tuberous sclerosis: Hi my epilepsy is caused... - Epilepsy Action

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tuberous sclerosis

Alwayslovecats profile image
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Hi my epilepsy is caused by tuberous sclerosis (TSC). Just wondering if anyone else has it? Or knows anyone associated with it? Here is a link: nhs.uk/conditions/tuberous-....

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Alwayslovecats
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EpilepsyAction1 profile image
EpilepsyAction1PartnerEpilepsy Action

Hi Alwayslovescats

Hopefully you'll get some replies from others on here soon, but I just wanted to let you know about the Tuberous Sclerosis Association. They offer advice and support to people affected by TSC and have details of some community groups on their website: tuberous-sclerosis.org/get-...

Grace

Epilepsy Action Helpline Team

Alwayslovecats profile image
Alwayslovecats in reply toEpilepsyAction1

Thank you so much Grace!

coady123 profile image
coady123

thats what i remember them calling it when i was very young, i had forgotton all about it to be honest, i have had epilepsy most of my life under control with loads of tablets but can still get a fit now and then, very rarely though, usually brought on by work pressure etc or rushing at things

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