS

Hoarse visit (6 weeks plus) linked to RA?

NHS blunders kill daughter - mum speaks

blood tests and RA flares

mtx and antibiotics and surgery

Covid and flu vaccine 💪🏼

Today is #WorldSmileDay! 😃

what a carry on with my hat my coat and a English Rose ( i might not s ee you lot again after this post)

starting RTX

6 Jabs, always careful re masking up….now positive…MTX Subcut & Leflunomide

Is it RA?

Help with injection location

Free covid tests?

Covid Booster - Side Effects?

5th covid jab.

Covid

carpal tunnel issues

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