new to this site and this disease, my partner doesnt understand the pain i get and how tired i get through out the day, been on sulfasalazine for about 6 weeks now and im on etodol or however you spell it.
anyone from glasgow area and around my age (28).......
are you a male? the freaky thing was, I was in a shoe shop yesterday, trying on every pair of unsuitable shoes that I shouldn't wear and the assistant comes over looking bemused and asks if she can helps; so I explain, I want a pair of 4inch heels I can wear all day at work for arthritic feet! she goes on to tell me she has a nephew just diagnosed, from Glasgow but I think she said he was 26.... haha do you have an aunt who works in a shoe shop in Inverness?
Sorry about the waffling and welcome! you'll get soooo much help and advice from everyone here, sorry to hear about your diagnosis, early days for you which is such a hard time; no one can reallly understand apart from us who have it, but you will get better just as soon as you get the right combination of medications.
hello Jonsi, i am not from glasgow nor 28 but do have ra and on sulpha hoping for another dmard soon. Trying to make family members understand is difficult - I am still working through it. Welcome..
Hi Jonsi
It's tough in the beginning but as wilby says, once they've got your drug combination right, things will improve.
I'm one of the 'lifers' on here. Lived with RA for 38 years and still standing! As any of us who are long-term diagnosed (and there are more than you think) will tell you. The drugs available now , although sometimes tough to tolerate, mean that the prognosis is much, much better these days than it was 30 years ago.
Good days and bad days are the norm and our partners not truly understanding is pretty much par for the course too. It doesn't mean they don't care, just that they have no way of knowing what it's like.
Things will get better in time and in the meantime, just rant away!!!
Take care
B x
Hi Jonsi, not from your area and an awful lot older lol, but welcome to the site anyway. you will find lot of help and support on here.
Take care Beth 48 
Hi Jonsi,
Welcome to the site. Hope you get some relief from your meds. Look forward to hearing more from you.
Mary
Hello Jonsi - Welcome. Sorry you are newly diagnosed at a young age - although there are younger members here than you so you are certainly not alone. I live in Orkney but was in Glasgow on Friday for the day and was wondering what rheumatology services are like there so it's interesting for me to have a Glaswegian on here to ask. I'm even older than Beth at 49 but I'm an artist and we never age really. My partner doesn't always get it either although he does try bless 'im. Tilda x
Thought it was me, but ages are mentioned so often in this blog....good job I a whipper snapper ..
Hi Jonsi, Im not from glasgow either - but I am around your age (23) I completely understand how difficult it is explaining how you feel, especially since most people I've come across think we are too young to have RA! (or dont know anything about it) It can be really frustrating at times. Thankfully there are lots of lovely people on here who are always willing to listen and help if they can.
I started on sulphasalizine too, but am on mtx aswell now, I found that the sulpha worked well for me, but 6 weeks is not very long to be on the tablets, so I really hope you feel some relief soon!
Feel free to contact me if you ever want to talk.
Tracy x
thanks tracy, yeah never thought i would get this at 28,( shock). people say it takes a while for the sulf to work, how long? i havent noticed any difference , still swelling up and getting chronic pain in hands.. ( bangs head off wall ).
well it took me about 2 months for it to work, but I was also on alot of painkillers! I had also just graduated, so didnt have a job so i got a lot of rest, and I think that really helped. Just make sure that you dont overdo it - you know what you can and can't do, dont let anyone tell you otherwise! Hope you feel better soon and the swelling goes down x
I'm in Edinburgh - a bit old but mentally about 16. Would be happy to exchange experiences - I've had RA for about 10 years and had to give up teaching job, but am now studying art
Cathie
Hi and welcome to the site, you'll find there's loads of help/advice and emotional support from members of all ages with varying degrees and types of Inflammatory Arthritis.
I agree with you about partners, my partner and I ended up splitting up because he couldn't get his head around the level of pain with no evidence of injury or how tired I became. I must add, I became very angry with the disease and myself for allowing him to blame my health for the break.
My advice is; gather RA information then sit down and talk to your partner about the condition and how it makes you feel. Take him/her along to your consultant/nurse appointments so he/she can see what you go through because of RA, sometimes hearing a nurse/doctor confirm the disease and what it does can help with their understanding.
Good luck and feel free to sound off if you need to, believe me no one minds in here.
Beth x
Hi Jonsi, Welcome, you will soon make friends on this site and they will not be your age or genda or even come from Glasgow, But one thing we all have in common is RA and knowing what it is like, newly diagnosed and further down the medicine combinations and complications road, so hang in there, heed advice from the experts and share with those who know.
Hi Jonsi and welcome.
I see from your profile that you have a nutcase of a dog - that makes two things we have in common now.
What kind of dog is he?
Judy
hey hes mental i tell you .... hes a cross lab/collie ... hee hee
hi all and thanks for the warm welcome... kinda glad i found this site now... the thing about being on sulf is all the bloods the nurse is taking, i would not make a good junkie i tell you .......
speak soon alll
regards
jonsi xxxxx
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