Hi my epilepsy is caused by tuberous sclerosis (TSC). Just wondering if anyone else has it? Or knows anyone associated with it? Here is a link: nhs.uk/conditions/tuberous-....
tuberous sclerosis: Hi my epilepsy is caused... - Epilepsy Action
tuberous sclerosis
Written by
Alwayslovecats
To view profiles and participate in discussions please or .
3 Replies
•
EpilepsyAction1PartnerEpilepsy Action
Hi Alwayslovescats
Hopefully you'll get some replies from others on here soon, but I just wanted to let you know about the Tuberous Sclerosis Association. They offer advice and support to people affected by TSC and have details of some community groups on their website: tuberous-sclerosis.org/get-...
Grace
Epilepsy Action Helpline Team
thats what i remember them calling it when i was very young, i had forgotton all about it to be honest, i have had epilepsy most of my life under control with loads of tablets but can still get a fit now and then, very rarely though, usually brought on by work pressure etc or rushing at things
Not what you're looking for?
You may also like...
Keppra 750mg
Before my last seizure in April, I had been taking 500mg twice a day since diagnosis in April 2021...
permanent aura
Hi
Does anyone have a permanent aura? I had Covid 2 weeks ago ( for the third time) and I am...
Tired of memory loss and being a joke
Epilepsy has really affected my memory in the last 8 years. I’m constantly putting my foot in it....
Lamotrigine and Sodium Valproate.
My neurologist is now talking about adding Sodium Valproate to my current 400mg daily dose of...
Med change
My son has been on Carbatrol for decades and has developed osteopenia from it. We tried...