Results Bone Marrow .

[Topography52_-]

Had my results from my bone marrow and yes it is ITP on a plus I now have a proper diagnosis .

[HOLCOTT]

How was the bone marrow test? Painful?

[Topography52_- in reply to HOLCOTT]

I am being completely honest I found it painful the exact amount of bone marrow needs to be extracted I felt tugging and pulling and pain the wider picture I now it is ITP .

[HappyHopeful in reply to Topography52_-]

Great news! My father has had a total of 2 bone marrow biopsies. Did they find any blasts? There's a percentage they tell you as a result.

[Topography52_- in reply to HappyHopeful]

Oh no one mentioned blasts I am intrigued I am back at the hospital on 2nd August I will ask... I had the ivig drip also platelets at their best 210 with the ivig now dropped to 80 hey ho : ))))

[Tenk in reply to HappyHopeful]

Hi there. What do the blasts tell you? I had a bone marrow aspiration three months ago. I wasn't aware that it could confirm ITP, just that it ruled other things out and all that is left is ITP. Is this also your understanding? Thanks, still early on this journey and learning from you all.

[HappyHopeful in reply to Tenk]

So the blasts mean there are immature cells in the bone marrow (& that is bad, so to speak because it means they will never turn into blood components) Are you getting access to your CBC's at least? (Your complete blood count)

[Tenk in reply to HappyHopeful]

Hello. Yes. I'm getting CBC every visit and I will now ask for one marrow aspiration results.

Thanks!

[HappyHopeful in reply to Tenk]

Are only platelets low in your CBC? Or other blood lines out of range too? For example, hemoglobin, RBC, bilirubin, etc.

[Tenk in reply to HappyHopeful]

My neutrophils are very low. I've mostly been neutropenic for the last three months.

Back to the blasts:

If you have blasts in your bone marrow does that mean that you'd ITP is bone marrow based and therefore your ITP is not autoimmune? (My understanding of autoimmune is that this diagnosis tells you that the problem is occurring in your blood after leaving the bone marrow - that some of your 'defender cells' are attackingyour own blood cells - platelets in the case of ITP.

Is that right?

[Topography52_- in reply to Tenk]

My hemotologist told me that my bone marrow is making the platelets but my immune system is attacking them so now it apperars I now have a week immune system at times I do ask questions other times I do not may ask I am pretty new to itp 6 months now and just take it day by day how low are your neurophils ???

[Tenk in reply to Topography52_-]

O.4 at last count. Been hoveringbetween 0.3 - 0.5 for about two months.

[Topography52_- in reply to HappyHopeful]

My hemotologist is amazing I am sure it would of been mentioned : )))) I am sure I will be fine , good information though.

[Topography52_- in reply to Tenk]

My hospital letter states haemoglobin 146, platelets 80, ( were 210 after ivig drip slowing dropping again ) white cells,6.6, neutrophils 3.3 due to her diagnosis of Itp confirmed on bone marrow .... my letter dated 22nd June .... I await replies : )))))

[HappyHopeful]

How did they decide you had ITP rather than MDS, for example? When they did our bone marrow biopsy and aspiration, the results showed 3% blasts for my father. Blasts are immature cells that didn't turn into blood, from what I understand.

[Topography52_- in reply to HappyHopeful]

I did not ask any questions was told it was itp due possibly to my shingles and infection I had and maybe it is all lingering as stated I do not ask much as I do not want it to take over my life which I did get a bit obsessive at first it was all a stab in the dark and I know I am still learning about itp via this site it is amazing place to gain knowledge as you guys have mentioned "blasts " will ask about this thank you .