Hi all, how are we all doing? Haven't forgotten any of you-hugs to all of you.
What have i been up to?
Well, battling the mix if mtx and sulfasalzine, now on morphine patches, they were inreased, and the RA has affetced the mobility. So conceeded defeat and had to use a stick.
But despite all this, have been trying to keep writing and campaigning, rasing awareness of RA, been on radio, tv, and campagingin on disability issues- been to the houses of parliament twice, and paid for all of it with tiredness, but still battling
Have managed to set up a benefits welfare support group to help others going through assessments, and am in the process of setting up a service user forum for those battling mental health issues and have been in crisis.
The poetry is coming along, have written a fair bit, or should i say have spoken into computer software, the writing is well, won't go there, and can't hold a pen like i used to.
This is the first time i have been able to get on here for over a month now, but i have not forgotten any of you.
Have been out there trying to support those who are going through a lot, and raising awareness of RA, trying to campaign on behalf of the trust which has gone into administration.
Still trying to pace myself, and do rest more than i used to. Last weekend most of it was aslpeep or in bed.
Thinking of all of you, and take care, hope you are not in too much pain, or suffering too much, hugs to all of you. Paula xx