Infrequent seizures

[Mutley45]

Is there anyone here that has had infrequent seizures? I’ve had two, 13 years apart. Just would like to share experiences. Thanks

[Catwoman777]

Hiya My seizures are infrequent. Approximately every 6 years. I’ve had 4 in total. Have you been diagnosed with epilepsy after 2 so far apart? What type of seizure did you have?

It’s really frustrating isn’t it. I’ve not had medication before and have just been prescribed Lamotrigine. After seeing others experiences and reading all the side effects I’m reluctant to take it. Especially as it says it can cause a seizure. It doesn’t guarantee I won’t have another seizure so I feel I’m filling my body with a toxic medication for something that happens every 6 years.

[EpilepsyAction1 Partner Epilepsy Action]

Hi

I hope you hear from others on this platform, as sharing information and experiences can be a good idea. Can I just check you also know about our other services?

We have our virtual support groups epilepsy.org.uk/virtual-groups. We have our forum4e online community forum.epilepsy.org.uk/, and we are on facebook facebook.com/epilepsyaction and twitter twitter.com/epilepsyaction.

Finally, please feel free to contact our helpline team. You can either email [e-mail] or phone the Epilepsy Action Helpline freephone 0808 800 5050. Our helpline is open Monday to Thursday 8.30am until 8.00pm, Friday 8.30am until 4.30pm and Saturday 10.00am until 4.00pm.

Regards

Jess

Epilepsy Action Helpline Team