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NRAS

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All posts for July 2012

has anybody else's taste buds changed?

this morning my coffee tasted so revolting that i threw up. it isn't tbe first time my coffee has tasted different - it sometimes tastes unbearably bitter -...

this morning my coffee tasted so revolting that i threw up. it isn't tbe first ...

rattusrattus

•12 years ago

12 Replies

A good treatment experience

Thought I'd try to post a positive experience! Sun is shining here in Edinburgh after a horrendous wet day yesterday. i had my infliximab infusion this...

Thought I'd try to post a positive experience! Sun is shining here in Edinburgh ...

cathie

•12 years ago

9 Replies

Hi Everyone, havent forgotten any of you-thought i would say hello! xx

Hi all, how are we all doing? Haven't forgotten any of you-hugs to all of you. What have i been up to? Well, battling the mix if mtx and sulfasalzine, now...

Hi all, how are we all doing? Haven't forgotten any of you-hugs to all of you. ...

Jetblack

•12 years ago

11 Replies

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Splitting the dose of MTX?

HI All. As some of you will know I've been having some trouble with taking MTX lately re nausea etc. You may also recall that my GPs seem opposed to the idea...

HI All. As some of you will know I've been having some trouble with taking MTX l...

Hidden

•12 years ago

34 Replies

Sylv, you did say it was Cornwall??

http://edition.cnn.com/video/?hpt=hp_c2#/video/us/2012/07/18/sotvo-hln-ma-scooter-escalator.cnn "My buggy broke down" ... yeah right :)

http://edition.cnn.com/video/?hpt=hp_c2#/video/us/2012/07/18/sotvo-hln-ma-scoote...

PeteC

•12 years ago

29 Replies

Cimzia update

Evening everyone. Well, I'm due for my 2nd dose of cimzia tomorrow... The 1st was ok - didn't hurt at all but I did feel sick and light-headed and...

Evening everyone. Well, I'm due for my 2nd dose of cimzia tomorrow... The ...

bub124

•12 years ago

3 Replies

coming back up for air

I have felt like Sisiphys - the guy who had to keep pushing the stone on his back up the hill! After trying various DMARDs, I started on Azothiaprine as a last...

I have felt like Sisiphys - the guy who had to keep pushing the stone on his bac...

oldtimer

•12 years ago

7 Replies

new to this

new to this site and this disease, my partner doesnt understand the pain i get and how tired i get through out the day, been on sulfasalazine for about 6 weeks...

new to this site and this disease, my partner doesnt understand the pain i get a...

jonsi

•12 years ago

22 Replies

Reaction to TCZ (Tocilimab)

Hi, Has is anyone else on TCZ and had a extreme reaction to it? I had my infusion last Wednesday and went home feeling tired but fine. By Thursday evening I...

Hi, Has is anyone else on TCZ and had a extreme reaction to it? I had my infusi...

dmc12

•12 years ago

3 Replies

Who would like 15 minutes (or more) of fame? (Star on Hollywood Walk of Fame not guaranteed)

For those who don’t know me yet I have taken on the job of Public Relations and Press Officer at NRAS. If I’ve not said hello to you before then ‘hello’. If I...

For those who don’t know me yet I have taken on the job of Public Relations and ...

Andrew-NRAS

•12 years ago

16 Replies

I've come back --------- but i'm not sure where I've been

Hi All For those that don't know me I was an original blogger when this site opened and have made many friends through it. I had a bit of a bad year last...

Hi All For those that don't know me I was an original blogger when this site op...

Tricia-P

•12 years ago

13 Replies

Hi all. Hope everyone having a good day.

Does anyone know if it's ok to take evening primrose capsules with the hope of reducing the night time tropical moments! I take 20mg MTX weekly plus 5mg folic...

Does anyone know if it's ok to take evening primrose capsules with the hope of r...

Hidden

•12 years ago

5 Replies

Has anyone taken pictures of bad joints to show Rheumy Doc or friends/rels?Rheumy said they were really helpful. She kept them for my file.

Found that she couldn't see as clearly as me, the swelling around my wrist and lower hand, as she was looking from other direction. (My wrists are thin so look...

Found that she couldn't see as clearly as me, the swelling around my wrist and l...

lifebeginstoday

•12 years ago

3 Replies

"Youre just about to be ill" - Erm okay then..?

Went to the hospital yesterday for my next lot of Abatacept. All went swimmingly, I had my bloods done and I was off home again. I felt a bit tired and fuzzy...

Went to the hospital yesterday for my next lot of Abatacept. All went swimmingly...

little_em18

•12 years ago

8 Replies

Heck-a-lot!

That's what my boyfriend has started calling me - apparently, 'hecking' means limping, so he's not far off the mark! I think I overdid it a bit at the...

That's what my boyfriend has started calling me - apparently, 'hecking' means li...

SootyB

•12 years ago

2 Replies

Sometimes wonder what I have ??

I have had spinal problems for longer than I care to remember , Had Schuermans disease ,from 11 years of age treated in the wrong way with plaster casts and...

I have had spinal problems for longer than I care to remember , Had Schuermans d...

pottypam

•12 years ago

3 Replies

In limbo - time stands still!

Only 2 weeks to go until my gallbladder op - managing on a low fat diet to keep gb symptoms at bay. Pain meds are helping with painful joints. Worried about op...

Only 2 weeks to go until my gallbladder op - managing on a low fat diet to keep ...

StarlightinJuly

•12 years ago

2 Replies

Hi all, is it 'normal' to be spending most of your time shattered on sofa?

Hi there, in lotsapain waitin' for another steroid inj on Fri.there MUST b more than this?! Feel v disfunctional n isolated. J

Hi there, in lotsapain waitin' for another steroid inj on Fri.there MUST b more ...

lifebeginstoday

•12 years ago

22 Replies

AVARA

Hi. I have been taking lefunomide since March 2012 after trying Sulfasalazine and methatrexate. I suffered side effects both drugs, I thought I was doing ok...

Hi. I have been taking lefunomide since March 2012 after trying Sulfasalazine an...

Hidden

•12 years ago

5 Replies

Fibromyalgia?

iv just been to the hosptial and iv know been told that teh doctor thinks its more 'Fibromyalgia' instead of RA. Has any one else got or heard of this...

iv just been to the hosptial and iv know been told that teh doctor thinks its m...

holly2812

•12 years ago

5 Replies

ESR discreted for me? Baffled.

Not for the first time my ESR is a bit high at 58. Previously (2 weeks ago) it got down to a princely 34 but before that it was 50 and 62 (6 weeks ago). Now...

Not for the first time my ESR is a bit high at 58. Previously (2 weeks ago) it g...

Hidden

•12 years ago

19 Replies

Treatment about to start at last!

Finally after about 18 months I recieved my first prescription for MTX and folic acid. Unfortunately I can't pick it up until tomorrow. Now I have to decide...

Finally after about 18 months I recieved my first prescription for MTX and folic...

RichardL60

•12 years ago

16 Replies

Moles and RA meds

I've got myself in a bit of a tizzy after finding what I think is a mole on my arm (thought at first it was a scab and tried to pick it which made it bleed)....

I've got myself in a bit of a tizzy after finding what I think is a mole on my a...

Mags126

•12 years ago

5 Replies

well another day another wonder

ok today I am feeling a bit ,,welll mm not really sure ..I am in pain in my neck hands right leg hurts and is numb and lower back is burning making it hard...

ok today I am feeling a bit ,,welll mm not really sure ..I am in pain in my nec...

pottypam

•12 years ago

2 Replies

Are there any nice looking

My OT has been very helpful and given me thumb splints, wrist splints and oedema gloves for typing. These are all really useful and definitely help with long...

My OT has been very helpful and given me thumb splints, wrist splints and oedema...

Nikk

•12 years ago

17 Replies

GP's

GP surgery filed away letter that had my new prescription on it instead of getting the doctor to action it...the receptionists make me feel like I am a...

GP surgery filed away letter that had my new prescription on it instead of getti...

Rockpool60

•12 years ago

8 Replies

Facial flushing

Thank you all for your comments an suggestions re my ast post 'facial flushing and rash'. I have seen my GP and had a blood test and I now know its not my...

Thank you all for your comments an suggestions re my ast post 'facial flushing a...

dmc12

•12 years ago

1 Reply

Survived Latitude festival with RA!

Hi everyone, Having been encouraged and inspired by everyone on this site, just wanted to write something positive for my first blog. Am still coming to...

Hi everyone, Having been encouraged and inspired by everyone on this site, just...

cazh

•12 years ago

23 Replies

Stuck in my chair............

Hello, here i am stuck in my chair,not in the literal sense pete!! I am in a bit of a flare,i am so tired and exhausted.Went to see my dr this morning about my...

Hello, here i am stuck in my chair,not in the literal sense pete!! I am in a bit...

sylvi

•12 years ago

21 Replies

Why does Rheum Dr's letter to GP read 'Inflammatory Arthritis probable'. Rather than 'Inflammatory Arthritis-Rheumatoid ' for example?

Soon after I was given Inflamm Arth diagnosis I saw a Rheum specialist nurse who proceeded to tell me that the Rheum Dr had asked her to explain all about RA...

Soon after I was given Inflamm Arth diagnosis I saw a Rheum specialist nurse who...

lifebeginstoday

•12 years ago

12 Replies

Posts - NRAS | HealthUnlocked

NRAS

All posts for July 2012

has anybody else's taste buds changed?

A good treatment experience

Hi Everyone, havent forgotten any of you-thought i would say hello! xx

Splitting the dose of MTX?

Sylv, you did say it was Cornwall??

Cimzia update

coming back up for air

new to this

Reaction to TCZ (Tocilimab)

Who would like 15 minutes (or more) of fame? (Star on Hollywood Walk of Fame not guaranteed)

I've come back --------- but i'm not sure where I've been

Hi all. Hope everyone having a good day.

Has anyone taken pictures of bad joints to show Rheumy Doc or friends/rels?Rheumy said they were really helpful. She kept them for my file.

"Youre just about to be ill" - Erm okay then..?

Heck-a-lot!

Sometimes wonder what I have ??

In limbo - time stands still!

Hi all, is it 'normal' to be spending most of your time shattered on sofa?

AVARA

Fibromyalgia?

ESR discreted for me? Baffled.

Treatment about to start at last!

Moles and RA meds

well another day another wonder

Are there any nice looking

GP's

Facial flushing

Survived Latitude festival with RA!

Stuck in my chair............

Why does Rheum Dr's letter to GP read 'Inflammatory Arthritis probable'. Rather than 'Inflammatory Arthritis-Rheumatoid ' for example?

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